I suffer chronic pain every day: I am trying to... - IBS Network

IBS Network

48,836 members16,114 posts

I suffer chronic pain every day

19 Replies

I am trying to find out if probiotics help.I have been told by my dietician to try VSL3# can anyone tell me if you have tried it and did it do any good ?I've got to try something as I think the health service is beginning to give up on me .Anyone got any suggestions I would be grateful for .

Read more about...
19 Replies
Queeny54 profile image
Queeny54

Hi

I tried vsl3 for a month and found it a huge help. The persistent tummy ache went almost immediately. On advise I took half a sachet a day. There is some evidence that a full dose can be too strong. This probiotic is one of the products recommended by Prof Hunter who is a specialist at Addenbrookes Hosp. I now take bio kult every day which seems to suit me now that I am symptom free.

dipsy14 profile image
dipsy14 in reply toQueeny54

Where do you get VSL3? Is that its full name? Thanks

Queeny54 profile image
Queeny54 in reply todipsy14

I ordered it through amazon

dipsy14 profile image
dipsy14 in reply toQueeny54

Thank you - I am considering giving this a go!

in reply todipsy14

By all accounts you do get it off Amazon the real name is VSL3# .My doctor told me to show him the leaflet as I'm on a lot of meds at the moment especially for rheumatoid Athritis and it could play around with my immune system,so really back to square one.

dipsy14 profile image
dipsy14 in reply to

Thanks for the extra information. Mmm I have a problem with my immune system, I think I will have to read up about it.

in reply todipsy14

Do be careful Dipsy check with your GP.

Siapa profile image
Siapa

if you get bloated and gassy in stomach, ask dietitian from nhs for list for iriitable bowel symdrome? we got a list and only found broccolii and bake beans to be in our diet, once cut that out, pain stop from 24/7 to half. we went to a specialist gastroenterologist in Surrey. he is brilliant, did a sugar test and prove positive. been fine ever ysince. not all specialist realise that food have EVERYTHING to do with these bloated gassy intestine problems

polly2000 profile image
polly2000 in reply toSiapa

Did you get appointment on NHS as I've been told nothing in area and GPs no longer allowed to make out of area referrals so just have to suffer or else NHS will offer me a colostomy!

in reply topolly2000

Hi Polly I live in cannock Staffs and my NHS Gastrolergist refered me to a Proffessor of Gastrolergy in Nottingham on the NHS. I think you have to be a little more insistent nowerdays or you'll never get anywhere .I wouldn't be here today if it hadn't been for my son insisting on me going on a life support machine.( nothing to do with IBS just making a point. Good Luck Pollyx

polly2000 profile image
polly2000 in reply to

Thanks for your reply - am going through process - my gp is supportive but trying to get permission - I do see someone privately who is fantastic and know what I should be doing diet wise and supplement wise but keeping to is hard and then again need to try and go NHS route due to costs. thanks again

Siapa profile image
Siapa in reply topolly2000

Dont think that sound right. Nobody should suffer. If the gp cant sort out your health issue, it means they have no expertise. Therefore surely youmust be entitle to be referred to a specialist even tho its out of your area. I live in southwest n were referred to surrey due to their expertise. Not all specialist know everything. The first one I went to had no cluethat food can caused so much grief except to prescribed medication which some had help but others caused more grief. Google to find the one you think best

woodgut8 profile image
woodgut8

The deviser of the original FODMAP diet (Sue Shepherd - Australian) states probiotics except maybe to take after a course of antibiotics are a waste of time and will just empty your purse! At c£12 a time and made me more constipated am inclined to agree with her.

in reply towoodgut8

My Gastrolergist told me the same probiotics are a waste of money,but then the Dietician he sent me to recommended VSL3# .Once again conflicting opinions,you just don't no who's advice to take.Back to square one.Where on earth do you get some real HELP for this dam IBS.Rant over so frustrated

woodgut8 profile image
woodgut8 in reply to

My gastro recommended me to take probio so mayb they dont know. Would b interested to know how VSL3 operates before trying it.

in reply towoodgut8

Look it up on Yahoo Woodgut and ask your GP about it.

Notjoken profile image
Notjoken in reply towoodgut8

I agree woodgut8

I am the mist ill I ever been in my whole life from taking probiotic in recommendation

of a pharmacist...

Currently on day 6 fodmaps

in reply toNotjoken

Hi notjoken what probiotic was you on ,and how has it caused you a problem?

By the way thank you for your replys hope you ALL have better luck than me xx

Not what you're looking for?

You may also like...

Extreme chronic pain

Hi All, I've been on here quite a lot ,but not lately. Just a bit about me,because it would take...

Same pain every day

Has anyone else out there had ibs, or that's what they say it is, every day in the same place,...
Calamity64 profile image

Vomiting every day for 11 weeks

I started vomiting 11 weeks ago, thought it was a sickness bug at first but didn't stop. Ended up...

pain after every meal.

hi just wanted to ask if anyone suffers the same as me. I recently had a couple of days where i...
ttrojen profile image

Fed up of continuous pain

Chronic IBS and survere pain. Has anyone had any good results from taking...

Moderation team

IBSNetwork profile image
IBSNetworkPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.