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Urso
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Teeth sensitivity?
I am on
Urso
, budesonide and azothioprine.my teeth, not my mouth, hurt especially when I eat anything
I am on
Urso
, budesonide and azothioprine.my teeth, not my mouth, hurt especially when I eat anything
ZiggyBean
in
PBC Foundation
10 years ago
Here is Website for lab requirements to determine PBC
PBC affects about 10 in a million - that is why no drug company is going to be looking for another drug except
urso
- no money to be made by it. Bought good masticating juicer - treadmill - found also A1c high - lucky me!!!!- so now foods are limited completely. Hard to plan family meals.
PBC affects about 10 in a million - that is why no drug company is going to be looking for another drug except
urso
- no money to be made by it. Bought good masticating juicer - treadmill - found also A1c high - lucky me!!!!- so now foods are limited completely. Hard to plan family meals.
Hidden
in
PBC Foundation
10 years ago
Portal hypertensive gastropathy
Also just had my first week of
Urso
, so far so good? IF I was unlucky to have side effects would I have them in a week? Thanks in advance x
Also just had my first week of
Urso
, so far so good? IF I was unlucky to have side effects would I have them in a week? Thanks in advance x
Lisacj
in
PBC Foundation
10 years ago
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Is it normal for ALP levels to fluctuate?
I am not yet on
URSO
. My lft results today show all levels within normal range but ALP has gone from 54 up to 73 (normal is up to 135). Does anyone know is this sort of fluctuation is normal in a healthy person - or does it show the PBC is gradually starting to raise my ALP levels? Thanks!
I am not yet on
URSO
. My lft results today show all levels within normal range but ALP has gone from 54 up to 73 (normal is up to 135). Does anyone know is this sort of fluctuation is normal in a healthy person - or does it show the PBC is gradually starting to raise my ALP levels? Thanks!
Kitsilano
in
PBC Foundation
10 years ago
Swollen abdomen
I only have a LFT every year around my birthday, am not on
urso
, but when asking Doc about swollen tum she said "You need to lose weight". If I thought it was FAT, I would expect it to be around face and other areas where it is not. Is this maybe the ' acitiies ' thing.
I only have a LFT every year around my birthday, am not on
urso
, but when asking Doc about swollen tum she said "You need to lose weight". If I thought it was FAT, I would expect it to be around face and other areas where it is not. Is this maybe the ' acitiies ' thing.
Pookie18
in
PBC Foundation
10 years ago
Has anyone had Liver pain decrease after starting on urso ?
I started
urso
in December and my liver counts have come down significantly and I think my right side pain has reduced but I still can't sleep on my right side. Has anyone else had pain reduced after starting with
urso
?
I started
urso
in December and my liver counts have come down significantly and I think my right side pain has reduced but I still can't sleep on my right side. Has anyone else had pain reduced after starting with
urso
?
Robfromus
in
PBC Foundation
10 years ago
Sleeplessness.
Hi There, I was diagnosed via,a biopsy and poor liver tests,I also have underactive thyroid,and osteoporosis diagnosed via a dexa scan, I started on
Urso
, at first I was ok with the
Urso
now I can't take it, after speaking with my consultant she is happy for me not to take the meds as my liver function
Hi There, I was diagnosed via,a biopsy and poor liver tests,I also have underactive thyroid,and osteoporosis diagnosed via a dexa scan, I started on
Urso
, at first I was ok with the
Urso
now I can't take it, after speaking with my consultant she is happy for me not to take the meds as my liver function
Jaycee
in
PBC Foundation
10 years ago
Fatigue with normal LTF's
So, I have had 3 very good blood results....NORMAL.....yes normal, so the steroids,
urso
and mercaptopurine are doing their job ( AIH/PBC), but I am fatigued, overweight which I was not before, cold all the time, I don't sleep well and many more.
So, I have had 3 very good blood results....NORMAL.....yes normal, so the steroids,
urso
and mercaptopurine are doing their job ( AIH/PBC), but I am fatigued, overweight which I was not before, cold all the time, I don't sleep well and many more.
Alley27
in
PBC Foundation
10 years ago
Has anyone developed a rash on their face from taking Urso?
Ive read in the
urso
leaflet that this can be a side affect. Has anyone else suffered the same and did you get rid of it? Ive not been to the doctors about it as I'm not sure if the GP is the best person or wait untill I have my next Gastro apt.
Ive read in the
urso
leaflet that this can be a side affect. Has anyone else suffered the same and did you get rid of it? Ive not been to the doctors about it as I'm not sure if the GP is the best person or wait untill I have my next Gastro apt.
Suzzypops
in
PBC Foundation
10 years ago
Hair loss
hi, Has anyone experienced hair loss while on
Urso
?
hi, Has anyone experienced hair loss while on
Urso
?
Hidden
in
PBC Foundation
10 years ago
What grades or stages are people at? Especially in relation to urso.
Has taking
urso
brought liver counts to a normal level I should say down or are your counts stayed the same? I'm not sure how long one should give, in terms of life expectancy, and how much
urso
helps in prolonging. Probably not explained what I'd like to know - so bear with me...
Has taking
urso
brought liver counts to a normal level I should say down or are your counts stayed the same? I'm not sure how long one should give, in terms of life expectancy, and how much
urso
helps in prolonging. Probably not explained what I'd like to know - so bear with me...
Ellean
in
PBC Foundation
10 years ago
I've just started on urso, I've taken it for 1 week now , and I feel terrible. Heart burn, stomach cramps, diarrhea, flatulance
My dr. Didn't really explain anything about side effects, and she suggested I take the whole dose in one go not build up gradually. Thank goodness the pharmacist knew better. I haven t buit up to the full dose yet . I'm taking my tablets during my meals to help with the heart burn. I'm eating loads of
My dr. Didn't really explain anything about side effects, and she suggested I take the whole dose in one go not build up gradually. Thank goodness the pharmacist knew better. I haven t buit up to the full dose yet . I'm taking my tablets during my meals to help with the heart burn. I'm eating loads of
Lucylongstockings
in
PBC Foundation
10 years ago
ALP
Any one still got high ALP although taking
Urso
other blood tests ok just wondered if it can be still high due to something else causing it and not PBC my last blood test came back 525 before taking
Urso
it was 1114 very very high been on
Urso
11mts I though by now it would be normal would like to hear
Any one still got high ALP although taking
Urso
other blood tests ok just wondered if it can be still high due to something else causing it and not PBC my last blood test came back 525 before taking
Urso
it was 1114 very very high been on
Urso
11mts I though by now it would be normal would like to hear
cavi
in
PBC Foundation
10 years ago
What questions should I be asking my consultant?
So I've been diagnosed with PBC, have started
Urso
and am going back to see my consultant on Tuesday where he will have the results of blood tests (pre-
urso
), bone density scan and liver biopsy.
So I've been diagnosed with PBC, have started
Urso
and am going back to see my consultant on Tuesday where he will have the results of blood tests (pre-
urso
), bone density scan and liver biopsy.
Suziebeau
in
PBC Foundation
10 years ago
Diagnosed last feb and started on urso in June.i couldn't tolerate it properly had to go back to one capsule then after weeks tried two
Could never get a third one in.colette at pbc foundation said some
urso
was better than none.in December had a week off it and feltAMAZING.told my specialist that I thought I was allergic to the fillers so he put me on
urso
tablets.feel great on them.just wanted to let anyone know if like me they're
Could never get a third one in.colette at pbc foundation said some
urso
was better than none.in December had a week off it and feltAMAZING.told my specialist that I thought I was allergic to the fillers so he put me on
urso
tablets.feel great on them.just wanted to let anyone know if like me they're
cazz22
in
PBC Foundation
10 years ago
Omg weight gain
Hi all and happy new year, I started
urso
2 months ago and I must say although not changed clothing size i have gained a stone in weight, more so around my tummy, not sure if this is
urso
or pbc. Any advice please x
Hi all and happy new year, I started
urso
2 months ago and I must say although not changed clothing size i have gained a stone in weight, more so around my tummy, not sure if this is
urso
or pbc. Any advice please x
Sonia40
in
PBC Foundation
10 years ago
Does anyone use epsom salt to help flush toxins from their body? (Either by bathing or taking a small amount orally)
Today my joints ache and I am expecially itchy (I typically don't have too much itch and am not currently taking
URSO
).
Today my joints ache and I am expecially itchy (I typically don't have too much itch and am not currently taking
URSO
).
JennerLayne
in
PBC Foundation
10 years ago
Have any of you started itching when you started URSO?
My consultant has suggested started
URSO
and I am thinking about it. But I'm really worried about it bringing on itching which I don't currently have. As my liver function tests are normal anyway it will be hard to measure effect anyway. But I don't want to do the wrong thing.
My consultant has suggested started
URSO
and I am thinking about it. But I'm really worried about it bringing on itching which I don't currently have. As my liver function tests are normal anyway it will be hard to measure effect anyway. But I don't want to do the wrong thing.
Kitsilano
in
PBC Foundation
10 years ago
Digestive issues.
I take
urso
500 mg twice per day, prednisolone steroids, and mercaptopurine. I admit to not taking the
urso
as I was told to by my consultant but it tends to bloat me out and make me feel uncomfortable.
I take
urso
500 mg twice per day, prednisolone steroids, and mercaptopurine. I admit to not taking the
urso
as I was told to by my consultant but it tends to bloat me out and make me feel uncomfortable.
Alley27
in
PBC Foundation
10 years ago
Diet
I am taking my
urso
, and so what if I itch. I have had a lovely day today with my friend. We went to the Christmas market in Manchester....I wondered about diet. I have been reading on certain medical websites, even the mayo one and I am wondering what is the right way to go.
I am taking my
urso
, and so what if I itch. I have had a lovely day today with my friend. We went to the Christmas market in Manchester....I wondered about diet. I have been reading on certain medical websites, even the mayo one and I am wondering what is the right way to go.
Alley27
in
PBC Foundation
10 years ago
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