Hi
just wondering if anyone else have other symptoms along side the usual IBS ones, such as feeling very generally unwell?
Some days I just can’t function with feelings of being cold, cold feet & clammy hands, shivery, weak, loss of appetite, back & stomach ache. Yesterday I felt dreadful, but today a different person 🤷♀️
I haven’t officially been diagnosed with IBS, colonoscopy showed a couple of years ago for me to have diverticulosis.
Ally
Hi if you have diverticular suggest you speak to your GP as you may have an attack of diverticulitis Good Luck🍀
Thanks for your response I may have to do that. Feeling ok today though 🤞. These feelings have been coming & going for some time 😖
I get all sorts of things. Not all the time, but I go through bouts of it.
Weird tiredness, walk half a mile and I'm already tired. Push through for 3 miles and I can sometimes start to feel better. Low back pain and muscle spasms there (sacro-iliac joint)
Dizzy when warm-ish (not even too warm) bathwater reaches my upper body but fine if it doesn't. Feel like bursting into tears sometimes for no obvious reason.
Irregular heartbeat. A bit too slow at times (48bpm) then soon normal (68) then missing 4 or 5 beats a minute.
Sometimes feel like I used to feel when just getting over flu, like I'm better but still haven't fully recovered.
I completely crash like I've climbed a mountain about an hour after dinner. That's not an unpleasant feeling but missed so many movies because of it. Have to keep hitting 'replay' lol
Thanks for your reply. It seems when we have bad flare ups it affects the whole body - everything becomes out of sync. I was getting lots of palpitations yesterday, I did put that down to a bit of trapped wind/indigestion/reflux. It certainly can get you down 😢. Today I feel like a different person (a lot better). I never know from one day to another what I’m going to feel like. You’re right it’s like getting over the flu.
Best wishes to you.
Ally
Oh yes, a bad flare up can really knock us for six. I always feel very delicate for at least two or three days after. But what I'm currently feeling doesn't even seem brought on by IBS, as my IBS isn't too bad right now, pretty normal in fact.
But my whole life seems like a game of "Whack-a-Mole" One thing gets whacked and disappears, and something else which seems unrelated, springs up in another bit of my body! Whack that....and next thing my foot hurts, or something else. Yes, I can never tell from day to day what will happen either.
Dear Luisa
Have you had your heart checked by your GP or been referred to a cardiologist? 48 bpm is very low and missing beats can be very serious - I know over the past year I had similar symptoms to you and have just had to have an emergency pacemaker implanted and feel better. I think you should ask to have a Halter Monitor for 24 hours to just check your heart rate for any arrythmia. Sorry don't mean to worry you but it shouldn't be ignored and may have nothing to do with IBS.
Thank you Rozzy. I did see the doctor about it and they listened to my heart and at the time they found no problems to warrant further tests. But that was just a simple test. I suppose I should go back and nag them. I am 70 after all.
Hi Luisa
I don't think listening to your heart is enough. I was checked by several doctors and at the cardiology unit at the hospital in January this year. I had ECGs and Echocardiogram and they found nothing wrong at all. It was only when I had a 24 hour halter monitor that the arrythmia was picked up and by then it was an emergency. The cardiology consultant rang and said I had to get in a cab and get to the hospital immediately otherwise he didn't think I'd last another night! I then had an emergency pacemaker fitted at St Bartholomew's Hospital in London even though my heart is 'apparently normal' which is why my heart failure wasn't picked up. Don't let your symptoms continue without a further check - you may have to insist and be pushy but it's very easy to get a halter monitor - sometimes the GP can arrange one. Also there's a blood test you can have to check if there's any sign of heart failure - it's a good test because if you're over the limit (can't remember what it was) the cause can only be heart issues. Sorry I don't want to worry you and it's probably nothing but I know how easy it is to be told all is fine and it isn't. I'm an avoider of hospitals but on this occasion I didn't have any choice and I now feel so much better and my heart rate is normal. It's not too much of an upheaval either!! Good luck
Rozzy, thank you. Very much. It can be easy for me to forget about those funny little heart things because IBS is the big bad guy in the room! I very often just blame any anomaly on lack of sleep or overwork, then let my interest in it fizzle out.
They are so subtle, and IBS is so big it takes most of my attention. But your care and advice is much appreciated. I should get an appt. with the Doc. just to be on the safe side.
Hi, my symptoms are very similar to yours- I never know from one day to the next whether it’s going to be a good or bad day. On bad days, just as others have said, it can feel like I’ve been smashed to bits. The guts do affect the whole body and sometimes it does get me down. Try to stay positive and push through the bad bits, there’s always better days ahead 😊
I suggest you all look up fibromyalgia as IBS is just one of many many symptoms. and it does effect the gut brain relationship. Temperature control and exhaustion are common symptoms.
Is TMS tempro mandibular syndrome? The jaw? In which case there might be something in that as I find I clamp my jaw sometimes especially in sleep (no teeth grinding but end up biting my lower lip)
Oh this is fascinating! Thank you. I will also pass this on to a friend who suffers from fibromyalgia. I also get what was diagnosed as "migraine" but it doesn't come with much of a headache, and sometimes no headache at all, just a few weird symptoms. And it was 2 years after that diagnosis that the IBS started, which I swear is connected to the above, At the time my diet was first class and I was fit and well.
But the migraine runs in the family, and I had incidents of it 3 times in my life when younger (without IBS in those times.)
Yes, I'm in the UK. I'll take a look. Thanks
Feeling a little lost!
Ibs and muzzy headed feeling
IBS-d morning rush or something else? So sick of feeling awful 😞
Bad stomach and feeling like I'm going to be sick
Bloating and feeling full
