Low grade 2 brain tumour diagnosis...

[Outtatheblue]

Hello all...I'm trying to deal with all the information and various choices of Operations being offered to me!..Obviously the option of having one surgery to remove the majority of the tumour seems the best bet...but the thought of being woken up half way through it so the they can monitor me while they attempt to remove to more hard to reach part of the tumour...is stuff of nightmares.I have other options available..and have time to decide which surgery suits me..but I would appreciate anyone out there with any experience of this type of operation and recovery to help me decide what to do!?..

Much appreciated...

Outtatheblue.

[Joolaboola]

Hello, I am scheduled to have an awake craniotomy soon, for a low grade glioma. My advice is do it, if you can at all bear the thought. They can cut more out with you awake, which is ultimately better for your survival and quality of life. The surgeons say you can't always tell who will take it well and be able to stay awake a long time, but my view is it's giving myself the best chance. Good luck!

[Outtatheblue in reply to Joolaboola]

Thankyou for your positive comments on this.This is what I wanted to hear...and before I speak to any Psychologist on the subject..will probably make me lean towards this type of operation.

I don't really want multiple operations..so getting it all done in one go seems the better option!

I wish you all the best for your operation and a quick recovery too!

All the best 👍

[chocolate40 in reply to Outtatheblue]

I had awake surgery just last week, I was in hospital for just 3 days and I’m home now and recovering really well. When it came to the awake surgery obviously I was scared and anxious but honestly I don’t remember a thing. I would say go for it, you can do it!!

[Outtatheblue in reply to chocolate40]

That is good news!..and you're home and getting back to normal. The more I hear his kind response the more confident I feel having this kind of surgery..especially now I have a date for the operation pencilled in now!..Take care.

[Callumsully]

I have surgery booked in at the end of February to remove mine, I was told I didn't need to be awake for mine so I am very lucky. However, from what I have read from others experiences they don't even remember being awake, you are still under a form of anaesthetic, and you have no nerve endings in your brain so you wouldn't actually feel them prodding around but they have speech therapist in the room typically to check they aren't removing a part that they shouldn't be. It's the stuff of nightmares I agree. But you've got this

[Outtatheblue in reply to Callumsully]

Best wishes for your surgery..everything you said about the operation is spot on.I'm waiting for an appointment now to find out if any follow up treatment is required for small portion of tumour that remains.

I'm healing well and feeling better and feeling positive.

All the best.