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Have a hydrogen breath test

Hello all, I just wanted to give you some information as it may be helpful. I have been lucky enough to see a Gastro consultant at my local hospital (GP referral). I have had every test there is I think in the past few months!! One that I actually requested was the hydrogen breath test for SIBO (Google it). The symptoms of SIBO are almost the same as IBS and as I typically need to go to the loo around 10 times a day - I wondered if this was more than IBS.

So, the consultant referred me for the test. It takes 4 hours and you literally sit in a room (I was alone) and see a medical person every 20 mins who brings you a bag to breathe into. The sample is recorded and they measure changes in your hydrogen levels. They expect to see a change if you have SIBO. You are given a special drink at the start of the session (which looks like water and has no real flavour). It is the reaction of the ingredients of the drink with your body (and then breath) that they are measuring.

Mine showed signs of SIBO - but it too nearly 2 hours to show up. Interestingly, at the same time as the levels changed, my tummy got worse and I needed the loo!!! They have recommended a course of antibiotics to flush it out. I haven’t started this yet.

I just wanted to share this with you as I wish I had had a test sooner!! It is nice to be able to say it is more than just “IBS”.

Good luck. x

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I really hope this works out for you but in Prof Peter Whorwell`s book "Take control of your IBS" he does say that at the moment there are concerns about this test. Antibiotics can improve things but often it is not permanent and then are are worries about giving antibiotics long-term. He thinks that problems with gut motility cause the SIBO and if the motility does not improve the SIBO is likely to recurr

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Thank you :-) Yes, it will involve diet changes too; which is fine.

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Though there's some other odd things in his books like the claim that IBS gets better with age (currently being discussed on another thread in this forum) so I definitely wouldn't take his book as gospel :^)

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What antibiotics did they give you

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They haven’t given me any yet. They will; its just logistics as I am under the care on a consultant so my GP can’t (won’t) help. I want Rifaximin but they won’t prescribe that (shame because it is supposed to be the best). I have requested (following research and info from the breath test team); Neomycin or Ciprofloxacin. Fingers crossed.

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Many thanks, I'm currently in the middle of being diagnosed

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Also what herbal antibiotics did they recommend I have heard that oregano oil and grapefruit extract a very good.

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I've also wondered if I have sibo as I also use the loo multiple times every day. I asked my doctor about it and she seemed quite dismissive, and said they don't refer people for the test. 🙁 I was really disappointed.

Please let us know how you get on and what the diet involves.

Best of luck

X

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Hello - can you get a referral to a gastro consultant? That was the only way I could then get referred for the test. I think it depends what your GP is like. I have a fairly new GP who was very supportive and was more than happy to refer me to a “specialist” x

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My experience is — we have to “drive” this ourselves. Health professionals don’t view this as something serious and so it isn’t a priority for them :-( Its all about the GP. Maybe you could see a different one at your practice? They may have a different attitude/approach x

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I would love to have the sibo test just so I'd 'know' if it was that and I could treat it appropriately. One good thing my gp has done for me though is refer me to prof whorwell's clinic next month so fingers crossed I will get some joy there. Maybe they could get me referred for the test?

X

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Yes hopefully. I had to ask my consultant to refer me for it!!! Just push for it :-) xx

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I had my SIBO treated twice with antibiotics and got fed up and went to a well known herbalist and with diet and herbal medicine the SIBO went.

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Oooh really? Which antibiotics did you have? This could be really helpful..... which herbal medicine? x

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Love to know the same as well

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Hello did u notice a sudden pimples that lasts for 20 to 30 mins and then left with a tiny small white bump? .. i think this is a symptom of SIBO!

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No that didn’t happen - only tummy symptoms!

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Hello 👋🏼 just wanted to knw the price of this test? In dollers? Is it expensive to do?

Thanks

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Hello. I wouldn’t know the cost in dollars I’m afraid as I had it done in the UK through the NHS. If you are in America you are lucky in one sense because you should be able to access the antibiotic rifaximin - which is what I want but can’t get in the UK. It is apparently the best antibiotic for SIBO (according to Google).

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Okay thank u so much

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I had rifaximin here in UK, though on a private prescription. As for herbal medicine, everyone is different, and I went to a well known, and expensive, herbalist who was marvellous and got rid of my SIBO.

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Can you PM me who the herbalist was? Oh really? You got rifaximin? I so want to know how to get that.....!

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Deborah Grant - Harley Street

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Thanks!! And that was better than rifaximin? Wow x

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ANYTHING is better than antibiotics!

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