Ibs the severe bloating is changing my life to the extent I can’t work please help feel lost :(

[Georgia_Sellek]

Hey everyone so for the last two years now I’ve had symptoms of Ibs and every test done yet except the one down the throat to remove any medical issues and I have taken loads of medications but absolutely nothing helps the severe bloating. It all use to be manageable but the symptoms are just getting worse and worse to the point I can’t manage or go out with my friends or go to work even and it’s making me panic am I really going to be like this forever ? Someone help any advice please for someone suffering so so bad and am struggling

[siouxbee19]

First I want to say I am very sorry you are going through this, I've been dealing with it for over 20 years now and I am afraid I really don't have anything to help you other than please know you aren't alone and we are here for you!

I finally resigned myself to the fact that I wasn't going to get back to my old "normal", but I could accept my new "normal" and try to deal with it one day at a time. Fretting over the future doesn't help, it just stresses us further, making our GI problems worse. I KNOW that's easier said than done, believe me, but it's something we must work toward for our own sakes!

My bloating has gotten worse as time has passed, I've recently had all the tests I know to have for it, and they couldn't find anything to cause the excess bloating.

I do take OTC meds like Gaviscon or Gas-X occasionally, and also Tums as well. THose seem to help somewhat. I have also noticed certain foods seem to cause worse bloat than others (fresh veggies for me and dairy sometimes), but everyone is different and it's just kind of trial and error until you learn what affects you.

I have also tried many different diets, like FODMAP and SIBO, but none have helped me, but there again everyone is different so maybe those diet plans would work for you!

Please hang in there, try and take good care of yourself, and keep us updated!

[Georgia_Sellek in reply to siouxbee19]

Reading that message has really helped lift my spirits and realising that I’m not alone makes me feel some what better ! I guess I’m just going to have to get use to it and try my best to learn how to manage it. Thanks for the support I’ll keep you updated to see if symptoms get any better

[siouxbee19 in reply to Georgia_Sellek]

OK, well....after reading Stuart24 's reply, forget almost everything I wrote!

She is so eloquent and put it better than I ever could! I didn't mean there was no help, there are things you can do to improve your situation, but I was just speaking of my own personal experience, I've been seeking help from over 7 gastroenterologists & countless other doctors, and so many treatments , tests, special diets, etc...etc...over the past 20+ years I can't remember them all right now. It has proven to be irreversible for me, personally, but not saying the same will happen to you! I certainly was not trying to be glum or depressive, just sharing my reality. I must add that initially I was diagnosed with microscopic colitis, which is different than IBS, but years after, I was diagnosed with IBS. I am not sure they even know 100%.

Wishing you happiness & wellness...

[Philbs1980 in reply to siouxbee19]

Sorry to hear about your struggles. We are here to help. When did all this start? Can you link it to anything?

[siouxbee19 in reply to Philbs1980]

I've had gut problems for as long as I can remember, I tended to have frequent episodes of diarrhea growing up. I was diagnosed with spastic stomach or some such when I was a teenager (after being grilled if I was pregnant (I was highly insulted, the good Catholic girl I was!! HA!HA!), that I was too young to have any stress (home life was hell), blamed on anxiety, anything but real, valid gut problems.

Flash forward to about 25 years ago, my IBS-D/colitis/whatever started getting more frequent, 20 years ago I finally went to my first gastroenterologists and had all the scopes, X-Rays, GI work up and was diagnosed with microscopic/collagenous colitis. Over the years since, have been re-diagnosed with IBS, prescribed all kinds of medications that didn't work, have tried OTC treatments, different supplements, diets, on & on & on.

In 2003, my gastro problems (along with my heart condition and some other medical issues) caused me to have to stop working.

Since then, I go get a colonoscopy/EGD about every 2-5 years, have had pill cam, nuclear scan, tried SIBO and FODMAP and etc... diets again, watched this, stopped that, exercised, everything I know to do, my life has been consumed with trying to find a "cure" or even some relief, and I am back to the same situation.

I go back to the same gastro group in November that I've been seeing since 1999, I have no idea why, you'd think after 20+ years they'd figure something out.

There are two or three medications that help somewhat - I take OTC Imodium before trips to doctor's (about the only time I leave my home), it helps to be able to make it there and back home, 1 hour drive each way, very rural, not many bathroom stops along the way, if at all. I also have prescription Levsin that really helps with the painful spasms, and prescription Zofran I was prescribed for nausea helps with diarrhea.

Other than that, I've pretty much resigned myself to the fact this is as good as it gets and to deal with it as best I can. This, along with my other serious health issues sometimes get hard to deal with, but I think I do a pretty good job.

Sorry I hijacked your thread Georgia_Sellek , I know this wsn't about me.

Wishing you wellness...

[Shirley-peirson in reply to siouxbee19]

Hi try 2 peppermint oil capsules on a regular basis same time every morning see

If it helps you as it has me

Good luck

[Stuart24]

Hi Georgia,

I used to be bad for many years, but I do believe this is reversible. I have been researching, learning and experimenting for a long time now and developing the text that follows. My case is/was IBS-D, but I no longer consider myself to suffer from this.

Hello, this is my general response to help people repair and find a baseline of GI performance after addressing the factors that adversely interfere with it.

First, go to the doctors and get yourself checked for intestinal infections, and whatever other tests they want to do. Most people find they are all clear, and that IBS is a condition brought on by our modern diet, freely accessible food, sedentary lifestyles and is usually initially set off by a GI infection or other trauma to the GI tract, and is then maintained by several factors. Particularly for IBS-D (diarrhoea predominant), the gut becomes hypersensitive to certain triggers, and the official description is that a physical brain-gut dysfunction develops which causes the gut to over-react to mild stimuli. This leads to insufficient residence time of food in the small intestine, resulting in nutrient rich food arriving at the colon and causing inflammation, bacterial imbalance, gas, pain and worsening gut performance that tends to spiral out of control. Eating between meals causes your small intestine to become overgrown with bacteria which compete for your nutrition and cause gas and bloating. Be aware that with IBS you can still get new clinical GI infections, or have other underlying issues that are not connected to IBS, so you need to be vigilant for this, and if concerned then visit your doctor again.

The good news is that this situation is reversible, and you need to be positive that with the correct understanding and behaviours you can get your life back in control.

After 27 years of suffering with IBS I have found that the long-term solution that actually works for addressing IBS is about FOUR key topics: your vitamins, daily fasting periods, peristalsis control and toxic food additives.

You are effectively the manager of a “food nutrient extraction factory”, I know that sounds obvious, but I have found that IBS is not about medicines, but about changing the way you run the factory, and learning how to get the best performance out of it. Imagine a chaotic factory where the raw materials keep getting added half-way through a running reactor process, where someone is randomly messing with the speed dials of the processes, where the place is never cleaned, where you don’t have the right tools (vitamins and enzymes) to do the job properly, and the occasional spanner gets thrown in too. It’s not going to work well.

So after your doctor’s tests, if IBS is the diagnosis, then the first thing is to get familiar with the FODMAP diet, and be cutting out wheat and milk products at least, and replacing them with oats, gluten-free options and lactose free milk options, and understanding which fruit and vegetables you can eat. You can gradually work off this diet as your symptoms improve.

The next thing to sort out is your vitamins. An incident of food poisoning or GI infection can start you on a cycle that you need to make a really concerted effort to break out of. IBS causes vitamin deficiencies which are practically impossible to overcome in most people’s diets, especially if you’ve already adopted the FODMAP diet. But fundamentally, your vitamin levels affect the health of your intestines, and the health of your intestines affects your vitamin absorption and your production and effectiveness of your pancreatic digestive enzymes; it is a vicious circle that you have to break out of.

So, get some really good, multi-vitamins and take them without fail every day with your breakfast. Don’t use ones with high levels of Vitamin E on a daily basis, as in my case I found I was getting weakened skin on my hands resulting in ruptured finger blood vessels practically every day - so I keep this now well below 100% RDA (or NRV) and I’ve not had one for weeks so far. Get a blood test for Vitamin D and get you doctor to judge your supplement level required in IU’s to get you well healthy for Vitamin D. Do not get vitamins with high calcium and magnesium content initially as certainly in large doses these minerals can mess you up as they consume your stomach acid, and doses of magnesium will give you diarrhoea. You should get enough of these minerals from your diet. If you are on the low FODMAP diet, go for all lactose free dairy products can maintain your calcium, as unfortunately the diet tends to cut out almost all good sources of calcium.

Secondly, you should understand that your “food nutrition extraction factory” works on a batch-wise basis, and definitely not on a continuous process. So, you need to sort out your fasting periods immediately to give a clear break between batches, and the complete processing of each batch. This is normally overlooked by GP’s, but is an absolutely essential element for resolving IBS. Your small intestine should be practically sterile, and your stomach acid along with bowel cleaning contractions during fasting (called MMC) will usually do the cleaning. But, you need to fast for this to be effective, and by that I mean, ABSOLUTELY NO eating in between meals, ideally drinking only water. Imagine if you never washed your dinner plates and just kept putting food on them all the time!, they would be filthy and full of bacteria and this is what happens in your small intestine. This results in SIBO (Small Intestine Bacterial Overgrowth), which is apparently responsible for 85% of IBS cases, but is really only one of factors that you need to address. You need to give your small intestine plenty of time free of food for cleaning and maintaining the factory. The modern scenario of have cupboards full of rich foods permanently available day and night is a modern luxury outside of human evolution, and this is bad for you. Your stomach will sort itself out when you have got control of your small intestine (although if you've got gastritis you'll need to finish a course of omeprazole first), and then your large intestine will improve later as nutrients are more efficiently absorbed from your small intestine. Furthermore, you should be able to avoid future bouts of gastritis as during the fasting periods, your stomach becomes more neutral at nearly pH 4.

As a basic program, eat a good breakfast at say 7am (porridge with 50% almond milk or lactose free milk) or what suits you and then a good lunch at 12 o'clock – and absolutely no food in between. After lunch, no food at all for at least 5 hours, and eat well again for your evening meal because it has got to get you through the night. Ideally, no food after 7 pm, no supper or snacks, no food or milk at all until breakfast the next day. You will feel hunger in the fasting periods, but you will not starve, and this is doing you good!, You must NOT respond to the hunger - only with water or fruit tea. This is CRITICAL. Unless you are in a very healthy GI state, a mid-morning or afternoon snack interrupts your set meal digestion, causing acidity, SIBO, and driving premature advancement of food into your colon resulting in putrid fart gases mentioned later. Importantly, when you are feeling better, do not resort to your old ways, you are still recovering as you intestinal villi repair and become more efficient, and you need to make a life-style change to have this level of discipline in your eating and continue with it. It takes a few weeks at least, and you need to persevere with this. Failing on this will undermine all of your other good works. In a couple of weeks, you should be able to be getting off the low FODMAP diet, and begin working back the higher FODMAPs slowly into your diet. Some people recommend longer fasting periods, but for me the regular program above is sufficient without going extreme.

If your farts really stink like something died in your guts, then this is because partially undigested proteins are making it through to your large intestine and the amino acids lysine and arginine are being metabolized by bacteria into cadaverine and putrescine which are the compounds that give the smell to rotting flesh! – do not worry that you yourself are rotting, this is just temporary, but it shows that you really need to sort your digestion out. One reason for this can simply be that you have eaten more proteins than you can handle, if your gut peristalsis is too fast.

So, the third aspect of IBS is peristalsis control, also called gut motility. This is the speed at which your intestinal contractions drive food through your intestines. IBS-D can be characterized as having excessively fast gut motility or excessive peristalsis, while IBS-C is where the motility and peristalsis is too slow. If it’s too fast, then your digestive enzymes don’t have enough time to work on the food and for you to absorb the nutrients, and the food is driven prematurely into your colon which gives IBS-D. “Digestive enzyme” supplements are usually plant-based enzymes which work in a wider pH range than your own enzymes, and so can get to work on the food while it’s still in your stomach and also during transit through your small intestine, and so boosting the work of your own pancreatic enzymes, that are released by your pancreas into your small intestine. In this case, not only are you ensuring you have sufficient enzymes working on your food, but you are also gaining extra time for effective enzyme and food mixing and action. I would suggest trying some multi-component digestive enzyme supplements, and take these with at least two meals a day, particularly your heaviest meals. You want them to contain at least amylases, proteases, and lipases (for starches, proteins and fats respectively), but they can also contain other enzymes such as cellulase (for tough vegetables) and betaine HCl which helps with stomach acid production. Pancreatic enzyme production can decrease as you get older, but this is not usually a reason for your problems, as the pancreas usually produces a vast excess over what is required. If you are taking a omeprazole or another PPI (proton pump inhibitor to reduce stomach acidity), it may be a good idea to use enzymes at this time as your stomach acid digestion will be less effective; this will be compensated to some extent by the additional enzyme action. You want to be sure that undigested food does not get to your large intestine where the bad bacteria will go to town on it, causing bloating, inflammation and pain. Using enzymes for IBS-D can improve your nutrition and help you to break out of the IBS cycle, but for IBS-D you still need to slow down that gut peristalsis.

This is affected by several things:

Caffeine massively stimulates peristalsis of the intestines and so this is negative for IBS-D, but positive for IBS-C. Between meal snacking, spicy foods, black pepper, chilli peppers, sucralose, sorbitol, black tea, coffee (and de-caffeinated coffee!), peanuts, cashew nuts, almonds, black beans also stimulate peristalsis. The general advice given for IBS is to cut down on tea/coffee stimulants, no more than 3 cups a day is the NICE guidance, but this entirely depends on whether you have IBS-D, IBS-C or a mixture of both. If you have IBS-D, you must cut out tea and coffee altogether, and for IBS-C you could try drinking more! You can “tune” your gut peristalsis by how much tea or coffee you can tolerate in a day. A mug of coffee contains about 120 mg of caffeine, there is about 50 mg in black tea, and 30 mg in the same volume of coke. A Pro-Plus caffeine tablet only contains 50 mg of caffeine (equivalent to one cup of tea!), and if you were having 10 of these a day you would rightly be concerned! Caffeine is a drug with no nutritional value. The half-life for excretion of caffeine from your body is between 5 and 15 hours depending on your health. So, it can take about three days to remove it all from your body to know how you would really perform without it. For IBS-D, you must do this, and then try re-introducing it by one cup per day (starting with tea), and then do not exceed what you determine is the optimum for you. You may only tolerate one cup of tea per day, or none at all, as in my case. Acknowledging this powerful effect is very important, because even if your natural enzyme levels are good, and you also take enzyme supplements, if your gut peristalsis (motility) is too fast you will still drive undigested food to your colon causing all of the usual symptoms simply because these enzyme reactions take TIME. Be aware that, caffeine also “drives” anxiety, agitation and nervousness. If you are also suffering from stress, then tea and coffee is definitely not helping you. Caffeine is a drug substance, it’s just that as a society we’ve mistakenly chosen to ignore that important fact, and have adopted living with a certain caffeine fuelled life as being normal. Even de-caff coffee, contains other substances that trigger gut peristalsis, so with coffee you just cannot win.

Gut peristalsis is very sensitive to adrenalin. A friend of mine says that “adrenalin not used by your muscles goes to your guts” and there may be some truth to this. If you have a busy life, you are probably not coasting along on a bed of feathers, and you probably not aware of your almost constantly high adrenalin levels – that is until you start actively lowering them. Crucially, what does work, is hard exercise to burn up your adrenalin and stop it interfering with the nervous system of your guts. My advice is to do something every day, whatever you can manage in your busy life, it will all help. It will improve your gut motility, general health, bone strength, relieve tiredness, help you sleep better, improve your mental agility and help get your anxiety under control. To many people, exercise may seem like a waste of time, but it is equivalent to spending a bit of time sharpening an axe – of course it is not wasted time, but time very well spent in servicing your whole body and mind.

Closely related to this (and possibly more importantly is serotonin), which is a controlling hormone for your bowel, and is the target of low-dose anti-depressants used for IBS treatment that are used to raise your levels of it by inhibiting its destruction. TCA’s (tricyclic antidepressants) are used for IBS-D, and SSRI’s are used for IBS-C. It is important for your doctor to get this the right way round if you choose to try the medicine route. Exercise increases your serotonin levels, but there are also two other surprising ways to do this: 1.) increase your agreeableness (and avoid hostility), 2.) bright light, i.e. get outside in the daylight as much as possible and avoid dim lighting indoors.

The fourth aspect of IBS is that some food additives are quite simply toxic for you and cause direct irritation and inflammation of the colon, allergic reaction of the colon, or they are laxatives that give you diarrhoea that you didn’t realise you were eating.

1.) Try to seek out and eliminate “trans-fats”. These cause direct inflammation of the colon, and you will be more sensitive than most people and this confuses what is causing you trouble. Chips, hash browns, butter, doughnuts, popcorn and things cooked in cheap or old frying oil as you find in many restaurants and commercial products can give you colon pain directly through inflammation. It can take up to three or four days to recover from this inflammation, but trans-fats are bad for you in a miriad of ways (cardio-vascular and diabetes etc), not only by inflammation of the colon. A big problem here, is eating out at commercial outlets that do not change their cooking oil often enough. There is evidence that as cooking oil is re-used that the trans-fats (and other compounds) increase. So, if you want fried food as a treat, do it at home with new oil at a low temperature, and only use it once. Ideally, starches should only be boiled, rather than fried.

2.) E407, or “Carrageenan” – is a food additive derived from a red seaweed, which is only present in small quantities as a thickener, but even at low levels it has been shown to be “highly inflammatory to the digestive tract” and associated with IBS, colitis and other GI diseases. There is loads of literature and objections to this substance on the internet. It is present in commercial Crème Caramels, soft cheeses, and many other dairy and meat products. After weeks of good health, just one of these products can knock you out for 24 hours with colon bloating and pain. I have found this by trial and error several times. Food tests show that even the food grade carrageenan contains between 2 and 25% of the non-approved “degraded” carrageenan, which is colon damaging and carcinogenic. Some food agencies now prohibit this additive altogether, and it may be responsible for a lot of IBS cases. It might be found in chocolate milk, cottage cheese, cream, crème caramel, ice cream, almond milk, diary alternatives, such as vegan cheeses or non-dairy desserts, coconut milk, creamers, hemp milk, rice milk, soy milk, and particularly processed meat. It is used extensively in cheap meats and is even injected into beef joints – so always get organic or local butcher fresh good quality meat!). It may be labelled as E407 or Carrageenan, but if you’ve got IBS, you must consider it as highly toxic for you.

Carboxy methyl cellulose (CMC) which is more widely used in the food industry, and has similar toxicology in animal studies, giving inflammation of the colon. However, the jury is still out on CMC to its impact on humans, and personally I can tolerate this.

I’ll also mention here mono-sodium glutamate (MSG). Clinical trials and several scientific articles connect MSG with IBS, so given the option to avoid it you should avoid it.

Also, NICE advises against the use of Aloe Vera for IBS - although I would say for the hydration of skin burns the pure plant gel itself is miraculous, so I would recommend you get a tube of this for your medicine cabinet for minor burns.

3.) E338, E339, E340, E341, E450, E451 and E452, are phosphates, diphosphates or polyphosphates as different salts. Natural phosphates are essential for life, and your body is full of organically bound phosphates, however, free ionic phosphates have several problems. Firstly, they are laxatives and will give you diarrhoea (sodium phosphate was once used to prepare patients for colonoscopies!). Secondly, they are associated with cardiovascular disease and accelerated aging. Since the 1990’s we are now exposed to twice the amount of added phosphate in foods; this is bad. There are calls to have added phosphate labelled on products as a health warning. Particular culprits are mass produced sausages and processed ham and chicken slices (and other meats), some cheeses, and cola (both diet and normal). So, always buy ham “on the bone”, which usually has no phosphate added. Personally, all phosphate additives in commercially processed meats make me ill. Unfortunately, this along with the excess of fats, and added pepper means that sausages and sausage rolls are bad for you for multiple reasons, and I have resigned myself to having to quit them altogether.

4.) Aspartame and other sweeteners definitely have a negative role to play in IBS for many people. As with the other toxins above, your ability to cope with them varies on a spectrum. If you look at some of the work of K.J. Mielke, many of these additives can be allergens or “pseudoallergens” and with time you can develop a colonic reaction to them. The best sweetener for IBS is normal table sugar (sucrose), otherwise, it’s “Stevia” which is quite a new plant based sweetener and seems to be safe for IBS.

Other points...

There is a lot of support for L-glutamine to help with repair of your small-intestinal lining; this means buying 500g of the bodybuilder powder type and having a couple of tea-spoons of this a day - one before breakfast and one just before you go to bed, and you can have this in a light cordial drink. I don’t think this is a permanent requirement, but I think it may help you recover more quickly from long term issues.

Excessive burping which starts a couple of hours after eating can be due to excessive acid being neutralized by the sodium bicarbonate that is released by your pancreas, releasing more CO2 than you can cope with re-adsorbing. The simple remedy for this is to take a couple of ant-acid tablets, or Ranitidine.

Pro-biotics - there is evidence to show that they help to re-establish good bacteria following anti-biotic treatment. However, in long term use they become insignificant compared to I have had more success with pre-biotics, which are basically food for your large intestine good bacteria. These help to strengthen the lining of your colon, and further improve your resilience to potential trigger foods and inflammation, and deal with the remaining nutrients in your food. Again, I would only use these periodically for a few weeks to help you back to a good state which you can then manage with the other good behaviours. They can give a noticeable improvement in your GI comfort and performance, but don’t depend on them alone - it won’t last. You cannot get away with routinely having poorly digested food getting to your large intestine. These contain galacto-oligosaccharides, about 0.7 g per tablet. Your normal source of these are the galactans which are banned on the FODMAP diet (and also in normal bread). You need these to feed the good bacteria in your colon, not just add tiny quantities of them in pro-biotics. So there is a regular need to be eating SMALL quantities of bread, baked beans, kidney beans, chickpeas, or lentils etc., but don’t overdo it.

I should add that although I eat bread and milk now in moderation, I am still cautious about high FODMAP fruits and tend to avoid them. The FODMAP fruit list is complicated, but an easy way to remember it is like this: the "fleshy", juicy fruits are bad, i.e. (nectarines, peaches, apricots, pears, apples, plums, dates etc), but segmented fruits (oranges, mandarins etc.) and all berries are generally OK as you are not likely to eat lots of them. Best of all is bananas which you can eat loads of. Microwave three of them until they are mushy and put a couple of fried eggs and cheese on them is my favourite weekend breakfast! For efficient fructose adsorption, you need glucose to be present with it in a ratio of 1:1. No enzyme will help you with fructose adsorption from fruits with excess fructose compared its glucose, but what can help is trying to balance the fructose with an excessive glucose fruit like banana. Bananas, figs, kiwis and pineapples have an excess of glucose over fructose, and so you can balance fruits with excess fructose. If you try using pure glucose powder, this will not travel slowly in your guts and you’ll still be left with excess fructose later on, so it is better to use bananas for the slow release of glucose to accompany the fructose. So you can experiment with this by making yourself a fruit salad mainly composed of bananas, and small amounts of other fruits. However, beware, that the problem with “fleshy” fruits (e.g. nectarines) is not only in fructose ratio, but also the polyols that they contain, which can still make you ill!

I should also mention hormone changes in women can be connected with IBS, affecting serotonin and the brain-gut nervous system, but being male I have no personal experience in this! Similarly, hypnosis is actually recommended by NICE as the best alternative therapy, again trying to get a grip on the nervous dysfunction. I have tried this, but for me it was just about being very relaxed with your eyes shut for half an hour, and not spoiling the fun for everybody by pretending you actually are “hypnotized”! Unfortunately, I was £75 worse off for the privilege. However, like other psychotherapies it concentrates on repeatedly putting lots of positive thoughts in your mind, boosting your self-confidence and giving strategies for dealing with negativity, so I’d say it is a good complement for your psychology and anxiety, although it will not address fundamental organic issues like SIBO. But, as an example of your sub-conscious on your guts, try taking yourself off camping for a few days in a “proper” tent. The change of living environment will slow down your gut motility into emergency mode as your mind tells your body to get everything it can from the food you eat in case you don’t have any in the future. Camping also removes you from your usual daily anxieties, gives you more serotonin, and gets you more active.

Dealing with Flare-ups

First thing is, fix your SIBO as described above. If you still have SIBO symptoms, oregano oil capsules are very good, it is bactericidal, anti-inflammatory and can help with acute SIBO problems. It is not “gassy” as you may find with peppermint oil. Take some digestive enzymes, to ensure your digestion is complete. Fixing your SIBO has got to be your priority.

If you are on top of your SIBO, then a bowel toxin might hit you 5 to 8 hours after a meal as the food gets to your large intestine. The first line of attack in this case is ibuprofen which is far more effective than paracetamol for bowel pain, and I find that 200 mg alone is enough. Second, a couple of 10 mg Buscopan will stop the cramps. If you have IBS, always have available advance some linseed (the seeds) and natural aniseed (Star Anise), and when you are bad make the following tea: in a saucepan, add 1/2 teaspoon of linseed, ½ to 1 anise star, 1 teaspoon of sugar, a squirt of lemon juice (bottled is fine), and one full mug of water. Boil to simmer, with stirring, for 3 to 5 minutes, then sieve off the hot liquid back into the mug. This is a very effective remedy that I have used countless times, and it really does help. The reason that it helps (anecdotally) is that the “gooey” linseed extract coats the intestinal lining. There may be some truth to this, as some propose that the mechanism of intestinal inflammation is a chemical attack on the mucus lining of the intestine which then allows food particles be exposed to the more delicate tissues underneath, causing inflammation. The linseed goo would provide a temporary replacement to the mucus lining, preventing further inflammation. In fact, NICE recommends oats and linseeds for daily consumption for IBS patients.

A few of my most appreciated references…

“Treatment and Management of SIBO — Taking a Dietary Approach Can Control Intestinal Fermentation and Inflammation, by Aglaée Jacob, MS, RD; Today’s Dietitian; December 2012, Vol. 14 No. 12 P. 16”.

badgut.org/information-cent...

guidelines.co.uk/gastrointe...

“10% Human” by Allanna Collen.

[Farah44 in reply to Stuart24]

Wow! Thank you so much for your advice! Its almost everything simeone someone with IBS needs to know! I wish i came across your message! What i learnt through lots of pain and tear and research , you have included in here and much more. Just one question, is digestive enzyme good for IBS C? I hope others with IBS can find your advice here and improve the quality of their lives.

[Stuart24 in reply to Farah44]

Thanks Farah, IBS-C is my weakest subject, because it is not something i have ever had to deal with personally. Theoretically, the opposite of D should apply in terms of gut motility, i.e. you need to accelerate it, however the bowel inflammatory triggers should be the same for everyone. For IBS-C I think you want to eat less insoluble fibre, as this will bulk up stools even more. My daughter does get C and we give her syrup of figs. This works well but its a 24 hour delay, so it's good for the next day. It occurs in episodes and so is not for every day. We also get her to drink lots of water which also helps. I don't think enzymes will help because you already have enough residence time for your pancreatic enzymes to do all they need. Exercise also helps more with C.

What i need to understand more about is bacterial stability, i think the key to this is steady feeding of the bacteria, and acheiving the right balance, not overfeeding nor under-feeding them. It's like keeping fish! You want to maintain a healthy population, you shouldn't have to keep adding more with pro-biotics. I believe Bimuno does this for you, and is good to get you started for a month, then try to continue with moderate amounts of beans and bread.

[Mutleyforever in reply to Stuart24]

Fantastic post! Thanks so much for all your info and painstaking research!

[Bobb1e in reply to Stuart24]

Thank you for the wide range of information and advice . I’m def going to try the linseed tea.

As someone who had had ibs-m for a number of years, I can concur with some of those that have helped me ie; no caffeine (I drink herbal tea & a occ a coffee alternative (Whole Earth), no dairy (allergy issues), no chilli (have to regularly read menus/labels) & recently (for me ) be careful of coconut .

The point about Carrageenan was very interesting as I’d recently used a d/f soya yogurt in a homemade kedgeree & got triggered really badly with painful bloating & colic. I had been confused as to what could have sparked off the episode as all the other ingredients seemed fine . One to watch for in future. So thanks again for that info.

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Please don't feel you're alone.

[denvajade]

Do you get the bloating about 30 minutes after eating, try going off all dairy and carbs for 2 weeks eating only protein foods lactose free cheese meat, a protein powder made from hemp or peas. Look up Dysbiosis and see if you think you may have this. Wishing you well.

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[randy1963]

Hi. You are not alone. Others have had and survived the pain and the fear. You can too.

IBS is a positive feedback loop--meaning the fear breeds more fear. Pain breeds more pain. We need to find our ways to turn down the fight or flight response that keeps accelerating.

When we get "nervous" we produce stomach acid--and dump lots of liver chemicals into our digestive system--and we get gas, wind, etc. Gas=pain. We then change our diet hoping for relief and bam, we get diverticulosis or some other infection--and again we ratchet up the feedback loop. Only sleep feels like it is respite. And even that can go haywire.

Your fear is almost certainly about cancer--if you are young it may be about inappropriate gas or diarrhea at inopportune times. We have all had it... the fear, the embarrassment... and the sense that you cannot perform--at work, at sex, at a date... at school... and boom.... feedback loop.

You are probably not dying. Factually, if you don't smoke or drink, and you are not over bmi - 30, and you don't eat loads of processed meats like salami, ham, sausage, bacon, etc., your chances of getting colon cancer before sixty are on the order of 1 in 100. Thus, 99 versions of you are not impacted by cancer... and if a doctor told you that you have cancer and your chances of survival are 99%, you would feel great.

Bad things do happen. And we fear them. It is part of it. We need to get to a place where we can say... OK, I can take this. I can take any outcome. I just don't want to be made anxious every minute of my life. For me, that means fewer medical tests. For others, it means more medical tests. Find your path. You have to manage your anxiety first, otherwise life isn't worth living--and it is worth living--even when we're poor, afraid, cheated, broken and lied to. Find your joy. Maximize it. Hang in there. It is hard. You are probably tough enough. And you are not alone.