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Urticarial vasculitis
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wegeners granulomatosis
my father died october 11 1981 and was only 33. he kept going the doctors and the doctors said that it was only flu, then finaly 3 weeks later he was admited and sadley died. i want to know is there a cure ?
my father died october 11 1981 and was only 33. he kept going the doctors and the doctors said that it was only flu, then finaly 3 weeks later he was admited and sadley died. i want to know is there a cure ?
jephcote2202
in
Vasculitis UK
12 years ago
Rash after cyclophosphamide infusion?
Last Tuesday I had my second cyclophosphamide infusion. Two weeks earlier I'd found the first one straightforward, with no nausea and just one wonky day a couple of days later. I was so pleased and felt quite optimistic for the first time in months! Even able to reduce my steroid dose again -just 15
Last Tuesday I had my second cyclophosphamide infusion. Two weeks earlier I'd found the first one straightforward, with no nausea and just one wonky day a couple of days later. I was so pleased and felt quite optimistic for the first time in months! Even able to reduce my steroid dose again -just 15
BronteM
in
Vasculitis UK
12 years ago
Update
Hi everyone Still hanging in there - this has been my worst flare to date. Have had two doses of chemotherapy - cyclophosphamide plus three other bags of 'juice' to offset the side effects. So far so good with nausea and mouth ulcers which are supposed to come with it. Have to take a liquid
Hi everyone Still hanging in there - this has been my worst flare to date. Have had two doses of chemotherapy - cyclophosphamide plus three other bags of 'juice' to offset the side effects. So far so good with nausea and mouth ulcers which are supposed to come with it. Have to take a liquid
lesleyg
in
Behçet's UK
12 years ago
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Pregnancy and Vasculitis... ?
I would like to ask a question... has anyone been diagnosed with Vasculitis, during or just after pregnancy? We have just been contacted by another two ladies who have been diagnosed with Vasculitis, one during pregnacy and one a few weeks after giving birth... one with CNSV and one with WG... John is
I would like to ask a question... has anyone been diagnosed with Vasculitis, during or just after pregnancy? We have just been contacted by another two ladies who have been diagnosed with Vasculitis, one during pregnacy and one a few weeks after giving birth... one with CNSV and one with WG... John is
John_Mills
Vasculitis UK
in
Vasculitis UK
12 years ago
VASCULITIS UK - WEBSITE UPDATE
/about-
vasculitis
/
urticarial
-
vasculitis
PatriciaAnn
/about-
vasculitis
/
urticarial
-
vasculitis
PatriciaAnn
PatriciaAnn
in
Vasculitis UK
12 years ago
Rituximab
I went for my first Rituximab infusion on friday and had an allergic reaction to it? has this happened to anyone else? my vasculitis is now flaring up, pressumably due to the reaction. Im feeling quite down as I was expecting it to work.
I went for my first Rituximab infusion on friday and had an allergic reaction to it? has this happened to anyone else? my vasculitis is now flaring up, pressumably due to the reaction. Im feeling quite down as I was expecting it to work.
lucindaross
in
Vasculitis UK
12 years ago
Nerve pain with MPA
Just thought I would share my outcome with nerve pain in my gums and teeth due to Vasculitis MPA. For the past ten months I have been suffering pain in my gums and teeth, and attending my dentist to try and find an answer. He sorted all the minor problems to start with, and then started to look at
Just thought I would share my outcome with nerve pain in my gums and teeth due to Vasculitis MPA. For the past ten months I have been suffering pain in my gums and teeth, and attending my dentist to try and find an answer. He sorted all the minor problems to start with, and then started to look at
StephanieDiane
in
Vasculitis UK
12 years ago
Movember for Vasculitis UK
Movember a month when men grow moustaches to raise awareness for different conditions. luckly for us, that at Vasculitis UK we have Ed Barton going through the discomfort of growth facial hair. Ed is raising awareness of Vasculitis. Ed has a friend who has been diagnosed with Vasculitis. Give Ed some
Movember a month when men grow moustaches to raise awareness for different conditions. luckly for us, that at Vasculitis UK we have Ed Barton going through the discomfort of growth facial hair. Ed is raising awareness of Vasculitis. Ed has a friend who has been diagnosed with Vasculitis. Give Ed some
Jann
in
Vasculitis UK
12 years ago
Do employers have a right to cut pay and change conditions?
My husband was diagnosed with Wegeners in October, after 3 months of being very ill. He needed 6 weeks off work, for hospital investigations and to start his treatment (daily oral steroids and IV steroids and cyclo every 2 weeks). He returned to work a couple of weeks ago and was exhausted by the early
My husband was diagnosed with Wegeners in October, after 3 months of being very ill. He needed 6 weeks off work, for hospital investigations and to start his treatment (daily oral steroids and IV steroids and cyclo every 2 weeks). He returned to work a couple of weeks ago and was exhausted by the early
andyclairegp
in
Vasculitis UK
12 years ago
Psychology Dissertation Project
Hi, I'm a third year Bsc Psychology student at York St John University and am investigating the psychological impact of Vasculitis as my dissertation project. I was diagnosed with Wegener's Granulomatosis in 2007 so have personal insight into this project. More specifically I am investigating
Hi, I'm a third year Bsc Psychology student at York St John University and am investigating the psychological impact of Vasculitis as my dissertation project. I was diagnosed with Wegener's Granulomatosis in 2007 so have personal insight into this project. More specifically I am investigating
HM266
in
Vasculitis UK
12 years ago
I am seeking help from vasculitis patients
I am seeking help from vasculitis patients. I have one of the types vasculitis, Wegener’s Granulomatosis and I am working towards my PhD. As part of this I am writing a Vasculitis Patient Information booklet. In order to do this, I need to know about and understand the problems and experiences of
I am seeking help from vasculitis patients. I have one of the types vasculitis, Wegener’s Granulomatosis and I am working towards my PhD. As part of this I am writing a Vasculitis Patient Information booklet. In order to do this, I need to know about and understand the problems and experiences of
Gma61
in
Vasculitis UK
12 years ago
Newly diagnosed
Hello - I have just been diagnosed with vasculitis after having lower leg sores since May this year. A recent biopsy did not confirm which type it is. I have been off work since mid-Sept but I'm climbing the walls now and am going back next week. The sores are much better now though I still have a few
Hello - I have just been diagnosed with vasculitis after having lower leg sores since May this year. A recent biopsy did not confirm which type it is. I have been off work since mid-Sept but I'm climbing the walls now and am going back next week. The sores are much better now though I still have a few
Loobyloo57
in
Vasculitis UK
12 years ago
If you have not received an email today regarding the Vasculitis and Rituximab information please contact John thank you..
I have sent out over 50 emails this morning... regarding the Vasculitis and Rituximab.....if you have written contacted or phoned John in the last few days and you have not received an email today will you please let me know.. thank you ... :-) This is just a continuation from a previous post nothing
I have sent out over 50 emails this morning... regarding the Vasculitis and Rituximab.....if you have written contacted or phoned John in the last few days and you have not received an email today will you please let me know.. thank you ... :-) This is just a continuation from a previous post nothing
John_Mills
Vasculitis UK
in
Vasculitis UK
12 years ago
Problems with Cyclophosphamide
I have had four infusions of Cyclo plus two infusions of mezine to help control my wergeners but each time I have had each infusion I have been very ill indeed feeling dizzy and sick as well as having absolutely no strength whatsoever this last for about four days, I also end up on the loo for number
I have had four infusions of Cyclo plus two infusions of mezine to help control my wergeners but each time I have had each infusion I have been very ill indeed feeling dizzy and sick as well as having absolutely no strength whatsoever this last for about four days, I also end up on the loo for number
Dave_Buzzey_B
in
Vasculitis UK
12 years ago
Daily Mail 23rd Oct
Long report in the Daily Mail today about a young lady who died from Wegener's. Good publicity for vasculitis but shame VUK is not mentioned, they seem to have started their own charity which although understandable, seems a waste of resources when the growing knowledge base already exists.
Long report in the Daily Mail today about a young lady who died from Wegener's. Good publicity for vasculitis but shame VUK is not mentioned, they seem to have started their own charity which although understandable, seems a waste of resources when the growing knowledge base already exists.
Nadine99
in
Vasculitis UK
12 years ago
Interesting and Informative article in the Daily Mail online today
This is a very informative and interesting article.. In Lauren's case, it is particularly sad as she was Grant and Adrienne's only daughter. Unfortunatly, John and I still learn of too many similar cases where the Vasculitis has gone unrecognised and undiagnosed until it is too late to prevent serious
This is a very informative and interesting article.. In Lauren's case, it is particularly sad as she was Grant and Adrienne's only daughter. Unfortunatly, John and I still learn of too many similar cases where the Vasculitis has gone unrecognised and undiagnosed until it is too late to prevent serious
John_Mills
Vasculitis UK
in
Vasculitis UK
12 years ago
"Tracy's Little T Ball" at Ickworth House, in memory of Gordon, fundraising for Vasculitis UK
John and I just wanted to thank Tracy for organising a wonderful ball in memory of her partner Gordon, Gordon had a particular aggressive form of WG and was diagnosed in 1996. He died in 2006 but he enjoyed life and lived life to the full... :-) This is the second ball Tracy has organised, but this
John and I just wanted to thank Tracy for organising a wonderful ball in memory of her partner Gordon, Gordon had a particular aggressive form of WG and was diagnosed in 1996. He died in 2006 but he enjoyed life and lived life to the full... :-) This is the second ball Tracy has organised, but this
John_Mills
Vasculitis UK
in
Vasculitis UK
12 years ago
Interesting Article on Hypocomplementemic Urticarial Vasculitis Syndrome
Hypocomplementemic
Urticarial
Vasculitis
Syndrome - An Interdisciplinary Challenge http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2795336/
Hypocomplementemic
Urticarial
Vasculitis
Syndrome - An Interdisciplinary Challenge http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2795336/
RichardE
Volunteer
in
Vasculitis UK
12 years ago
Rheumatoid Vasculitis
Hi I've just been diagnosed with Rheumatoid Vasculitis which is secondary to Rheumatoid Arthritis. I don't know anything about RV and wondered whether anyone has any experience of this? Thanks Nina
Hi I've just been diagnosed with Rheumatoid Vasculitis which is secondary to Rheumatoid Arthritis. I don't know anything about RV and wondered whether anyone has any experience of this? Thanks Nina
Wolf52
in
Vasculitis UK
12 years ago
Pilates, swimming and omega 3
Hi all, hope this finds you all as well as can be! I had an appointment with my gp yesterday to review the tablets I am taking. She was saying to me how it could still be a long road to a diagnosis and as I am struggling to find pain relief from the medication she has suggested things I can do to
Hi all, hope this finds you all as well as can be! I had an appointment with my gp yesterday to review the tablets I am taking. She was saying to me how it could still be a long road to a diagnosis and as I am struggling to find pain relief from the medication she has suggested things I can do to
megs_tom
in
LUPUS UK
12 years ago
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