Getting worse: Still suffering terribly with... - IBS Network

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Getting worse

Emsky profile image
9 Replies

Still suffering terribly with chronic diarrhoea, I keep being told it's due to my ibs but I've had it for 6 years and just don't understand how I can all of a sudden be like this, I now have urge incontinence both urine and fecal, my work told me to never come back, so having no job is really making me struggle financially, I'm finding leaving the house very difficult as I'm now in incontinence pads but the thought of walking around in my own soil makes me feel horrible but at the same time I know if I have an accident at least it won't make such a mess, I'm just really struggling right now and doctor doesn't take me seriously and a lot of my family don't either, my dad is having to get a biopsy for suspected cancer so I just feel like there's nothing else that can possibly go wrong in my life right now :( I wish I was just back to the way I was, not going to the toilet for a week then having a day or two of needing to use the toilet a few times a day, but it's just ridiculous now, I'm always dreaming about the toilet now as well so I'm literally never away from it, just know if I was a cat or a dog I would get put down I don't understand why Im made to suffer

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Emsky
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9 Replies
sweetsusie profile image
sweetsusie

Have your doctor prescribe you one of these three drugs: Welchol, Colestipol and/or Questran. Any of these will stop chronic diarrhea in it's ugly tracks! FOR GOOD! I take 4 a day (2 in the morning and 2 in the evening) of Colestipol. Don't give up if your doctor says no...just keep hammering at him to prescribe any of these for you!

Emsky profile image
Emsky in reply tosweetsusie

Nope they haven't, I feel like they don't believe me when I tell them how bad it is, the codiene phosphate was working but had to come off them due to the side effects so I just worry that when I come off any meds I get given that I'll go back to this :( just from experience

sweetsusie profile image
sweetsusie in reply toEmsky

Don't give up! I was housebound for YEARs due to this "crap!" I now have my life back....

Emsky profile image
Emsky in reply tosweetsusie

I'm basically housebound too would be nice to have my life back too

Maureen1958 profile image
Maureen1958

Hi, is the diarrhoea watery, how many times a day are you going? Have you looked into Bile Acid Malabsorption. You mentioned you used to have constipation, could this be overflow diarrhoea? Also could worrying about your Dad be causing this change?

Emsky profile image
Emsky in reply toMaureen1958

No I've had ibs for 6 years, the diarrhoea started when I went on doxycycline in April so I stopped taking it as I thought it was the tablets causing it but it's still there, it's no watery, it's more like just very loose, it started before I found out about my dad as well, I keep being told it's psychological but it's my bowels that are the issue and then that makes me worry not the other way about :(

Emsky profile image
Emsky in reply toMaureen1958

Also I can go up to 14 times a day :(

Maureen1958 profile image
Maureen1958 in reply toEmsky

If you are going that many times in a day, look up Bile Acid Malabsorption and see if anything resonates with you!

Emsky profile image
Emsky in reply toMaureen1958

Some of it I can relate to but I do think I must have something underlying that's causing it :( since it just came on so suddenly

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