Hello everyone. I am an 18, soon to be 19 year old female and new to the website. I am writing this post to see if anyone else has the same experience or has any tips.
Around eighteen months ago or so at age 17 I began starting with the symptoms which included extreme pains to the point of not being able to stand up, several bouts of diarrhoea every day, loss of appetite (that and the extreme pain contributed to a dramatic weight loss), nausea, tiredness (sometimes too tired to do anything), wind, backache ect. Things got so bad, I had to drop out of education.
The pains are a mixture of dull aches, spasms, tightness, sharp stabbing feelings. at the beginning I was loosing a lot of sleep from being up all night with the symptoms. so I went to the doctors and had all the tests done you can possibly think of but nothing showed up, which was when they diagnosed me with irritable bowel syndrome and gave me medications which took a while to work, they took the edge off but the pains never fully went away but I was able to lead a semi proper life. around a year of so after taking the medications they stopped working and things got worse again and began having a lot of flare ups which are extremely painful. the pain starts in my stomach and works its way down my digestive system which eventually leads to the D and could last for hours. it takes me at least 48 hours to recover from a flare up as it makes me feel so unwell afterwards.
seeing as things got worse and the GP couldn't figure out why I wasn't feeling or getting any better, I was referred on to a specialist. they were so helpful, for the first time since I started with the symptoms I actually felt listened to instead of being thrown different medications to try. I gave him a list of my symptoms and said it sounds like a very severe case of IBS and even said to me 'I bet you feel as though you've not been listened up until now'.
I experience nausea every day, sometimes gets to the point where I feel as though I am going to vomit. this is often made worse after eating as well as the abdominal pain (on a bad day, going to the toilet straight after eating). I under went a test just to confirm it was IBS. I also suffer from acid reflux. from telling him about the nausea, the upper abdominal pain and the pain I get there when going to the toilet (sometimes also get pain in lower abdomen when opening bowels), I was also diagnosed with functional dyspepsia.
I am currently waiting to go back to the GP to be suggested new medications as the pain and nausea are symptoms I suffer 24/7 and feel too unwell to carry on a normal life.
anyone else who has symptoms like this, please feel free to comment or if anyone has any tips for management or anything like that, they will be welcome.