Calprotectin 6000 FIT 65 with health anxiety

[40femaleFC6000FIT65]

Is calprotectin = 6000 more indicative of IBD or malignancy (the big C)? Also had FIT of 65.

[xjrs]

Raised calprotectin markers are just used as indicators to tell a doctor that more investigations are needed such as a colonoscopy. You can't diagnose from a calprotectin test alone. You can have raised calprotectin markers without it being anything sinister.

The best thing is to get the further investigations done and try to distract yourself with day to day tasks until you have your appointment/get your results through.

Good luck.

[40femaleFC6000FIT65 in reply to xjrs]

Thanks for your reply. GP has referred me to 2WW pathway and had triage appointment last week where they will plan for colonoscopy and CT (before FC results were returned) but hospital can’t tell when due to Covid backlog.

Booked myself a private gastroenterologist appt tomorrow and see what they say and this wait is too painful when you suffer from healtg anxiety.

Its pretty scary when positive threshold for FC is 200mg/g and my results is 6000! That’s 30 fold vs normal. When sample was taken 2 wks ago, I did have a sudden onset of diarrhea which is over and above the usual issues re changes in BM. I boiled the 2-3 days of acute D down to eating a foreign food known to generate huge amount of mucus so my sample was actually more mucus than poop (sorry for the detsils). I wonder whether this could have been a reason for such high FC results.

Can’t sleep and not felt hungry for a couple of weeks. Not seen significant weight loss but even if weight starts to drop off, its hard to tell whether its condition driven or due to this whole stress of being in the unknown.

[xjrs in reply to 40femaleFC6000FIT65]

Sorry to hear that you are going through the mill. It sounds if you are in safe hands with the necessary tests being requested. No harm in booking an early private gastro appointment. I did this myself and then got transferred to the NHS for the tests. It did take some persuading though. I needed to request NHS gastro through my GP and since the NHS wanted to book an appointment with another gastro (with waiting list), I explained to them that I'd already had the consultation and just needed the gastro I saw (who also worked for the NHS) to request the relevant tests for me and for me to be allocated back to the same gastro under the NHS for the results. I kept emailing the private/NHS gastro secretary to get things moving.

Hopefully due to the 2WW pathway you won't need to do any of this.

Good luck.

[40femaleFC6000FIT65 in reply to xjrs]

Hi there, I saw a private consultant yesterday (lucky I have healthcare covered thru work) and did blood test and sigmoidoscopy straight away which showed a small hemerroid.

Awaiting blood results and consultant also ordered gastroscopy, colonoscopy and CT - hopefully will get dates in the next day or two.

I too chose a consultant who also treats patients under NHS if I ever need to leave the private system for any reason.

How are you getting on?

[xjrs in reply to 40femaleFC6000FIT65]

I am doing much better thanks and can tolerate more foods with Alflorex probiotic and Linaclotide for IBS-C/visceral pain prescribed by the gastro - though food testing for me is going to take some time. Hopefully you are moving forward?