Haven't a clue what I'm doing x: Taking 20mgs lio... - Thyroid UK

Thyroid UK

138,524 members162,535 posts

Haven't a clue what I'm doing x

fion profile image
fion
4 Replies

Taking 20mgs lio,100 levo,was taking one grain erfa but can't afford to now,anxiety symptoms eg tingling,blur vision,electric feelings,nothing has made a difference x

Written by
fion profile image
fion
To view profiles and participate in discussions please or .
Read more about...
4 Replies
shaws profile image
shawsAdministrator

Have you had a recent blood test which you can post, with the ranges as labs differ. Did you feel better when on 1 grain Erfa?

Jackie profile image
Jackie

Hi make sure you have TSH, T4 and Free T3 tests to start with. I need my FT 3 right at the top of the range It may be that the T4 is too high and the FT3 still too low.Also sometimes the thyroid does seem worse before better.Did you try T4 and t3 on a script first? Most Endo `s prefer this. I cannot take T4 ( levo) so I have armour, 2 grains and T3, 20mcg. I have Hashimoto and am very stable normally.

Best wishes,

Jackie

fion profile image
fion in reply to Jackie

Why can't you take t4 I think Thats my problem

Jackie profile image
Jackie in reply to fion

Hi fion.

It is fairly common

so interesting. Basically I have a bad heart and it made it terrible, even on a lower dose. A lot of people manage to take it by starting on a minute amount, and taking weeks to increase to prescribed dose. Actually all my very good consultants say to do that with all drugs, except of course life saving and antibiotic.Trouble is buying armour or Erfa means, unless an outstanding GP, not mine, private script and paying Springfield, cheapest. I certainly would not buy on line etc as personally think it much too dangerous , even with lots of blood tests ( on line too)Funny thing is I can now take T3 which I would not have been able to. Thanks to a good endo, often drugs problems can be due to motility down to pancreas. Simple specific stool test, Faecal Elastase ( I am sure Blue Horizon do it on their main site), under Gastros but low opinion of them all. Any way endo long time ago, said to demand the test. Simple remedy is to take the enzymes, not drugs, called Creon, common. Script after test or worth risking as safe just replacement enzymes form Holland and Barratt, same thing. Takes a few months and permanently stay on them. Must be taken about 20mins before food or useless.

Best wishes,

Jackie

You may also like...

Please help...Results in! Haven't got a clue what any of it means!

T3 3 x a day how do you time it?

move to 45mcg and probably up to 50 later. I take Levo 100 mcg first thing with first T3.

hormone imbalance - any clues?!

test from Forth to fully check my hormones. I’m now more confused than ever with so many over range...

Anyone have any idea what this means? Thank You x

8.1 pmol (7.8 -21.0) Does the fact that i was taking suppliments B12, vit d, folic and iron from...

Not sure what to do next

the T3, I was taking 125 mcg levo, but had severe hypothyroid symptoms and now I feel like all I'm...