Have to share this with you fellow sufferers diagnosed with IBS or similar digestive/autoimmune conditions because of how stupid the medical advice sounds.
So after nearly 2 years of ongoing battle and still suffering with excruciating pain and all sort of other symptoms, to the point where it's now also severely affecting my work (was signed off sick recently), and my employer has now referred me to a health firm that specialises in Occupational Therapy , I decided to have a follow-up consultation with my GP.
I mentioned that I would like to be referred to a pain management clinic (given that all remedial action tested until now had no impact whatsoever in helping manage my pain and other symptoms). Despite me justifying my case with valid statements (i.e. what advantages I saw coming out of the referral, what my objectives where,etc) - I had obviously done my research prior to the visit - and insisting, the answer was a definite "NO". Unfortunately I still suspect I have been misdiagnosed, because although I know IBS is a very individual condition and no 2 patients are the same, I honestly can't work out where this terrible pain is coming from (yes, I have gone through the route of talking therapy, CBT, meditation, etc and that hasn't worked at all for this matter). His reasoning was that in these type of centres they only treat chronic pain to what I replied with "so you think that nearly 2 years of constant excruciating pain to the point that it cripples me (affecting all aspects of my life severely) is not "chronic enough"?
But there's more! here's the absolute stunner that was given to me by way of a professional medical answer: " I think what we need to try now is to work on the "cause" of your issue rather than trying to tackle/solve your symptoms".... LOL duh! wow and it took him 2 years to reach that conclusion blimey! he must have exhausted his brain cells in the process. And what do you think I've been trying to achieve during all this time??
It honestly makes you want to give up, luckily I somehow find an inkling of strength within me to not throw in the towel. And so now I am being referred to a gynaecologist instead, with a hint that it could possibly be endometriosis. To say that I left the medical practice confused & bedazzled is putting it lightly.
Apparently the only way to figure out if I have or haven't got this illness is by carrying out a laparoscopy. So imagine getting yourself cut open only to find out it's not that either?!!! There are simply no guarantees whatsoever.
I would be grateful for anyone's comments or feedback on this subject if they have had to go through a similar experience.
Thanking you in advance!