Hi, thanks to those who directed me towards the info from NBob re saliva testing at UHS.
I got in touch with my doctor re this and she duly got in touch with UHS. The response in my doctors letter was as follows:
'We contacted the UHS biochemistry department and they do indeed do a salivary cortisol but it is not free and there is a cost. They would normally get requests sent in by local labs so I have spoken to the lab at the Royal ( my local hospital) and they confirmed that they don't do this as these tests are quite complex in interpretation at times and that maybe we should reconsider referring you to the endocrine team'.
I called the UHS number that NBob had given and sure enough you get straight through to the bio dept'. However they're not too happy that a member of the public called them - fair enough - but confirmed that the referral would have to be from a local lab.
I did a saliva test via Genova some years ago when I read up on the condition which showed my adrenals to be exremely fatigued. Prior to that 2005 I was told I had ME!!! After the saliva test I found Dr P and carried out a 24 hr urinary test which showed me being slightly hypo but mainly adrenal. I had 'Carrie' like symptoms which were as scary as hell and not kidding about the Carrie reference! After a long spell in bed and then meds from Dr P I even got back to playing tennis and team tennis, Wasn't a hundred % but such a marked difference. I thought I might have just got well and stopped taking what Dr P had prescribed. 2011 started to experience less energy until 2012 had the mother of all relapses and returned to old symptoms of racing heart, heart jumps, chest pain, chronic fatigue, and sleep disturbance. The latter remains worse than ever as I wake shakingand feeling foul. I've been back with Dr P since last Nov'. I'm on, natural thyroid, adrenal, and seretone. I saw an endo last year - privatley. Did synacthen test and told all was well so the idea of seeing the same again doesn't thrill me as feel it's a waste of time. My thyroid tests also are apparently fine!
I agree with one of your bloggers that if UHS think there is something in saliva testing then there must be a reason for them bothering in the first place so how do we find out why some places think there is merit in saliva testing and yet others don't.?There has to be some consensus on this. Embarassing Bodies carried out a saliva test on a group of people and a chef came up as the one needing to take note. Have tried make contact with programme makes to no avail.
Would love to hear your thougths and NBob, know you have a full time job but would appreciate any ideas on this.