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Urso
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Does anyone on here have PBC AIH overlap? And when you have the AIH are you always jaundiced?
Only other time was jaundiced apart from now was when I was pregnant back in 2006-7 when my liver went into a degree of failure and I lost lot of weight during the pregnancy but when I was put back on the
Urso
( a drug for PBC) as far as I know the Bilirubin settled again and once I had my little boy
Only other time was jaundiced apart from now was when I was pregnant back in 2006-7 when my liver went into a degree of failure and I lost lot of weight during the pregnancy but when I was put back on the
Urso
( a drug for PBC) as far as I know the Bilirubin settled again and once I had my little boy
littlemo
in
British Liver Trust
11 years ago
Hi All, want to know your thoughts on ..............
I am on questran,
urso
, sertraline, naltrexone, rifampicin, calcichew, thyroxine, chloraphenamine as well as eye drops and menthol/epaderm creams. I am sure I have forgotten to add something but can't remember off the top of my head.
I am on questran,
urso
, sertraline, naltrexone, rifampicin, calcichew, thyroxine, chloraphenamine as well as eye drops and menthol/epaderm creams. I am sure I have forgotten to add something but can't remember off the top of my head.
florrie505
in
PBC Foundation
11 years ago
Liver Panel Results & Urso
After almost 8 months on
URSO
, my liver panel bloodwork result were ALL within normal range! First time in over 8 yrs. So,
Urso
, DOES work!
After almost 8 months on
URSO
, my liver panel bloodwork result were ALL within normal range! First time in over 8 yrs. So,
Urso
, DOES work!
WendyMarie
in
PBC Foundation
11 years ago
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Does anyone suffer from blood ulsers on the tongue & inside of cheeks? I'm on Urso (PBC) & Azathioprine (AIH).
Jtxx
in
PBC Foundation
11 years ago
Positive mental attitude just washed away by Hospital Consultant
I am fat but not overly (size 18/20) Since taking
urso
I have pain in my legs and knees and she said that's caused by my weight and not tablets and that I should have a gastric band.
I am fat but not overly (size 18/20) Since taking
urso
I have pain in my legs and knees and she said that's caused by my weight and not tablets and that I should have a gastric band.
Mcinnel2
in
PBC Foundation
11 years ago
Catch 22
Came off
Urso
as they make me feel ill but i feel ill off them also. :-( I know i have to suffer it till my body gets use to them but i cant suffer them and go to work. My work very understanding to a certain extent and offered me part time till i feel better but cant afford to financially.
Came off
Urso
as they make me feel ill but i feel ill off them also. :-( I know i have to suffer it till my body gets use to them but i cant suffer them and go to work. My work very understanding to a certain extent and offered me part time till i feel better but cant afford to financially.
Hidden
in
PBC Foundation
11 years ago
hi just had a bone density scan yesterday, liver biopsy showed severe bile duct damage ??? I also have had fatty liver for 3 yrs, started
urso
,makde me feel spewy and like a puffer fish waiting to explode, none of my clothes fit and I don't want to wear kaftans for the rest of my days. im looking into chinese medicinal medicines atm as an alternative,thought my energy levels would have picked up but alas no, I never know when nap time
urso
,makde me feel spewy and like a puffer fish waiting to explode, none of my clothes fit and I don't want to wear kaftans for the rest of my days. im looking into chinese medicinal medicines atm as an alternative,thought my energy levels would have picked up but alas no, I never know when nap time
dm1360
in
PBC Foundation
11 years ago
Feeling positive..
There seems to be lots of work being done to look into other medication, obviously funded by the pharmaceutical industry, but led by the likes of dr Chapman and his colleagues in many countries On the
Urso
note, the view was if it brings down your LFTs then it will have a positive impact on the condition
There seems to be lots of work being done to look into other medication, obviously funded by the pharmaceutical industry, but led by the likes of dr Chapman and his colleagues in many countries On the
Urso
note, the view was if it brings down your LFTs then it will have a positive impact on the condition
Hidden
in
PBC Foundation
11 years ago
Anyone on here had a rising bilirubin and managed to get it done with treatment or other measures?
My bilirubin amongst the other LFTS apart from thankfully the Albumin have been rising since I stopped
Urso
last August and I am now worried that if I dont get started on something soon my liver may take a turn for the worse.
My bilirubin amongst the other LFTS apart from thankfully the Albumin have been rising since I stopped
Urso
last August and I am now worried that if I dont get started on something soon my liver may take a turn for the worse.
littlemo
in
PBC Foundation
11 years ago
Diag two weeks ago am 30 :-( Start Urso 2mro, so down and tired , the specialist said he does not need to see me for 6-12mths is this right?
I start my
urso
2mro and really hope i dont get any side effects i am starting on 250 mg 3 times a day. Do you have it at certain times and with food? xSorry to go on xx Appreciate every reply xx
I start my
urso
2mro and really hope i dont get any side effects i am starting on 250 mg 3 times a day. Do you have it at certain times and with food? xSorry to go on xx Appreciate every reply xx
donna30
in
PBC Foundation
11 years ago
Anyone on here NOT on Urso for their PBC? How are your LFTS with NOT being on this medicine?
This drug is very similar in nature to
Urso
.
This drug is very similar in nature to
Urso
.
littlemo
in
PBC Foundation
11 years ago
Finally, after 4 month I have got a rest from all the investigations!
Since being on the
Urso
my itch and fatigue have somewhat improved and I honestly can say that I currently feel better than I have in a very long time.
Since being on the
Urso
my itch and fatigue have somewhat improved and I honestly can say that I currently feel better than I have in a very long time.
littledragon23
in
PBC Foundation
11 years ago
Hiya i have been diagnosed with pbc and im on urso 2 tablets twice a day but they make me feel very sick and want to stop taking them
please can anyone give me advice
please can anyone give me advice
susan6466
in
PBC Foundation
11 years ago
I've just been diagnosed with PBC and prescribed URSO dose 250 three times a day sound the correct dose? I'm just not sure about this.
Have seen a consultant and was prescribed
Urso
who said it was my decision to take it or not. I also have nausea which comes and goes. Any advice please regarding the medication . Thank you
Have seen a consultant and was prescribed
Urso
who said it was my decision to take it or not. I also have nausea which comes and goes. Any advice please regarding the medication . Thank you
alpha3
in
PBC Foundation
11 years ago
Quality of Life
The specialist rang me not long after and told me he was going to start me on
urso
and that he would bring my appointment forward.
The specialist rang me not long after and told me he was going to start me on
urso
and that he would bring my appointment forward.
jannybean
in
PBC Foundation
11 years ago
Does anyone on here think that maybe the dosage per kilo for Urso is wrong and needs to be reviewed by those who do that? I do.
I am no longer on
Urso
and have to say I do not itch as much as I did in the ten yrs that I was on
Urso
. Unfortunately my Lfts have raised since coming off it but despite this I am doing and feeling great.
I am no longer on
Urso
and have to say I do not itch as much as I did in the ten yrs that I was on
Urso
. Unfortunately my Lfts have raised since coming off it but despite this I am doing and feeling great.
littlemo
in
PBC Foundation
11 years ago
Urso - once again!!
If these
urso
300 mg have been withdrawn suddenly - I hope that does not mean that there was a problem with what was in the ones they have been issuing to us?
If these
urso
300 mg have been withdrawn suddenly - I hope that does not mean that there was a problem with what was in the ones they have been issuing to us?
Shirleygreen
in
PBC Foundation
11 years ago
Urso difficulties obtaining
I have just been to the chemist to pick up my
urso
and have been told there is difficulties in supply. I have been off line for a bit so dont know if there have been similar questions. The chemist advised that I go back to my gp and ask for it in capsule form. Is this okay?
I have just been to the chemist to pick up my
urso
and have been told there is difficulties in supply. I have been off line for a bit so dont know if there have been similar questions. The chemist advised that I go back to my gp and ask for it in capsule form. Is this okay?
Shirleygreen
in
PBC Foundation
11 years ago
MY URSO STOPPED WORKING :-(
I am taking 300 mg of
URSO
three times a day. Do you think I will need to up the dose? Should I call my doctor? I was so hoping the
URSO
would work for me. Sigh.
I am taking 300 mg of
URSO
three times a day. Do you think I will need to up the dose? Should I call my doctor? I was so hoping the
URSO
would work for me. Sigh.
engasser
in
PBC Foundation
11 years ago
Newly diagnosed
I was given a letter for my GP asking to prescribe me
Urso
500mg twice a day & I started taking that the following week Yes, it was a relief to find out there was something wrong with my liver, but shocked to read in the leaflet I was given that studies on
Urso
failed to show any direct impact on survival
I was given a letter for my GP asking to prescribe me
Urso
500mg twice a day & I started taking that the following week Yes, it was a relief to find out there was something wrong with my liver, but shocked to read in the leaflet I was given that studies on
Urso
failed to show any direct impact on survival
vickyRhodes
in
PBC Foundation
11 years ago
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