Anyone have IBS AND upper digestive issues? - IBS Network

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Anyone have IBS AND upper digestive issues?

rustydog profile image
48 Replies

Does anyone have IBS and indigestion/acid/reflux etc?

How do you deal with both of these conditions?

What meds do you take to help?

I’ve had IBS for 23 years and upper issues for the last 5 or so years.

My gp just keeps prescribing me different PPI’s for the upper issues which give me headaches and I don’t particularly want to take long term. She has given up offering anything for the IBS because alongside low fodmap, nothing seems to help me.

The gastroenterologist told me it’s ‘just’ IBS so he can’t help me and I’m to go to my gp! Argh! I am stuck in a vicious cycle with a very unhappy digestive system every day 😩

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rustydog
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48 Replies
FRreedman profile image
FRreedman

I have been taking Omeprazole for over 20 years now, and haven't (so far) developed any side effects or unwanted extras. The problem with Acid Reflux is that you need to line the gullet or build up the medicine over time for it to have any real effect.

As far as IBS is concerned, there is no one item fits all drug to provide a cure or even any relief. Everything from unsuitable foods and drinks to working medicines has to be identified individually.

I'm sorry I couldn't offer you any more positive advice, but I hope you find something to assist you in the near future. In the meantime keep safe.

rustydog profile image
rustydog in reply toFRreedman

Thank you

Maureen1958 profile image
Maureen1958

Hi rustydog, I am more or less in the same position as you. I have had IBS for 35 years and it seems to get worse with time. When it started in my late 20's it was IBS(D) but now it seems normal consistency but does not act normally. I still go and just feel like I want to carry on, much the same as I always have. When I was younger if I went three times, in a day, spreading it over the day and not eating until I was going to go to the loo, I just about got by. I often got it wrong and was in a lot of pain and worried I would have an accident (but didn't fortunuately). If I was lucky and got everything out, everything would sit correctly inside me and I would feel normal to the next morning, whatever it eat. Now, with age I think, things have slowed up but I still feel I just want to keep going but getting to the end of it now, is almost impossible. So somedays I hold it somewhere along the line. Sometimes it worse going back to the loo now than not going back to the loo. But in the process of doing that I can get a bit constipated which I don't really know how to deal with but I find with that comes the problems up the top, ie indigestion, reflux, stomach acid etc.

I don't take any indigestion stuff as I am too scared what it will do to my bottom half. I have taken stuff on the odd occasion but it has made the IBS worse, so I avoid it like the plague now.

So all in all not a lot of help but at least you know you are not the only one.

If you find any answers let me know. 🙂

rustydog profile image
rustydog in reply toMaureen1958

Those are the exact same symptoms that I now suffer from. I think I am in perimenopause and that has exacerbated these symptoms.

Maureen1958 profile image
Maureen1958 in reply torustydog

Yes, I remember that was a bad time for me too.!

K1410 profile image
K1410 in reply torustydog

Hi rustydog, I never had any issues with my stomach / bowel . Then I hit 44 & all of a sudden started with terrible intolerances to all sorts of food ibs symtoms . I tried it all food diary low fodmap cutting things out . In the end I got diagnosed with ibs . I then started with upper stomach issues. I knew this just wasn’t right so I really looked into it myself . Guess what !!

Digestion is a symptom of peri & can be awful for some women mine was /is!!!

No one tells you this no doctor ever linked the dots ever I did it for them!!

Anyway 6 years on I’ve just started hrt 2 months ago & touch wood I haven’t had any issues with both bowel or stomach . I’m not saying I won’t again but it was nearly daily gurgling, pain etc till 8 wks ago . Hormones massively effect our bodies I’m afraid . Go into menopause matters forums etc or the balance app loads of lovely ladies will have stories etc on their and chat . Hopefully you get some relief in the near future

rustydog profile image
rustydog in reply toK1410

Thank you, that is good to know. I often wonder if hrt will help, I will ask my gp.

Beempty profile image
Beempty in reply toMaureen1958

Read the reply to Agonyibs on NS Buddhism. That is helping me and stopping the what if.

Maureen1958 profile image
Maureen1958 in reply toBeempty

Why don't you put a link to this when you post about it, so people can find it easily. I'm afraid I don't do mumbo jumbo!

Beempty profile image
Beempty in reply toMaureen1958

Don't judge something you don't understand. That is negative.

Maureen1958 profile image
Maureen1958 in reply toBeempty

I tried hypnotherapy twice, which didn't work, so I can't see how chanting can help!

Beempty profile image
Beempty in reply toMaureen1958

NSB is a practice not only for health, but to understand what life is about, and how we can change suffering. It is to become a Buddha and that means we have a Buddha nature (wisdom). Look it up in the internet when you are ready under Nichiren Shoshu Buddhism lots of information. The Lotus Sutra is the doctrine. I am reading Burton Watson's English version. Nam Myoho Renge Kyo. I know that I feel physically and mentally better.

Maureen1958 profile image
Maureen1958 in reply toBeempty

I had a quick look. Not for me. I don't do religion of any kind. I think at 63 I know what life is about, and do what I can for people (and animals) suffering. Physically, I feel there is not an answer for me but mentally I'm fine thanks.

Beempty profile image
Beempty in reply toMaureen1958

You are not ready yet be who knows in the future. You have a connection now.

I m suffering from acid re flux problem. Many time, I feel stomach burning problem. I skip to drinking coffee and tea. This will supports to keep my stomach little normal. I also avoid to eat more spicy food.

rustydog profile image
rustydog in reply toelizabethbrownall

I am finding I am having to give up so many foods which are causing me issues!

Confused01 profile image
Confused01 in reply torustydog

I feel dr’s should be a lot for food allergy tests for people with gastro issues…gluten, wheat and lots more. Could help a lot of people.

elizabethbrownall profile image
elizabethbrownall in reply torustydog

good ..!

diahealth profile image
diahealth in reply toelizabethbrownall

I know this seems strange but I suffer from digestive issues including severe constipation which has resulted in reflux, horrible thing. What has helped me is to make this drink and drink it twice a day. I had to stick with it but my reflux has gone and I can eat foods I couldn’t touch before. It’s two tablespoons of apple cider vinegar with the mother, teaspoon of lemon juice, 1/4teas ginger and a pinch of Himalayan salt in a tall glass of water. Drink it through a straw to protect your teeth and rinse your mouth out afterwards and like with all citrus don’t brush your teeth for an hour to protect the enamel on your teeth. I make up a jug. Over time you need to drink it less, your stomach seems to take over. It’s been amazing for me. I got off the ppi drugs, stopped them first because the two would interact and started the drink. Worked through a rough day early on but so pleased to be off the drugs which have their own side affects. I know others this has helped as well. Now just have it before eating something spicy or maybe once a week.

Beempty profile image
Beempty

Have them both. I try to eat healthy and not to spicy. Also read The reply to Agonyibs on NS Buddhism.

Confused01 profile image
Confused01

Hi there,Diagnosed IBS, Acid Reflux and Bile Salt Malabsorption and Gallbladder removal ..all in all bit of a nightmare.

I go from urgent diarrhoea to bad constipation, get ulcers, pain, exhaustion from etc.

No Dr should say ‘just IBS’ as it can be very hard to live with.

I was on Omeprazole for a couple of years, didn’t do much. Then a Consultant said to come if them as they are not meant for use for a very long time. Annoying how Dr’s contradict each other fgs!!

Two months ago I decided to try and lose a little weight. I changed my diet completely….very healthy and a minuscule amount of sugar and fat. A balanced diet of course. Since then my gastro issues seem to have improved, not totally but reasonably. I do think what we eat can help or hinder.

May be worth asking your go for a referral to a dietitian..worth a go.

X

Maureen1958 profile image
Maureen1958 in reply toConfused01

Have you been given a bile sequestrant for your BAM?

Confused01 profile image
Confused01 in reply toMaureen1958

Good morning,I’ve been given meds to use as and when as I fluctuate from urgent diarrhoea to bad constipation 🙄. So meds for both..has quite an effect on freedom or rather lack of lol.

Massive diet change has helped so far.

Maureen1958 profile image
Maureen1958 in reply toConfused01

I'm glad you are finding something to help. Did you have a SeHCAT test to diagnose your BAM?

Confused01 profile image
Confused01 in reply toMaureen1958

Yes I did. Tbh it was very obvious I was suffering with BAM. Do you have BAM?

Maureen1958 profile image
Maureen1958 in reply toConfused01

No, I had the test about 3 years ago after suffering IBS(D) for over 30 years. My cousin has it so I thought that may be what I have but I didn't meet the criteria. Do you take the questran for it?

Confused01 profile image
Confused01 in reply toMaureen1958

Mines result of gallbladder removal.

Maureen1958 profile image
Maureen1958 in reply toConfused01

Yes, I realise that, but some people can have it without gallbladder removal.

rustydog profile image
rustydog in reply toConfused01

Thank you. I too hate how doctors contradict each other, I have had that so much. Sadly, I have seen 3 dieticians and haven’t got too far with them, they tell me to follow the low fodmap diet and as it hasn’t helped I get told I must be one of the 25% the diet doesn’t help and then they discharge me!!

Confused01 profile image
Confused01 in reply torustydog

Mmmm…they are too often good at discharging patients without solving the problem! They should refer on not discharge to find a solution. All about their targets but actually it’s a waste of resources.I joined a slimming club just to lose a half stone..never hungry on it but it teaches a balanced diet and unexpectedly I’m losing my weight but noticed a difference in some (not all ) gastro issues.

I’m not preaching as everyone is different but frustrating when we need help and do not get it.

Bits1961 profile image
Bits1961

Sorry I can't help as I am in the same boat as youBeing pushed from pillar to post nobody cares It seems I'm just wastin their time

So I self medicate with pain killers and Gaviscon and Buscopan

rustydog profile image
rustydog in reply toBits1961

I so feel your pain, I too feel as though they think I’m wasting their time but this thing is ruining my life, how can that be time wasting? 😩

Grish profile image
Grish

That's exactly where I stand with IBS and GERD they just keep writing out prescriptions for laxitives which I cannot take, also I'm on ppi the past 8 years which is not healthy I need to take lyrica for an old back injury and my appetite is very poor since they performed one of their endescopies some years ago I'm convinced the removed more than just a biopsy and since then my appetite is poor. I tried to tell them this but they don't listen!!

rustydog profile image
rustydog in reply toGrish

They don’t listen do they? They all have this God like complex and it feels like how dare you question me!

301246 profile image
301246

Rustydog, Full sympathy. I've tried all the pain killers including Oramorph and Fentanyl which just blew up my legs. Only drug my GP gives me is diazepam. I have been seeing private nutritionist for 2 years. Tried hundreds of pounds worth of supplements,no relief. Now she's doing Bioresonance and considering Elemental diet,extensive but worth a try. Will be hard as no solid food at all. Good luck with a solution .

rustydog profile image
rustydog in reply to301246

I totally get this. The amount of money I have thrown at this over the 23 years I could have had lovely holidays away or a wardrobe of designer clothes!

Bits1961 profile image
Bits1961 in reply torustydog

When you look at it this way(Which I hadn't before) It makes my blood boil when I realise just what I also have missed out on.I bet my doctor hasn't missed out on his holidays

😣

rustydog profile image
rustydog in reply toBits1961

You bet. Especially the private appointments I’ve paid £200 per appointment!

Confused01 profile image
Confused01 in reply to301246

Omg..this sound awful. I really hope things improve for you.

Mlitt0818 profile image
Mlitt0818

I have the very same issues. Seems like if I have an episode of acid reflux, it starts a cascade of inflammation that includes my lower digestive system. If I take things to stop diarrhea like symptoms, it leads to constipation and if I'm not very careful, hemorrhoids. More inflammation. I've been on PPI's for 20 plus years and find I cannot get along without them. To even start on a new healing plan is very difficult, but today I'm going to try and start over and see if I can get better. The doctors really don't know what to do. Even Gastros. We have to experiment on ourselves, unfortunately.

rustydog profile image
rustydog in reply toMlitt0818

It is a constant experiment, trying new things, some work, most don’t, it’s a very expensive condition to live with!

JulieB5200 profile image
JulieB5200

Hi,you sound to be in exactly the same condition as me!I have suffered with ibs for over 20 years and the past few years I have had stomach issues too 🙈. I was on omeprazole for the past 3 years or so which helped my stomach but not so sure my bowel.Anyway I had my 3rd endoscopy back in February due to the severe burning pain I get in my stomach/under left rib.The test came back clear so I decided to come off omeprazole.For a good few weeks I had massive over acid production as my body had become used to the pills.However this eventually settled and my stomach seemed to settle for a while.Having read about the effects of taking ppi’s long term I decided it was wise to get off them.My bowel is mostly constipated and I can have times of really bad pain n flare ups.Bloating/cramping ect.However dealing with all this upper pain as well is really tough.My consultant says my stomach pain is related to my constipation buts it’s a vicious circle!If I take ppi to help upper pain then it can cause constipation which is apparently causing the pain .Honestly I am so baffled as to the solution.Anyway having been off the omeprazole since Feb I have succumbed to taking esomeprazope tonight!The burning pain in my stomach has been so severe since yest I thought stuff it!I haven’t actually took these before but obviously they were prescribed along my journey of issues!Going back to my gp tomorrow to see if he can shed any light on my situation.So you definitely have my sympathy. I understand exactly how you feel.I am 51 and starting to wonder if hormones are anything to do with it all 🤔x

rustydog profile image
rustydog in reply toJulieB5200

Thank you, it’s just awful isn’t it? It’s bad enough dealing with one off area of the digestive system but when it feels like it’s all the way through it is draining. I am honestly coming to the conclusion that my hormones are making things so much worse. The next step will be trying to get my GP or the gastroenterologist, who I’m seeing in two weeks, to agree!

Mlitt0818 profile image
Mlitt0818 in reply torustydog

Just a thought. I’m well past menopause and not on hormones. Never was, really. My issues are still very much what they always were. Maybe worse. Don’t mean to be negative because everyone is different. But in my case I don’t think hormones affected my digestive issues much.

Vicwa profile image
Vicwa

Hi, this is me now. I notice the upper digestive stuff more at night when everything is quiet. It feels a bit indigestion like but also very gurgly when I lay flat. GP has said to try cutting things out of my diet then introduce one by one to learn my food triggers. Also has said to take omeprazole and gaviscon. Do either of these help you? I'm so fed up of it now

rustydog profile image
rustydog in reply toVicwa

Hi there. I find gaviscon helps a little but ppi’s give me headaches so I steer clear of them. I get the gurgling as soon as I lie down too, it drives me insane.

Vicwa profile image
Vicwa in reply torustydog

Thanks for your reply. I'm currently doing all the wrong things and freaking out 🙈I'm a little glad that others get the gurgling at night. This is when I feel most bloated too. The gurgling seems to ease when I pass wind lol sorry I know it's gross 🤢

MrsYellow profile image
MrsYellow

It's very difficult to get off PPI's. If you do try you must do it VERY slowly to give your stomach time to adjust and not have massive acid rebound. Most GP's will tell you just to cut your dose in half for a month then stop but even that is too quick I think. I was on 80mg omeprazole, I am now down to 20mg. I took 40mg in the morning then the evening dose I took 20mg and opened the other 20mg pill and took out 1/4 of the beads. I did this for 1 week if I had no rebound I then took out half the beads and so on. The key is going really slowly and listening to your body

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