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Venetoclax
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Facial sweating with eating on Venetoclax
I have been on
Venetoclax
since Feb 2023. Over the past few weeks I have developed a strange symptom... every time I eat I start sweating from my upper jaw to the top of my head. I am curious if anyone else had experienced this?
I have been on
Venetoclax
since Feb 2023. Over the past few weeks I have developed a strange symptom... every time I eat I start sweating from my upper jaw to the top of my head. I am curious if anyone else had experienced this?
Shangonmom
in
CLL Support
3 months ago
Increased side effects after 6-9 months on Venetoclax
I'd really appreciate hearing from others who may have experienced increased side effects well into treatment with
Venetoclax
. Does it continue to get worse? Thanks for sharing your experience and/or words of encouragement.
I'd really appreciate hearing from others who may have experienced increased side effects well into treatment with
Venetoclax
. Does it continue to get worse? Thanks for sharing your experience and/or words of encouragement.
DMary
in
CLL Support
1 month ago
Afraid of Low blood counts
My Mother has started
venetoclax
since December, was on calquence previously but had to switch due to atrial fibrillation.
My Mother has started
venetoclax
since December, was on calquence previously but had to switch due to atrial fibrillation.
Hidden
in
CLL Support
2 months ago
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2nd day Venetoclax
I'm on day 3 of
Venetoclax
and noticed last night I had small red slightly raised spots on hands. Faded a bit this morning. It's my only side effect so far. Should I be concerned.
I'm on day 3 of
Venetoclax
and noticed last night I had small red slightly raised spots on hands. Faded a bit this morning. It's my only side effect so far. Should I be concerned.
Guinness4822
in
CLL Support
5 months ago
Acute kidney failure - creatinine is climbing
My hubby's treatment is
venetoclax
and acalabrutinib (he previously had obinutuzumab too). He is also taking sulfameth trimeth (for ammonia) and valacyclivor (for shingles) dropped from 1200 to 800 mg a day.
My hubby's treatment is
venetoclax
and acalabrutinib (he previously had obinutuzumab too). He is also taking sulfameth trimeth (for ammonia) and valacyclivor (for shingles) dropped from 1200 to 800 mg a day.
spi3
in
CLL Support
1 month ago
Petechiae
Am 2 weeks into Ibrutinib and
Venetoclax
, my platelets were 76 on Monday which although low is classed as ok and my HB was 117 ok again.
Am 2 weeks into Ibrutinib and
Venetoclax
, my platelets were 76 on Monday which although low is classed as ok and my HB was 117 ok again.
clifflee
in
CLL Support
3 months ago
colouring hair on obinutuzumab and venetoclax
I have finished obinutuzumab and am now just on venetoclax.My hair has been unaffected by these treatments. I would like to have good quality highlights and lowlights - is this OK?
I have finished obinutuzumab and am now just on venetoclax.My hair has been unaffected by these treatments. I would like to have good quality highlights and lowlights - is this OK?
Geministars
in
CLL Support
2 months ago
Combined Medication
I then combine ibrutinib with
Venetoclax
for the remaining 15 months. Has anyone out there been on the same combination of tablets and could share their experience with me
I then combine ibrutinib with
Venetoclax
for the remaining 15 months. Has anyone out there been on the same combination of tablets and could share their experience with me
wolfe1963
in
CLL Support
5 months ago
Due to start on Ventoclax
Hi All, 3 months since first treatment of Ibrutinib and due to have 1st
Venetoclax
dose next week. Did anyone have any side effects with this combination. I have been asked to visit hospital weekly once I start this next cycle. I will still be on Ibrutinib as well.Thanks.
Hi All, 3 months since first treatment of Ibrutinib and due to have 1st
Venetoclax
dose next week. Did anyone have any side effects with this combination. I have been asked to visit hospital weekly once I start this next cycle. I will still be on Ibrutinib as well.Thanks.
Guinness4822
in
CLL Support
5 months ago
Falling platelet counts after achieving Undetectable Minimal Residual Diseaese
Hello folks I completed a course of
Venetoclax
& Obinituzumab (Gazyva) last March, and happily achieved UMRD (undetectable minimal residual disease). I'm part of a clinical trial, which stopped treatment once I reached UMRD (with a minimum of 6-9 months of treatment); I was treated for 9 months.
Hello folks I completed a course of
Venetoclax
& Obinituzumab (Gazyva) last March, and happily achieved UMRD (undetectable minimal residual disease). I'm part of a clinical trial, which stopped treatment once I reached UMRD (with a minimum of 6-9 months of treatment); I was treated for 9 months.
DinosaurDad
in
CLL Support
1 month ago
COVIDShot
thank you, Dennis, 77,
Venetoclax
thank you, Dennis, 77,
Venetoclax
Fant1924
in
CLL Support
4 months ago
Side effects Acalabrutinib v. Venetoclax
Does anyone have good data on the relative incidence of the following side-effects between Ven and Acal 1. Fatigue 2. Back pain 3. Musculoskeletal muscle pain 4. Infection risk Thx Skipro
Does anyone have good data on the relative incidence of the following side-effects between Ven and Acal 1. Fatigue 2. Back pain 3. Musculoskeletal muscle pain 4. Infection risk Thx Skipro
skipro
in
CLL Support
4 months ago
On Venetoclax, lymph node appeared
Maybe it is just a question of taking the full dose, I am still at a reduced dose because of my episode of PRES which happened during ramp up of
Venetoclax
. The joys of CLL and yes, I see my oncologist on Thursday. Happy and healthy New Year to you all!
Maybe it is just a question of taking the full dose, I am still at a reduced dose because of my episode of PRES which happened during ramp up of
Venetoclax
. The joys of CLL and yes, I see my oncologist on Thursday. Happy and healthy New Year to you all!
Alex830
in
CLL Support
4 months ago
Finished Obinutuzumab treatment!
I will continue with daily
Venetoclax
until March. A couple of bumps in the road in the beginning, but overall a positive experience.
I will continue with daily
Venetoclax
until March. A couple of bumps in the road in the beginning, but overall a positive experience.
Wendy328
in
CLL Support
6 months ago
New hopes (we all need them on a Monday!)
(I am partial to
Venetoclax
since I live in Veneto :-P ) https://news.yahoo.com/non-invasive-device-blasts-apart-110000169.html this can blast away tumors with soundwaves...I was able to do something similar with my old Marshall tube amp...
(I am partial to
Venetoclax
since I live in Veneto :-P ) https://news.yahoo.com/non-invasive-device-blasts-apart-110000169.html this can blast away tumors with soundwaves...I was able to do something similar with my old Marshall tube amp...
Maxone73
in
Advanced Prostate Cancer
7 months ago
Chest infection
My husband who has been on 200mg of
Venetoclax
for two years now has been ill since New years day, first the doctor thought flu because his chest sounded pretty clear however she gave him 7 days amoxacillan just to be on the safe side, covid tests negative, he has now got a full blown chest infection
My husband who has been on 200mg of
Venetoclax
for two years now has been ill since New years day, first the doctor thought flu because his chest sounded pretty clear however she gave him 7 days amoxacillan just to be on the safe side, covid tests negative, he has now got a full blown chest infection
Alfiebhoy
in
CLL Support
4 months ago
COVID
My question is will this effect lbrutonib and
Venetoclax
. He also told me to stop taking antibiotics which I have been taking 3 times a week. Looks like I have to wait to see of I contract COVID re anti virals. Again not sure how they might interact. Sorry for long post. Tony.
My question is will this effect lbrutonib and
Venetoclax
. He also told me to stop taking antibiotics which I have been taking 3 times a week. Looks like I have to wait to see of I contract COVID re anti virals. Again not sure how they might interact. Sorry for long post. Tony.
Guinness4822
in
CLL Support
4 months ago
severe covid vaccine reaction, & ibuprofen
I don't understand this aversion to one or two Ibuprofen, when other treatments such as chemo, and
Venetoclax
,9which almost killed me), are much more toxic and go on for months if not years. ??
I don't understand this aversion to one or two Ibuprofen, when other treatments such as chemo, and
Venetoclax
,9which almost killed me), are much more toxic and go on for months if not years. ??
humaniquarian
in
CLL Support
9 days ago
Venetoclax has been added to the Pharmaceutical Benefits Scheme in Australia for use as a retreatment for CLL/SLL
the rationale behind the use of
venetoclax
as a retreatment for CLL/SLL.
the rationale behind the use of
venetoclax
as a retreatment for CLL/SLL.
CLLerinOz
Volunteer
in
CLL Support
8 months ago
venetoclax and obinutuzumab treatment for cll
Hi, I have finished the above 12 months treatment for cll tp53 mutated, I now have 2 monthly checks and my lymphocytes are low, is this a cause for concern?
Hi, I have finished the above 12 months treatment for cll tp53 mutated, I now have 2 monthly checks and my lymphocytes are low, is this a cause for concern?
dellkota
in
CLL Support
5 months ago
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