3,570 public posts
A questionnaire for those with ANCA associated vasculitis and renal involvement in the UK
For those with ANCA associated vasculitis and renal involvement in the UK
Clinicians are worried about overtreating patients and adding side effects of long term use of immunosuppressants to the ilness burden.
Want to take advantage of all our features? Just log in!
or
UKIVAS Vasculitis Educational Course - Manchester November 2023
Types included were :- AAV, GCA, TAK, Anti GBM, Renal Involvement, Epidemiology, Subglottal Stenosis,
Topics included:- Vasculitis & Pregnancy, Vasculitis in an older person, Withdrawal of steroids and side effects, Avocapan, Careers in Vasculitis, Patient Voice, Difficult to Treat Symptoms eg:
International Vasculitis Awareness Day
Today is International Vasculitis Awareness Day!
Spread the word!
May - Day 15 #vasculitis awareness month.
Life is beautiful, don't let vasculitis tell you otherwise!
Take a moment to read Zoi's story!
May - Vasculitis Awareness Month
May - Day 31 Vasculitis Awareness Month -
The vasculitis diagnosis and treatment doesn't only affect the patient, it is life changing for their loved ones too. Many times family members become carers, most of the time unpaid carers. Their support is invaluable to us, vasculitis patients.
For those living in Wales
Vasculitis UK will attend as part of RAIRDA and
we will take the opportunity to advocate for better care of vasculitis patients.
https://executive.nhs.wales/.../conference-and-network.../