Just looking for suggestions or a different ea... - IBS Network

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Just looking for suggestions or a different ear to bend :

Davey6101 profile image
3 Replies

Don't really know where to start .... Multiple things going on

Did the Barium upper GI Swallow and turned this up after three trips to different Emergency rooms . Thought Heart attack once, Appendicitis the next .

No Cardio issues found so very grateful for that after the usual follow ups

Ive been diagnosed with IBS / GERD, a Hiatal Hernia and lucky me ... an esophageal thing called a Schatzki Ring . [ In process of scheduling the EGD with the GI folks to get it dilated ]

Eating is a nightmare, I am intolerant to Dairy, Gluten [ being checked again for Celiacs] , and all legumes [ soy anything, beans, peas etc] .and No Nightshades. I have lost 30 lbs since January, and am currently hovering ~ 155 ish but had cut out most processed sugar , so some of the weight loss can be attributed to that

With the Schatzki ring swallowing is intermittently either ok or ridiculously difficult so I have been as of late blending fruit, nuts, berries , juice and some kind of greens [ spinach etc ] for some kind of nutritional value as well as drinking bone broth , water and using the Natural Calm w/ Calcium stuff to balance my electrolytes .

The usuals are out , Chocolate, Fatty foods, any kind of carbonated beverage ... NO CAFFEINE at all

Breathing after I've eaten something is sometimes , well don't want to say difficult, but it definitely isn't normal .. Kind of feels like I can't catch my breath , but then it clears after whatever is apparently stuck in my neck clears the SR and goes into the stomach .

Wondering is you all had any suggestions for high calorie [ not junk] food that is somewhat palatable and easy to swallow ?

I don't know from day to day whether the GERD/ IBS will be active enough that I have to stay in Sweatpants/ Track pants or if I can actually get dressed and feel human [ lol]

Fortunately I am blessed that I can telecommute from home, so the only major anxiety is when I absolutely have to travel somewhere to a office or a client meeting

Its becoming frustrating , and frankly is taking a toll on everything

Any thought would certainly be appreciated

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Davey6101 profile image
Davey6101
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3 Replies
Ibs17 profile image
Ibs17

Hi so sorry you feel so low, this is a rubbish disease and there are no quick answers. I have had several flares lately and eating is getting a nightmare.

Davey6101 profile image
Davey6101 in reply to Ibs17

Thanks for the kind words

Not everyday is a bad feeling , there is a brief respite once and again that I can pul it together for the next instance [preaching to the choir ... sorry]

It helps knowing someone else can understand, because everyone just says wow you lost some weight ...you look good ..

Not actually helpful , but what else are they going to say lol

Phil865 profile image
Phil865

I have been dealing with this ring for many years. Have had it dilated three times. That was great the first two times. Being able to just eat drink and swallow again was incredible. It only lasted a year or two though. And the third time was a disaster. Seemed to have made it worse. I will do it again though. But with a different doctor.

Everything I've read about it has been informative but useless. The latest is that the medical and pharmaceutical industries have no intention of trying to find the cause or a cure, because so few people have it. 😠😡

Good luck to you.

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