How long does it take to find the right dose of levothyroxine?

HI Kate, have had Thyroid problems now for 15yrs and still not exactly right.....it changes all the time.....with me anyway `

My Dads took years too, unfortunately it's one of those things that is not a certain thing, everyones different and then it changes

I don't know, but hope it works soon my hypothyroid was just discovered because of a rash i went to the ER for ended up in there for 6 days with a heart rate of 23 to 46 and my thyroid blood work came back a 0.4! I was put on 200mgs and it makes me feel bad, tomorrow will be my 30th day on them...does anyone else get headaches and trouble sleeping on this stuff?

Hi Kate, it can take a lot of time and your level may have to be adjusted quite regularly. Doctors like to go by 'what the blood tests tell them' which may not accurately reflect the level which makes you feel best. As long as you know what symptoms indicate your going up too high, then I would recommend 'playing with your own dose. My gp after 3 years now respects that although blood results are on the higher end but still within a normal range means the dose I take is slightly higher than what she would have suggested. I increased my own dose , slightly,by cutting tablets in half and not thinking about what was right for the day but managing a more general weekly dose. I have ended up on 75 one day 50'another and alternating, and this is currently how I feel best. It may be that as I get use to it, I feel the need to creep upwards but I am very aware of hypo signs and still use blood results but tend to lean towards how I feel. I am cautious, as I did. Go very high several years ago and it was quite scary. Good luck, and keep persevering!

Lorilyn,

It sounds like your dose is too high, headaches, and difficulty sleeping are signs that your are creeping too high! Get some new blood tests quickly and speak to a doctor, being too high can be very dangerous! My gp placed a piece of paper flat over my hands, it was only then I noticed I was trembling and was put on carbimazole to to lower thyroid. They flattened the thyroid level but it never kick started naturally since and have been on thyroxin ever since.

Good luck.

The problem with finding the correct dosage is that it will only be correct all the time your thyroid is producing a constant amount of hormone itself. Every time your thyroid produces either more or less hormone your dosage will be incorrect, unfortunately the thyroid is NOT a constant machine and is ALWAYS changing how much it produces. Dose changes are inevitable.

Since my TT my levels have been so easy to regulate but obviously this is not a wise course for most and not an easy option.

Make sure your b12, vit d etc optimal as this will help you feel well xx