Why do I feel so ill? Please help.: I`ve just had... - Thyroid UK

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Why do I feel so ill? Please help.

JLD1 profile image
JLD1
13 Replies

I`ve just had a second blood test done today, the first one was about 6 weeks ago and I was told my levels were a bit low and that this suggests I am underactive, but the GP wanted me to wait a month and have a further test before starting me on treatment.

I asked the nurse what my results were from the first blood test and she said: THS was 14.3 and Serum free T4 level was 10.4.

I am still bewildered by it all and my concern is, if as the GP says my levels are a BIT LOW, why do I feel so ill? Is this normal and if it is I feel so sorry for those who`s levels are high!

Some of my symptoms are: breathlessness, chest pains, feeling anxious, feeling tired most of the time, joint pains and rapid weight gain.

Thanks for listening.

Warmest regards,

Janet.

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13 Replies

JLD1 If this were me I would phone Doctor and ask to increase the dose.

I was prescribed levothyroxine with a TSH of 5.7 and I was barely functioning.

We are all different but also when my T4 went up to 14....I expected him to say your are taking enough BUT he said that was still on the low side. I did feel a little better but still hard to function...heart pulse cold...retrieval deficit etc.,

Give em a ring there is still time today. No joy....see another Doctor.

wyn

JLD1 profile image
JLD1 in reply to

Thank you for your kind and supportive reply Wyn.

Hope you are feeling better soon.

Janet.

Cinnamon profile image
Cinnamon

Even by the NHS's standards your TSH of over 10 says you are overtly hypothyroid. My periods stopped with a TSH of 6, and I developed night sweats and shakes (among other things). I'm not sure why your GP is waiting to medicate when both your tests and symptoms imply you need to be treated. I too think you need to get the GP to see you very soon. Good wishes.

JLD1 profile image
JLD1 in reply toCinnamon

Thanks Cinnamon, for your help. It is much appreciated. I too get night sweats and shakes but just put that down to the menopause. I now know better! Hope you keep well.

Janet.

rosetrees profile image
rosetrees

I think "a bit low" is doctor speak for "omg, I can't believe your levels are that bad, let's do another test to make sure the lab didn't get it wrong".

A bit low! My ****. I was prostrate in bed with a TSH of 5.6 - but I do have adrenal problems as well.

JLD1 profile image
JLD1 in reply torosetrees

Thanks Rosetrees, for your support. It really makes all the difference, coming here to this site and talking to people.

I hope you soon feel better and get the adrenal problems sorted.

Janet.

Girlpower profile image
Girlpower

I think the doc could be wrong - I too was like the walking dead at 6.8 and my GP said that's "normal", I knew it was wrong having done a bit of research, terrible being fobbed off - I swapped GP practice, they were fab, I wasn't going mad, immediately started on 50 mcg of levo, felt much better after a while - top level for TSH as far as I'm aware is 4.5, so no wonder you're feeling grot, sounds definitely like you need treatment - hope you get sorted soon, all the best

JLD1 profile image
JLD1 in reply toGirlpower

Thanks Girlpower, for your support. I really appreciate it.

You did right changing your GP practise. I think I may have to do the same if the GP does not treat me after the next results come in.

Hope you keep well.

Janet.

Stourie profile image
Stourie in reply toJLD1

Hi I wouldn't even wait for the next results. Just go back suggest that he starts you on say 50 mcg levo and see how you feel on that. You could always say that if you don't feel right you would stop them. If you feel alright or maybe some improvement all to the good, because altho l'm not medically trained it is pretty obvious that you need meds. Hope all goes well and you get started soon.

Jo xx

JLD1 profile image
JLD1 in reply toStourie

Thanks Jo, your support is much appreciated.

Janet.

x

Wired profile image
Wired

It's no wonder you feel so ill Janet. My TSH was 11.3 when I was first diagnosed and I was an absolute mess! I couldn't function physically or mentally, I felt absolutely horrible.

It's obvious by your symptoms and numbers you need some treatment. Don't know why Dr's let people walk around feeling so ill when they can start them on treatment. It's so frustrating.

When you go back, if the Dr is reluctant to put you on medication, be quite firm and say that you feel ill everyday and need some help.

In the meantime be kind to yourself and rest as much as needed. Take care, Wired

JLD1 profile image
JLD1 in reply toWired

Thank you wired,

Your kind words of support are much appreciated.

Janet.

x

Den1987UK profile image
Den1987UK

What dose are you taking and what are your ferritin and B12 and vitam D3 results and folate if you have not had a blood test for these get them checked.

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