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Vedolizumab
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Mepolizumab
Anybody on Mepolizumab who has been getting extremely tired to the point of exhaustion. I have had my 6th injection a week ago and have been so tired since Sunday to the point it interferes with my breathing , this has been getting worse with each injection. I do feel I’ve had some benefit through hay
Anybody on Mepolizumab who has been getting extremely tired to the point of exhaustion. I have had my 6th injection a week ago and have been so tired since Sunday to the point it interferes with my breathing , this has been getting worse with each injection. I do feel I’ve had some benefit through hay
Shellc
in
Asthma Community Forum
6 years ago
Penalty Charge
Another shocking story this is. Basically I am have very bad asthma. to a point that getting a simply cold will usually end up with me being in ICU or HCU at hospital. Anyway If I do not take my medication I will end up in hospital and worse case I can actually Die. I am currently on Mepolizumab so
Another shocking story this is. Basically I am have very bad asthma. to a point that getting a simply cold will usually end up with me being in ICU or HCU at hospital. Anyway If I do not take my medication I will end up in hospital and worse case I can actually Die. I am currently on Mepolizumab so
dan2406
in
Asthma Community Forum
6 years ago
Mepolizumab- first injection
Hi all How is everyone? I had my first Mepolizumab injection a week ago. I've felt very tired all week and feel like I'm getting a cold. I've also been feeling hot/cold but these have been mild rather than severe. Next one in 3 weeks time. They say I may not notice any improvement until after the
Hi all How is everyone? I had my first Mepolizumab injection a week ago. I've felt very tired all week and feel like I'm getting a cold. I've also been feeling hot/cold but these have been mild rather than severe. Next one in 3 weeks time. They say I may not notice any improvement until after the
asthmagirl97
in
Asthma Community Forum
6 years ago
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Is anyone here on RESLIZUMAB??
Hi All! I have very difficult eucinophillic asthma & have had 16monthly MEPOLIZUMAB injections. Altho the blood results were quite startlingly good from the start, my terrible breathlessness has been unchanged. I’ve been able to very gently reduce my steroid dose the last couple of months, being very
Hi All! I have very difficult eucinophillic asthma & have had 16monthly MEPOLIZUMAB injections. Altho the blood results were quite startlingly good from the start, my terrible breathlessness has been unchanged. I’ve been able to very gently reduce my steroid dose the last couple of months, being very
Sparkimoore
in
Asthma Community Forum
6 years ago
I'm new here : Ulcerative colitis
As steroids is not a long term solution, she was on a 6-8 weekly
Vedolizumab
(one of the many biologics) infusions, which worked a treat for 3yrs allowing my daughter to lead a relatively normal life.
As steroids is not a long term solution, she was on a 6-8 weekly
Vedolizumab
(one of the many biologics) infusions, which worked a treat for 3yrs allowing my daughter to lead a relatively normal life.
Healthsupport
in
Crohn's and Colitis Support
6 years ago
Mepolizumab
Hi all ..... just had my 2nd mepolizumab jab on Friday and all the signs are it’s working . So I’m starting to reduce my pred , after 3 years on 25mg daily sure it will be a struggle and may take a few attempts... am starting off at a 2.5mg reduction for one month and will be reviewed at my next monthly
Hi all ..... just had my 2nd mepolizumab jab on Friday and all the signs are it’s working . So I’m starting to reduce my pred , after 3 years on 25mg daily sure it will be a struggle and may take a few attempts... am starting off at a 2.5mg reduction for one month and will be reviewed at my next monthly
Mark-f
in
Asthma Community Forum
6 years ago
Mepolizumab / Nucala ... fatigue?
Hi to any folks taking this. How long until you noticed a difference? I had my second jab a couple of weeks ago after getting worse on Xolair and am now wrestling with myself whether to take a course of oral steroids. Don't want to, but symptoms have flared up again these past few days. Initially
Hi to any folks taking this. How long until you noticed a difference? I had my second jab a couple of weeks ago after getting worse on Xolair and am now wrestling with myself whether to take a course of oral steroids. Don't want to, but symptoms have flared up again these past few days. Initially
Joan_Public
in
Asthma Community Forum
6 years ago
Mepolizumab
Good news after a failed trial of xolair for 12 months ... many tests, finally got the green light for mepolizumab, looking for any feed back on side affects ect , from those already using . P.s ... being maintained on 25mg of prednisone daily and have been some 3 years Thanks in advance Mark
Good news after a failed trial of xolair for 12 months ... many tests, finally got the green light for mepolizumab, looking for any feed back on side affects ect , from those already using . P.s ... being maintained on 25mg of prednisone daily and have been some 3 years Thanks in advance Mark
Mark-f
in
Asthma Community Forum
6 years ago
Recently diagnosed asthmatic.
Hi all, After recently being diagnosed with eosinophilic asthma, i wondered whether similar sufferers were going through what i believe is a life altering condition. 52 yrs old, never smoked, always been physically active, that is up until April 2017. Since that date my life has dramatically taken a
Hi all, After recently being diagnosed with eosinophilic asthma, i wondered whether similar sufferers were going through what i believe is a life altering condition. 52 yrs old, never smoked, always been physically active, that is up until April 2017. Since that date my life has dramatically taken a
Bashsu01
in
Asthma Community Forum
6 years ago
Mepolizumab
Hi all .... not been on for ages, been riding the prednisone roller coaster !! Haha For those that can remember, I was on xolair for 12 months but after several Attempts too wean from pred I was only able to reduce to 20mg daily before I deterioration and told to return to my base line of 25/30mg ..
Hi all .... not been on for ages, been riding the prednisone roller coaster !! Haha For those that can remember, I was on xolair for 12 months but after several Attempts too wean from pred I was only able to reduce to 20mg daily before I deterioration and told to return to my base line of 25/30mg ..
Mark-f
in
Asthma Community Forum
6 years ago
Anyone on Mepolizumab?
Hi Everyone. I'm due to start mepolizumab injections on Friday and I'm wondering if anyone out there can share their experiences of taking it. My asthma is very brittle and I have been unwell now for 14 years. During that time I've had nearly every possible drug to help but so far with no success. I'm
Hi Everyone. I'm due to start mepolizumab injections on Friday and I'm wondering if anyone out there can share their experiences of taking it. My asthma is very brittle and I have been unwell now for 14 years. During that time I've had nearly every possible drug to help but so far with no success. I'm
Clanmacbeath
in
Asthma Community Forum
6 years ago
Anybody else in this situation?
Hi first post here, I’ve been suffering with asthma the last 2 years with 5 large attacks in this period. So far I’ve been under hospital care for the last 18 months with me now taking what feels like an army of inhalers/tablets a day (symbicort, bricanyl, spiriva, Alcon and montelukast). The consultant
Hi first post here, I’ve been suffering with asthma the last 2 years with 5 large attacks in this period. So far I’ve been under hospital care for the last 18 months with me now taking what feels like an army of inhalers/tablets a day (symbicort, bricanyl, spiriva, Alcon and montelukast). The consultant
Punkgirl94
in
Asthma Community Forum
6 years ago
Has anyone had Mepolizumab
Has anyone had Mepolizumab - just wondering about the outcomes and waiting times. My husband is due to be seen at Nottingham and were not sure of waiting times.
Has anyone had Mepolizumab - just wondering about the outcomes and waiting times. My husband is due to be seen at Nottingham and were not sure of waiting times.
scalesc
in
Oesophageal & Gastric Cancer
6 years ago
Reslizumab
Hi, Anybody on res!izumab in rbht or Wythenshawe ? Any feedback? Have you been on mepolizumab before? Can you compare ?
Hi, Anybody on res!izumab in rbht or Wythenshawe ? Any feedback? Have you been on mepolizumab before? Can you compare ?
Polzovatel
in
Asthma Community Forum
6 years ago
Mepolizumab update
8 injections down and feeling great! Hoping to be off the pred(1mg/day) in a fortnight but have had to reduce slowly to ensure I’m able to make my own cortisone. Would be interested to see how others have done on this new treatment and a very Happy and healthy New year all x
8 injections down and feeling great! Hoping to be off the pred(1mg/day) in a fortnight but have had to reduce slowly to ensure I’m able to make my own cortisone. Would be interested to see how others have done on this new treatment and a very Happy and healthy New year all x
Mintoes
in
Asthma Community Forum
6 years ago
Mepolizumab
I have been on mepolizumab injection for 7 months but during those months I have had two asthma exacerbation requiring a few weeks of prednisilone. Feel a bit disappointed given that I was given to understand that This new medication would improve my asthma condition. Would appreciate comments from people
I have been on mepolizumab injection for 7 months but during those months I have had two asthma exacerbation requiring a few weeks of prednisilone. Feel a bit disappointed given that I was given to understand that This new medication would improve my asthma condition. Would appreciate comments from people
Josephone
in
Asthma Community Forum
7 years ago
A Post From Medscape...
This is from a newsletter I get regularly and am passing on for your perusal and information only....; you may have to search the site for the subjects listed below.....; https://www.medscape.com/pulmonarymedicine?src=WNL_infoc_171109_MSCPEDIT_meddev_copd_rm&uac=284288AJ&impID=1477344&faf=1 The Latest
This is from a newsletter I get regularly and am passing on for your perusal and information only....; you may have to search the site for the subjects listed below.....; https://www.medscape.com/pulmonarymedicine?src=WNL_infoc_171109_MSCPEDIT_meddev_copd_rm&uac=284288AJ&impID=1477344&faf=1 The Latest
Dmactds
in
Lung Conditions Community Forum
7 years ago
Eosinophilc asthma earache and toothache
I was diagnosed with eosinophilc asthma in August - I am waiting for mepolizumab. I have also been suffering with earache in both ears, toothache and what I thought was GERD - I blamed my inhalers for this, however omeprazole and gaviscon did not ease things. Some research has revealed that the earache
I was diagnosed with eosinophilc asthma in August - I am waiting for mepolizumab. I have also been suffering with earache in both ears, toothache and what I thought was GERD - I blamed my inhalers for this, however omeprazole and gaviscon did not ease things. Some research has revealed that the earache
Brenviking
in
Asthma Community Forum
7 years ago
Has anyone heard of the drug = " Mepolizumab " ? ..
I recently had my three monthly check up with my Consultant , for my " Copd / Emphysema with Asthma overlap " .... ( what a diagnosis ! - takes your breath away, just saying it ! ! ) ...which he said he would like to try this drug - =" Mepolizumab" on me , which has recently been given a " License
I recently had my three monthly check up with my Consultant , for my " Copd / Emphysema with Asthma overlap " .... ( what a diagnosis ! - takes your breath away, just saying it ! ! ) ...which he said he would like to try this drug - =" Mepolizumab" on me , which has recently been given a " License
vittorio
in
Lung Conditions Community Forum
7 years ago
Mepolizumab
Anybody on here been given it yet? Has it improved matters? I am on the waiting list but it will be serveral months - diagnosed with eosinophilc asthma last week while on leave - tonight I have to back in work and tell my supervision that I will need monthly injections at the hospital. I am not looking
Anybody on here been given it yet? Has it improved matters? I am on the waiting list but it will be serveral months - diagnosed with eosinophilc asthma last week while on leave - tonight I have to back in work and tell my supervision that I will need monthly injections at the hospital. I am not looking
Brenviking
in
Asthma Community Forum
7 years ago
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