SIBO: I am a coeliac with IBS and recently... - IBS Network

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SIBO

Edgar77 profile image
Edgar77

I am a coeliac with IBS and recently diagnosed with border line BAM. I had a phone call app with a gastroenterology. I wanted to be tested for SIBO as a lot of my symptoms point to it but it was a bad line and all she was Interested in was a dexer scan. I already know l have osteo arthritis and can't take alendronic acid anyway. Tha doc admitted it was a bad line but won't see me for a another year!!!

26 Replies

Have you been given a bile sequestrant for your BAM?

Edgar77 profile image
Edgar77 in reply to Maureen1958

No because it can cause ibsc which is the last thing I need. It is only border line . Diarrhea is the usual symptom but trust me to be different.

Maureen1958 profile image
Maureen1958 in reply to Edgar77

So why do you think you have SIBO. I'm not convinced personally that it exists. Please see link attached.

drchristianson.com/is-sibo-...

Maureen.

Edgar77 profile image
Edgar77 in reply to Maureen1958

Long story. Just before the first lock down and before I had heard of covid I had awful IBS flair up. Once Docs had ruled out cancer they lost interest. I can understand that. So in desperation I saw a private nutritionist. She arranged a stool test that showed abnormal levels of bacteria. The Doc refused to give anti bionics so she gave me herbal ones and I almost starved myself to starve the bacteria! I lost two stone in 6 months. I am back to a better diet under a dietician but still having problems. Within 1 hour of eating so much as a sandwich my small intestines go rock hard and I end up with painfull embarrassing wind. I am oh SO tired and weak all the time. Just want to get on with my life.

Maureen1958 profile image
Maureen1958 in reply to Edgar77

Well keep us informed of your progress. We can all learn from each other.

Pansy2 profile image
Pansy2 in reply to Edgar77

Hi Edgar that sounds exactly what I had couple years ago couldn’t eat anything as soon as I put food in my mouth I would balloon up and have the most awful gas lost lots weight had 2 weeks antibiotics off gp and it went x

Edgar77, these links may offer a means of addressing some of your concerns and provide a platform for better health. The first link begins with an unrecognized thiamine deficiency affecting the vagus nerve connecting the brain gut axis. Several high absorption forms of thiamine are Sulbutiamine, TTFD and Benfotiamine Magnesium is a required ingredient to activate thiamine so a magnesium deficiency may also be involved in vagus nerve underperformance. Search on "krispin magnesium" for information on forms and dose calculation. Boron increases magnesium absorption and may offer relief for osteoarthritis. Check that out. The last link concerns thiamine deficiency and celiac disease. Also it's is vital to study thiamine and brain function and the importance of thiamine that is efficient in passing through the blood/brain barrier. With this background you'll be able to understand BAM better. Although B1 has been the focus, the B vitamins work better together. Always consult your health care provider befose using any supplement.

eonutrition.co.uk/post/when...

eonutrition.co.uk/post/thia...

sarakahnnutrition.com/tips/...

celiac.com/blogs/entry/2731...

Orchid99 profile image
Orchid99 in reply to Pte82

Where can you get your thiamine tested privately?

Pte82 profile image
Pte82 in reply to Orchid99

Orchid99, try searching " thiamine testing in __________" insert your location in the blank. You can request a test through your physician. Research the test it's self so you'll better understand your test results.

My gastro said that true SIBO cases are rare. It has a distinct set of causes. Unless you have one of these causes, you are unlikely to have it. If you do have one of the causes and the causes isn't treated, then it will keep coming back. I can pm you the list if that would help? You could maybe run through the list with your GP and/or a get a re-referral about it.

Meleber profile image
Meleber in reply to xjrs

hi, could you pm me the list too?

xjrs profile image
xjrs in reply to Meleber

Done

Meleber profile image
Meleber in reply to xjrs

👍

Eivissa profile image
Eivissa in reply to xjrs

Hi, could you please pm me the list? Many thanks

xjrs profile image
xjrs in reply to Eivissa

Done

Orchid99 profile image
Orchid99 in reply to xjrs

Could I have the list too please?

xjrs profile image
xjrs in reply to Orchid99

Done

Edgar77 profile image
Edgar77 in reply to xjrs

Yes please

xjrs profile image
xjrs in reply to Edgar77

Done

Pm me the list as well please x

Done

Kazzacrazy profile image
Kazzacrazy in reply to xjrs

I don't want to be left out 🤣 can I have it to please? I'm back to see my gastro consultant friday god help him my list of questions is getting bigger by the day!

xjrs profile image
xjrs in reply to Kazzacrazy

Done

Kazzacrazy profile image
Kazzacrazy in reply to xjrs

Thank you

Hello I’ve been through all the hell of SIBO most people with ibs or symptoms should be tested for SIBO

xjrs - You will have to start charging for the list. It is very helpful, so just joking. b1😁

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