Newbie: Hi folks, I’ve had lupus 11yrs... - IBS Network

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6 Replies

Hi folks,

I’ve had lupus 11yrs, Fibromyalgia 6yrs & IBS off/on pretty much since my teens (now 46). I was able to manage it with Colpermin & a probiotic so it didn’t affect my life too much. Then in February this year I started having daily lower stomach cramps, back pain & going to the toilet 6 times a day. It’s not diarrhoea though. Sometimes after I eat the pain is on the left side midway down & occasionally I’m sick. There’s no blood in my stools & ive not lost weight. It hasn’t let up at all.

I’m due to have both a gastroscopy & colonoscopy on Wednesday as doc thinks I may have diverticulitis or the beginnings of. I’m also menopausal & have read that your bowel habits can change dramatically due to lack of hormones. Or it could be the lupus causing inflammation in my gut/intestines. I have a good diet & the FODMAP didn’t make any difference to me.

Any help or advice would be very much appreciated. Thanks

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6 Replies
denvajade profile image
denvajade

Please ask your doctor to check u for Dysbiosis.

in reply to denvajade

Thanks, I did ask my GP but he felt it was unlikely. I will ask the consultant on Wednesday.

Ibs17 profile image
Ibs17

Good luck on Weds, I had similar symptoms and a CT scan did diagnose diverticulitis, they didn’t do a colonoscopy as it was flaring and infected . I hope they can give you advice as I have had none, just go back to GP if I keep getting symptoms.

in reply to Ibs17

Thanks, I’m desperate for answers but nervous too. My consultant has been great so far.

Ibs17 profile image
Ibs17 in reply to

Hope you got on ok, have they checked your gallbladder as since I replied I had results from CT scan and I have gallstones. I looked this up on NHS and the symptoms are those I have been suffering for most of my life.

in reply to Ibs17

Yes that was one of the first things they checked. I had an ultrasound of my Gallbladder and spleen. Plus I don’t have any pain or discomfort on the right side, it’s all in the left where they found the Diverticulitis.

What’s the next steps for you?

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