So frustrated I have had severe ibs now for two years and am constantly off sick from work! I have had ibs for 14 years but it has gone out of control. I'm on injections for sickness, oramorph and Tapentadol for pain and can't eat and have lost 2 stone in weight and constantly run down with cold sores and infections. My social life is suffering and so is my work, I have a meeting on Monday at work to see if ill be finished on ill health! I really don't know what to do! Keep having arguments with my mum as I'm at home with her most of the day and she's frustrated as she doesn't know what to do to help me. I'm under a number of consultants and have a supportive gp but it's just constantly a waiting game for help and getting very down and frustrated and just wants answers or help to have a bit of quality of life back! Is anyone else feeling this way?

Sorry for rant


5 Replies

  • Hi Sarah I'm sorry to here this iv has ibs 25 yrs & last year was diagnosed with fibromyalgia iv just had a mri scan on my head & spine revealing oestioarthritis & MS my memory is shocking & losing feeling in my hands ..... Have you tried the fodmap diet I did it last year and seem to find the trigger foods feel much better try and have tests for coeliac i don't have dairy it makes me sick but don't give in keep pushing your gp & don't get stressed that sets it off good luck 😃

  • Hi willgina

    Thank you so much for your reply. So sorry to hear of your recent diagnosis, must be upsetting for you. I also have been diagnosed with fibromyalgia two years ago and have hashimotos disease, you seem to find that many people with ibs also have fibromyalgia. I have tried the fodmap diet thanks but found no relief unfortunately. Has this been successful for you? I'm trying to find someone who will do a recent coeliac test but all say you've probably already had one. I am lactose intolerant, I've had the test for that, so follow a special diet for that. I'm hardly eating anything due to Pain and being sick. Thank you for your support and I hope that you manage to get help with your illnesses also xx

  • Hi Sara, You sound like me, can't get answers for nothing. I've had chronic IBS for some years now, and I can tell you I've been through all there is to go through, including the Fodmap diet which didn't work for me plus it's so restricting. So I tride the other way round just eliminating foods for two weeks at a time to see if I could find my triggers,but no still no luck. I am now waiting for appointments for Hypnotherapy, to give that a try. I was going to have self injections of Buscopan ,but due to aHeart problem I can't have that. You talk about frustration it's no wonder we've got IBS. The frustration I've had with GPReceptionists, consultant secretarys and Gps is unbelieveable. To get me an appointment to see a GP this morning was over two weeks so my husband said " she'll be dead by then " and I got one today. And as we know stress is the worst thing we can have. I really do empathise with you, where you and your mom are arguing ,it's the same with me and my husband, but that's because they don't understand and they can't be useful and help us, so try and be a bit more patient with her. I wish I could be more help but I haven't found anything to help myself yet, but I live in hope. Just try not to stress to much I know that's hard. Take care and here's a BIG HUG .

  • Poke root will get rid of the sores and an alkali diet for 5 weeks will help greatly with ibs

  • Hi I can understand what you are going through. I have been off work with ibs for 3 wks now. Got a meeting at work this week and I could be facing the sack. Hope your mtg goes ok. I have lost weight and eat what I can and am also keeping a diary to see what is triggering my daily pain and going to the loo.

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