Hi all, wasn’t certain where to to post this?. Firstly I would like to thank everyone within this community for the support and knowledge offered here.
I would like to please call upon some of this expertise and knowledge. I had Papillary Thyroid ca, stage 2 and a total Thyroidectomy in Dec 2009, I was 45. RAI treatment followed. I immediately went into full blown Menopause, nothing to hint at that prior. Two years of being extremely unwell, total fatigue, recurrent chronic UTI’s/kidney infections requiring hospitalisation.
I finally went to see an Endocrinologist in Nottingham privately, he was amazing and saved me by listening and treating me, introducing me to T3 and adjusting my T4, also prescribing HRT Patches. Amazing difference and I have pretty much functioned along those same lines for the past 11 years with no med changes.
I was under the care of several different Oncologists for the first 5 years. Then a lovely female oncologist for a further 3 years. She went on Maternity leave and I then went to see an Endocrinologist. Since then I have battled with these Endo’s who desperately seem to want to remove my T3 (I was told to expensive). I fought against this and have so far succeeded. I am now onto my 3rd Endo in 3 years, as well as like us all COVID as stopped my annual face to face appt.
I found a lump in my neck 8 weeks ago, eventually managed to contact the Endo team at the hospital who sent me for a scan and said I would have a face to face follow up appt. Thank goodness the scan was clear, however another new Endo contacted me the day of supposed appt and said it would be a phone appt there and then. After he said he felt I was doing very well, my bloods were fine and he was reducing my T4 as my levels need not be so suppressed after all these years. I had been taking 150mcg T4 3xpw and 100mcg T4 + 10mcg T3pw. He has reduced T4 to 125mcg 3xpw. Left T3 unchanged at my adamant request. Advice please and apologies for lengthy post. Thankyou.
