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Venetoclax
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What’s the next step.
Options are 1/
Venetoclax
. 2 years 2/ Ibrutinib indefinitely. Or 3 Acalabrutinib indefinitely. I’m sure these are correct. Mind is swimming at the minute. Does anyone have any experience or advice. Billy.
Options are 1/
Venetoclax
. 2 years 2/ Ibrutinib indefinitely. Or 3 Acalabrutinib indefinitely. I’m sure these are correct. Mind is swimming at the minute. Does anyone have any experience or advice. Billy.
Billys60
in
CLL Support
3 years ago
CLL + Trisomy 8?
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab,
Venetoclax
, and Ibrutinib trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8.
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab,
Venetoclax
, and Ibrutinib trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8.
RyStock
in
CLL Support
3 years ago
CLL + Trisomy 8
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab,
Venetoclax
, and Ibrutinib trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8.
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab,
Venetoclax
, and Ibrutinib trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8.
RyStock
in
CLL America Support
3 years ago
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CLL Research: Phase 2 CAPTIVATE Study Suggests Role for Fixed-Duration Treatment of CLL/SLL
Meghan Thompson on successful retreatment with
venetoclax
.) The question remains as to the advisability of stopping all therapy upon attainment of uMRD.
Meghan Thompson on successful retreatment with
venetoclax
.) The question remains as to the advisability of stopping all therapy upon attainment of uMRD.
WinJ3
in
CLL Support
3 years ago
Muscle Relaxants for Pain?
To follow up on the pain from Acalabrutinib and
Venetoclax
—Have any of you been prescribed a muscle relaxant to help with the pain? We are trying to explore if there is an orthopedic issue. I realize that we need to talk with his doctor, but just wondering what others have experienced.
To follow up on the pain from Acalabrutinib and
Venetoclax
—Have any of you been prescribed a muscle relaxant to help with the pain? We are trying to explore if there is an orthopedic issue. I realize that we need to talk with his doctor, but just wondering what others have experienced.
Franklin2021
in
CLL Support
3 years ago
CLL 17p - Rituximab/Imbruvica then Rituximab/Venetoclax or enter in a clinical trial ?
plus
venetoclax
in patients with previously untreated chronic lymphocytic leukaemia (CLL)"...
plus
venetoclax
in patients with previously untreated chronic lymphocytic leukaemia (CLL)"...
Noham027
in
CLL Support
3 years ago
Small COVID Vaccine Study Observations
Additionally, 3/14 (21%) of those receiving BTK inhibitors, 2/14 (14%) of those who had received anti-CD20 mAb within 12 months, and 0/7 (0%) of those receiving
venetoclax
with anti-CD20 mAb within 12 months tested positive for anti-SARS-CoV-2 S1/S2 antibodies.
Additionally, 3/14 (21%) of those receiving BTK inhibitors, 2/14 (14%) of those who had received anti-CD20 mAb within 12 months, and 0/7 (0%) of those receiving
venetoclax
with anti-CD20 mAb within 12 months tested positive for anti-SARS-CoV-2 S1/S2 antibodies.
Luap001
in
CLL Support
3 years ago
Obinutumab plus venetoclax in cll
My father got diagnosed cll october 2009,was on wait and watch till mid 2014,then given R-bendamustine and was on remission till october 2016,then started ibrutinib in 2016 and stopped ibrutinib in mid 2018,in 2020 end due to fast multiplication of tlc and enlarged spleen and lymphnodes our doc suggested
My father got diagnosed cll october 2009,was on wait and watch till mid 2014,then given R-bendamustine and was on remission till october 2016,then started ibrutinib in 2016 and stopped ibrutinib in mid 2018,in 2020 end due to fast multiplication of tlc and enlarged spleen and lymphnodes our doc suggested
Rameshchag
in
CLL Support
3 years ago
Going off venetoclax
My oncologist said I could potentially go off
venetoclax
and if (or when) I have a recurrence I could go back on it. The research is sketchy because of the newness of the drug. Any thoughts?
My oncologist said I could potentially go off
venetoclax
and if (or when) I have a recurrence I could go back on it. The research is sketchy because of the newness of the drug. Any thoughts?
Lulu8581
in
CLL Support
3 years ago
Loxo 305 + Venetoclax trial MRD Negative but with extras ....
Despite this being my 3rd treatment I’m usually quite well, however I’ve been feeling really unwell since March with Chronic Sinusitis, which developed into a bacterial infection, pneumonia and beginnings of sepsis. (Trial treatment was stopped for a week whilst I was in hospital) My Haematologist
Despite this being my 3rd treatment I’m usually quite well, however I’ve been feeling really unwell since March with Chronic Sinusitis, which developed into a bacterial infection, pneumonia and beginnings of sepsis. (Trial treatment was stopped for a week whilst I was in hospital) My Haematologist
Billarina
in
CLL Support
3 years ago
Venetoclax
When add
venetoclax
to Ibrutinib in Cll Treatment
When add
venetoclax
to Ibrutinib in Cll Treatment
Chinhdo
in
CLL Support
3 years ago
Obinutuzumab and venetoclax in relapsed cll,
My father got diagnosed cll october 2009,was on wait and watch till mid 2014,then given R-bendamustine and was on remission till october 2016,then started ibrutinib in 2016 and stopped ibrutinib in mid 2018,in 2020 end due to fast multiplication of tlc and enlarged spleen and lymphnodes our doc suggested
My father got diagnosed cll october 2009,was on wait and watch till mid 2014,then given R-bendamustine and was on remission till october 2016,then started ibrutinib in 2016 and stopped ibrutinib in mid 2018,in 2020 end due to fast multiplication of tlc and enlarged spleen and lymphnodes our doc suggested
Rameshchag
in
CLL America Support
3 years ago
Update on Venclexta/Gazyva month 5
I hope to hear from others who may be taking
Venetoclax
alone and how you are doing. Hope this helps others who are going through this treatment plan. The good thing is he never had the stomach upset, nausea or other side effects other than the neutropenia. Wishing you all continued health.
I hope to hear from others who may be taking
Venetoclax
alone and how you are doing. Hope this helps others who are going through this treatment plan. The good thing is he never had the stomach upset, nausea or other side effects other than the neutropenia. Wishing you all continued health.
Palmetto
in
CLL Support
3 years ago
Living with CLL
So I was fine until November 2019 when I started on
Venetoclax
, I have been taking 400mg everyday, my CLL under cntrol and I not having side effects. I’m lucky that I was diagnosed early and the CLL hadn’t gone into my lymph nodes.
So I was fine until November 2019 when I started on
Venetoclax
, I have been taking 400mg everyday, my CLL under cntrol and I not having side effects. I’m lucky that I was diagnosed early and the CLL hadn’t gone into my lymph nodes.
2gizzy
in
CLL Support
3 years ago
Important SARS-CoV-2 and Covid-19 information for Chronic Lymphocytic Leukaemia/CLL patients
https://healthunlocked.com/cllsupport/posts/private/147732238/positive-for-covid-and-on-
venetoclax
?
https://healthunlocked.com/cllsupport/posts/private/147732238/positive-for-covid-and-on-
venetoclax
?
CLLerinOz
Volunteer
in
CLL Support
2 years ago
Covid Antibody Test
Best regards Reinhard from Austria Dx Jan. 2000,Tx
Venetoclax
Obinutuzumab Jun 2015 - Sep 2018 (CR, mrd- in blood and bone marrow)
Best regards Reinhard from Austria Dx Jan. 2000,Tx
Venetoclax
Obinutuzumab Jun 2015 - Sep 2018 (CR, mrd- in blood and bone marrow)
Reinhard
in
CLL Support
3 years ago
Muscle cramps as a side effect of Venetoclax
I am taking
venetoclax
at present and am suffering with muscle cramps, particularly in my back. Does anyone else have this problem? My consultant refuses to acknowledge that this is as a result of the medication but my GP has found it to be the case.
I am taking
venetoclax
at present and am suffering with muscle cramps, particularly in my back. Does anyone else have this problem? My consultant refuses to acknowledge that this is as a result of the medication but my GP has found it to be the case.
Suzy11
in
Leukaemia CARE
3 years ago
Proctitis and Venetoclax
Am wondering if anyone else has experienced this while taking
Venetoclax
or Ibrutinib?
Am wondering if anyone else has experienced this while taking
Venetoclax
or Ibrutinib?
Lady_Lymington
in
CLL Support
3 years ago
Ibrutinib combinations in CLL therapy: scientific rationale and clinical results
Among these strategies, ibrutinib with targeted agent
venetoclax
results in high complete response rates and, importantly, high rates of undetectable minimal residual disease.
Among these strategies, ibrutinib with targeted agent
venetoclax
results in high complete response rates and, importantly, high rates of undetectable minimal residual disease.
Jm954
Administrator
in
CLL Support
3 years ago
Doctor wants to start Venetoclax today but recent blood work shows evidence of AIHA but Doctor still says start Ven
shouldn't AIHA be treated first? hemoglobin dropping weekly down from 14.7 2 months ago now 10.7 Haptoglobin less than 31 LDH almost 700 Doctor says still start Venclexta tomorrow but why not hold off until AIHA is controlled with steroids or Rituxan? I think the Rituxan will put him in control of
shouldn't AIHA be treated first? hemoglobin dropping weekly down from 14.7 2 months ago now 10.7 Haptoglobin less than 31 LDH almost 700 Doctor says still start Venclexta tomorrow but why not hold off until AIHA is controlled with steroids or Rituxan? I think the Rituxan will put him in control of
Palmetto
in
CLL Support
3 years ago
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