Fed up: I’ve just about given up .tired fighting... - IBS Network

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Fed up

Readmeastory profile image
14 Replies

I’ve just about given up .tired fighting this illness I’ve got constant pain and was told apart from pain killers nothing they can do . To cut a long story short I’ve got Diverticular and redundant bowel with scar tissue causing narrowing of the bowel . Doctors just look at all the scans and say I’ve to learn to live with it . So at start of the lockdown is when I got told .Fed up going to doctors and only getting phone call . But today I’m just had enough . My life is s—— or the lack of it Moan over and rant . I’m 66 and just had enough . Sorry ,

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Readmeastory
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14 Replies
Jackie1612 profile image
Jackie1612

So sorry to read about everything you have been going through since the first lockdown. Moaning and ranting is ok. It's really hard when the doctors don't seem able to do anything. Have you been offered any "alternative" therapies? I had acupuncture years ago to help with IBS pain, it did help but I had to pay and it wasn't cheap.

Sending a virtual hug to you.

Readmeastory profile image
Readmeastory in reply toJackie1612

Hi Jackie I’ve tried walking exercise and massage . But will look into acupuncture. I’m also deaf I lost my hearing through a illness before I had bowel trouble . And need someone with me at all appointments. But I can lip read but masks have put a end to that . So finding everything harder to cope . But can’t give up but it’s hard

Jackie1612 profile image
Jackie1612 in reply toReadmeastory

it is hard. Acupuncture used to be offered by some NHS trusts but I don't think so now. I hope we will be able to stop wearing masks soon

Bits1961 profile image
Bits1961

I relate to how frustrated you must be I'm in the same boat but thank god I'm 70 and don't have a long lifetime of pain to endure as some younger posters do. Imagine being 40 and told the same .☺️😑

Maureen1958 profile image
Maureen1958 in reply toBits1961

I have lived with it for 35 years and definitely getting a bit pissed off with it now, to say the least. I find it so much harder to deal with now I am older (63), it has definitely got worse over the years!

Bits1961 profile image
Bits1961 in reply toMaureen1958

Yes it does seem to get worse that or as we age we are less able to cope with it ?

Maureen1958 profile image
Maureen1958 in reply toBits1961

Yes, it could be that.

Readmeastory profile image
Readmeastory in reply toMaureen1958

I’ve only had it for 2years and just at the start of the virus and lockdown . But it’s got worse . But I’m just get fed up with the daily battle . 😟

Maureen1958 profile image
Maureen1958 in reply toReadmeastory

Mine seems to have got worse since Covid. I wondered if I had Covid when it all kicked off without knowing it. My husband thinks he might have had it because he had been with friends who had been abroad and then went down with it. He woke up in the middle of night feeling like he was having trouble breathing. He didn't wake me because he didn't want to worry me. Next morning he was fine but did find he was getting out of breath when going out for his bikes rides immediately after this. It took about 2/3 months before he got back to normal! So it makes me wonder if I might have had it with no symptoms and that is what is causing the worsening of my IBS!

Bowood profile image
Bowood

I fully understand how you feel and you have all my sympathy. I’m 75 and have had ibs for about 35 years. Over the years I’ve had various tests and tried many many different things but nothing has helped. Also I have arthritis and prediabetes. My husband has dementia and I’m his full time carer. We’ve shielded for the whole time since March last year. I’m struggling at the moment with it all.

Readmeastory profile image
Readmeastory in reply toBowood

Thanks for your reply I couldn’t answer before as I would just get to upset thinking about it and trying to cope . I’ve only had it 2years and at 66 so glad I never suffered for years I hope they find a cure for younger people . I still feel this illness is underestimated in how it can destroy your life. But we have to keep fighting .

Im sorry to hear ar how bad you are.Iv had ibs so much this year.colon spasm really painful

My dad had diverticulitis.he had operation and it helped.i recallbtheuly stretched his bowel.

Iv bad ibs this morning so i can understand how it makes you feel.

Have you tried amiptrutiine tabs.

Fodmap diet? Myrbental?

Some say peppermint oil helps but it didn't me.

Mebeverone help some but not much for me.

Dont give up i knew a 50nyr old man who's ibs stopped suddenly.

Im now t4ying natural non flavoured yogurt n brie .

My wife ill so i think my ibs bad this last week

Look after yourself.

Ps sometimes hot water bottle or a gentile walk helps me.

Kind regards

George

Readmeastory profile image
Readmeastory in reply tograhamrupertrules

Thanks George I’ve tried most things and do all you suggest . Apart from the medication . But will look into that . I’ve asked for a op to help but doctor and specialist both told me that I’ve got scar tissue that’s causing more problems if they remove it it will come back again . So I’ve had all the scans and tests and it came back twisted and redundant bowel with diverticulitis . Seen specialist and his words to me where I’ve got no magic wand to help you .you have to learn to live with it . That was the start of the first lockdown so I’ve been left to deal with it myself . I’m glad you have found something that helps . 😋

Readmeastory profile image
Readmeastory

Hopefully they will find something that will work for you or better still a cure 😁

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