tenesmus: I’m having an ibs flare up right now... - IBS Network

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tenesmus

binks profile image
32 Replies

I’m having an ibs flare up right now after 4 good months! Anyone have tenesmus with their ibs? I hate it!

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binks profile image
binks
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32 Replies
Trinity7 profile image
Trinity7

What is that condition tenesmusPlease

binks profile image
binks in reply to Trinity7

It's the feeling that you need to go, but there's nothing in there.

Eliana10 profile image
Eliana10 in reply to Trinity7

I have this diagnosis and was recently prescribed Levsin and Bentyl which seems to be helping. Also try putting a warm soft wet wash cloth to the area for about ten minutes three times a day.

Angrybelly profile image
Angrybelly

Yes it's horrible I've had it for years. The feeling of having to go and nothing comes out. The only thing that works for mei s grapefruit seed extract. My doctor prescribed Bentyl and Levsin they are anti spasmodic drugs. If rather go natural way but even then somethings don't work. Doctors have no idea what to do. Sorry I don't have many answers. Do you have IBD, diverticular disease or proctitis? It's very common in inflammatory diseases, but also in ibs.

binks profile image
binks in reply to Angrybelly

No, I don't have IBD. I've had IBS for 30 years and this symptom comes and goes but it's really bad at the moment. I'm just curious to know whether other IBS sufferers have it too. x

Zjs0375 profile image
Zjs0375 in reply to binks

I have had the tenesmus feeling for approx. 2yrs now. Started after a slight bit of very loose stools and feeling would not go away. The past yr I have bloating and a lot of gas. Some days worse than others. I have had ct scan, mri, blood work, colonoscopy. All good. Dr's say I am healthy and have Ibs. Constantly feels like I have to go. I believe I have ibs mixed. I have taken up to 40mg of Amitriptyline. Doesn't help. I cut myself back down to 20mg. Diet changes don't help.I have been to two colon drs. and 2 gastro drs. Say there is nothing they can do. I exercise regularly, play golf and swim. I just deal with it. Some days worse than others.

Very frustrating as we all know.

Eliana10 profile image
Eliana10 in reply to Zjs0375

Have you tried Bentyl or Levsin? I have Tenesmus as well as Anal spasms and so far seems to be helping.

Beakybird58 profile image
Beakybird58 in reply to Angrybelly

Please read my recent post! X

gussmithy profile image
gussmithy

I don't have IBS but do have tenesmus. Past episodes proved to be caused by rectal in which were treated and tenesmus stopped. Now trying to see a colorectal specialist. Do sympathize.

binks profile image
binks in reply to gussmithy

I have had an anal manometry test, and apparently have muscle weakness and pelvic floor dysfunction (thanks to childbirth many years ago!) I think this causes the T symptoms when my IBS flares up!

gussmithy profile image
gussmithy in reply to binks

Sounds like that's the cause. Hope the issue resolves soon.

Boxroad profile image
Boxroad

yes I get that a lot I find haemorrhoids cream up inside help a lot as my ibs always affects my internal haemorrhoids

binks profile image
binks in reply to Boxroad

The constant need to try and "go" causes me to have bottom issues too X

Eliana10 profile image
Eliana10 in reply to Boxroad

Have you asked your Doctor or Gastroenterologist about Bentyl or Levsin? I have Tenesmus and it seems to be helping a lot..now I can sleep better at night..

Frasina profile image
Frasina

I have this sometimes and have both IBS and IBD. It is really bothersome, but it does seem to come and go.

Eliana10 profile image
Eliana10 in reply to Frasina

Have you asked your Doctor or Gastroenterologist about Bentyl or Levsin? I have Tenesmus and it seems to be helping a lot..now I can sleep better at night..

Poorlypatient profile image
Poorlypatient

yes I get this and it is truly awful.Think it may be something to do with bowel being so sensitive there may just be a tiny bit of stool there but makes us think we need to go when we don’t.I have had it on and off for about 25 years.🥲😩

binks profile image
binks in reply to Poorlypatient

I think that's definitely part of it. Visceral hypersensitivity! Also motility problems so my muscles are uncoordinated which means I never feel like I've been properly, which fits in with your comment. x

Eliana10 profile image
Eliana10 in reply to Poorlypatient

Have you asked your Doctor or Gastroenterologist about Bentyl or Levsin? I have Tenesmus and it seems to be helping a lot..now I can sleep better at night...

MKG50 profile image
MKG50

Yes, I have this horrible condition which, I presume, is a symptom of my IBS. The feeling for me is like a really uncomfortable pressure in the rectum about an hour after a BM. I don't have to keep running back to the loo, it is just this awful discomfort. I get vesical tenesmus too: the feeling that my bladder hasn't emptied fully either, accompanied by bladder pressure. My GP doesn't have any answers and no suggestions. I believe it is associated with extreme hypersensitivity. I took low dose nortriptyline for a while, which helped, but it started to raise my BP and so I came off it.

I'm considering taking a SSRI antidepressant which, I understand, can help with hypersensitivity and does not have so many side effects as the TCA antidepressants (amitriptyline/nortriptyline etc.)

Has anyone else tried SSRIs for IBS?

binks profile image
binks in reply to MKG50

I've been prescribed Amitriptyline several times over the years but have never taken it. I need to be alert at work and after speaking to a few people, even taken at night it can make you feel foggy in the mornings. I took Escitalopram for anxiety a few years ago - I managed 5 days of horrible nausea and much worse stomach symptoms so gave up! I couldn't even stand them for the initial 2 weeks of side effects. I have rectal pressure too and it's really exhausting xx

Eliana10 profile image
Eliana10 in reply to MKG50

Have you asked your Doctor or Gastroenterologist about Bentyl or Levsin? I have Tenesmus and it seems to be helping a lot..now I can sleep better at night..

Johny334 profile image
Johny334

hi , it’s the part of my Ibs that bothers me the most ! Totally sympathies with you , it really knocks my confidence, that constant feeling of needing to go , like others mine is usually worse if I’ve got piles , I tried Amitriptyline , last 4 days on them ( I even halfed my tablet 😂) felt like I’d been hit with a truck , couldn’t get out of bed , I felt so tired, and couldn’t think straight, BUT they do work for some

Take care

Eliana10 profile image
Eliana10 in reply to Johny334

Have you asked your Doctor or Gastroenterologist about Bentyl or Levsin? I have Tenesmus and it seems to be helping a lot..now I can sleep better at night..

overcomer42 profile image
overcomer42

Its worse than IBS. I managed it with peppermint oil, lots of rest and fermented vegetables. Try taking the peppermint oil 30 minutes to 1 hour before a meal.

Buginout profile image
Buginout

I am on amtitiptiline,its the only thing that has helped!

Raneena profile image
Raneena

Hi

I have ibs from years ago but since 8 month I started to suffer from the same thing, but I noticed the reason is the presence of internal hemorrhoids, which is a very annoying feeling. …days I feel better than others .

I hope you get well soon.

overcomer42 profile image
overcomer42 in reply to Raneena

Yeah, I think so. I wonder if there’s a solution to healing internal haemorrhoids?

Eliana10 profile image
Eliana10 in reply to overcomer42

Rubber band litigation..but it is a long and somewhat painful healing process. There is also laser therapy and quite a few new type of therapies depending on what grade the hemorrhoids are..

Angrybelly profile image
Angrybelly

I have haf tenesmus for years it started after I was diagnosed with diverticular disease. Because of antibiotics and a few Norwalk virus infections I think I developed ibs and going 10 x to the bathroom daily caused hemorrhoids and internal mucosal prolapse. My surgeon gave me Dialtizem and nitroglycerin cream to increase rectal vascular healing. I've had manometry and defecogram etc and have no dyssinergia which means my rectum functions. He said tenesmus is either caused by IBD, proctitis or rectal nerve damages. He said there's no cure, but using a heating pad and the above medications tame it down. I've thought of having a colostomy bag and full removal of rectum because of this nightmare. But like he said constant irritation is what causes it and results in anxiety and thoughts of doom. Slippery elm works diets with l low spices and no irritants help. Like he said once the nerves are damaged they send signals to the brain as if you had stool when in reality there's nothing. Kefir probiotics help also.. I've tried everything if anyone else has ideas I'd love to hear them.

Eliana10 profile image
Eliana10 in reply to Angrybelly

I have this and was prescribed Bentyl and Levsin. It seems to be helping with anal spasms and Tenesmus.

Eliana10 profile image
Eliana10

I have this..as well as bad anal and intestinal spasms. It's quite annoying and very uncomfortable to the point I can't sleep. I was just prescribed Bentyl and Levsin and so far they seem to be helping with the Tenesmus.

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