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Urso
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My PBC story...
I am 45 years old and I was diagnosed with PBC about 5 weeks ago and am now being treated with
URSO
250 x4 tablets (taken in the AM). My symptoms for this disease go back at least 11 years when they did an emergency surgery to remove my gall bladder.
I am 45 years old and I was diagnosed with PBC about 5 weeks ago and am now being treated with
URSO
250 x4 tablets (taken in the AM). My symptoms for this disease go back at least 11 years when they did an emergency surgery to remove my gall bladder.
Tj2929783
in
PBC Foundation
10 years ago
Hair loss
My hair started growing and doing well I started on
urso
a few weeks ago and the hair is coming out again. Does this ever stop or does it go in stages. Growth and loss?
My hair started growing and doing well I started on
urso
a few weeks ago and the hair is coming out again. Does this ever stop or does it go in stages. Growth and loss?
NotorDJP
in
PBC Foundation
10 years ago
PBC and DENIAL
I take
Urso
300mgx3/per day. In the beg i learned to cope, changed my diet, stopped drinking alcohol until now!! I have had my lfts checked twice and both times within normal range! I'm being honest here!! So I have recently started drinking again! My attitude has been?
I take
Urso
300mgx3/per day. In the beg i learned to cope, changed my diet, stopped drinking alcohol until now!! I have had my lfts checked twice and both times within normal range! I'm being honest here!! So I have recently started drinking again! My attitude has been?
Cher29
in
PBC Foundation
10 years ago
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Does anyone have exercise intolerance?
My numbers have improved with the
Urso
, so that part is good. I'm just afraid to exercise at all now because I work full time and am afraid I won't be able to make it in to work the next day. Having PBC itself doesn't worry me.
My numbers have improved with the
Urso
, so that part is good. I'm just afraid to exercise at all now because I work full time and am afraid I won't be able to make it in to work the next day. Having PBC itself doesn't worry me.
Abigail53
in
PBC Foundation
10 years ago
Help My mom was diagnosed with PBC and we need answers if anyone can help.
My mom is on
Urso
and has been for over a year. i read so much about this being a slow progressing disease is that still the case once you get the cirrhosis. She is due to have a ct scan in August.
My mom is on
Urso
and has been for over a year. i read so much about this being a slow progressing disease is that still the case once you get the cirrhosis. She is due to have a ct scan in August.
andrea042473
in
PBC Foundation
10 years ago
Why do I need to Urso with a meal?
Abigail53
in
PBC Foundation
10 years ago
Has anyone achieved any improvement in any of their symptoms by anything they've done/tried?
Just wondering if anyone has had any relief from itching/fatigue.aching etc from anything other than pain relief
urso
etc.i apprieciate everyone is different but thought anything is worth a try
Just wondering if anyone has had any relief from itching/fatigue.aching etc from anything other than pain relief
urso
etc.i apprieciate everyone is different but thought anything is worth a try
cazz22
in
PBC Foundation
10 years ago
Loose bowels on Urso. How long does it last?
I started
URSO
on Monday ( I take 1200 mgs daily) two in the morning and two at night. I seem to have tolerated pretty well so far. I have a hiatal hernia so I was concerned with acid reflux which I already treat.
I started
URSO
on Monday ( I take 1200 mgs daily) two in the morning and two at night. I seem to have tolerated pretty well so far. I have a hiatal hernia so I was concerned with acid reflux which I already treat.
NotorDJP
in
PBC Foundation
10 years ago
PBCers dietary advice??
Started
URSO
4 months ago, LFTS are almost in normal range.I have no symptoms. I am just wondering if a particular diet is recommended in PBC? When I have asked my registrar he just says a healthy balanced diet but hasn't been specific about anything.
Started
URSO
4 months ago, LFTS are almost in normal range.I have no symptoms. I am just wondering if a particular diet is recommended in PBC? When I have asked my registrar he just says a healthy balanced diet but hasn't been specific about anything.
Mumoftwo81
in
PBC Foundation
10 years ago
Hi, I have been told that raised ALT is associated with AIH/PBC overlap and not pure PBC.Does anyone have PBC and have raised ALT? Thanks
I have been on
URSO
since jan 2014 following positive AMA and raised ALP of 135. ALT has been around 60 for a year and after 6 weeks on
URSO
came down to 40. My ALP came down to 99. 6 weeks further on ALT is now up to 50.
I have been on
URSO
since jan 2014 following positive AMA and raised ALP of 135. ALT has been around 60 for a year and after 6 weeks on
URSO
came down to 40. My ALP came down to 99. 6 weeks further on ALT is now up to 50.
Mumoftwo81
in
PBC Foundation
10 years ago
primary biliary cirrhosis/ autoimmune hepatitis lapover syndrome
I have been taking
urso
doil but recent biopsy results prompting my doc to possibly add immunosupressants .
I have been taking
urso
doil but recent biopsy results prompting my doc to possibly add immunosupressants .
cocobailey
in
PBC Foundation
10 years ago
Greetings from the US and a relatively newly diagnosed BPC patient
I take my ursodeoxycholic acid (US - ursodiol; UK -
urso
. Except we tend to shorten it to
urso
, too). Am asymtomatic and believe I will die with the disease, not from it.
I take my ursodeoxycholic acid (US - ursodiol; UK -
urso
. Except we tend to shorten it to
urso
, too). Am asymtomatic and believe I will die with the disease, not from it.
Kind_of_crazy
in
PBC Foundation
10 years ago
Consultant appointment today
Good news and bad news - PBC is under control and continues to respond well to
URSO
. AIH not so great ALT levels continue to be raised so it's double up on steroids and back in a month. Hey ho life goes on with fingers crossed.
Good news and bad news - PBC is under control and continues to respond well to
URSO
. AIH not so great ALT levels continue to be raised so it's double up on steroids and back in a month. Hey ho life goes on with fingers crossed.
Yvi1960
in
PBC Foundation
10 years ago
Discomfort in right rib cage
I was diagnosed as having pbc in my second pregnancy and on
urso
. I have discomfort in the side of my right rib cage on the side/back, only way I can explain it is feels like I have a tennis ball pushing against my rib. Has anyone else experienced this?
I was diagnosed as having pbc in my second pregnancy and on
urso
. I have discomfort in the side of my right rib cage on the side/back, only way I can explain it is feels like I have a tennis ball pushing against my rib. Has anyone else experienced this?
LauraQ
in
PBC Foundation
10 years ago
I have just been diagnosed with pbc I'm having 750mgs of urso daily I feel very unwell have bad night sweats n have constant diarrhoea
I dont know what stage im at does anyone know
I dont know what stage im at does anyone know
sophie666
in
PBC Foundation
10 years ago
I now know!
He's referring me to a Hepotologist to discuss biopsy, and I've opted not to start
urso
as my lfts are normal... Still. So I guess this is where it starts at this stage! Xxxxx
He's referring me to a Hepotologist to discuss biopsy, and I've opted not to start
urso
as my lfts are normal... Still. So I guess this is where it starts at this stage! Xxxxx
skywalker
in
PBC Foundation
10 years ago
WRONG PBC DIAGNOSIS
Gave
urso
. Went for further testing a few months later at another doctor specialist in March. And found I did not have PBC! Tests should be re confirmed as Quest labs on line recommends. Am upset first doc just up and branded me initially. I do have NASH - no cirrhosis.
Gave
urso
. Went for further testing a few months later at another doctor specialist in March. And found I did not have PBC! Tests should be re confirmed as Quest labs on line recommends. Am upset first doc just up and branded me initially. I do have NASH - no cirrhosis.
Hidden
in
PBC Foundation
10 years ago
Urso dosage
Today I was put on
urso
. I am taking 1000mg per day. 500 in the am, 500 in the pm. Is this too much? I weigh 52 kg
Today I was put on
urso
. I am taking 1000mg per day. 500 in the am, 500 in the pm. Is this too much? I weigh 52 kg
Pea1234
in
PBC Foundation
10 years ago
Here is Website for lab requirements to determine PBC
PBC affects about 10 in a million - that is why no drug company is going to be looking for another drug except
urso
- no money to be made by it. Bought good masticating juicer - treadmill - found also A1c high - lucky me!!!!- so now foods are limited completely. Hard to plan family meals.
PBC affects about 10 in a million - that is why no drug company is going to be looking for another drug except
urso
- no money to be made by it. Bought good masticating juicer - treadmill - found also A1c high - lucky me!!!!- so now foods are limited completely. Hard to plan family meals.
Hidden
in
PBC Foundation
10 years ago
Teeth sensitivity?
I am on
Urso
, budesonide and azothioprine.my teeth, not my mouth, hurt especially when I eat anything
I am on
Urso
, budesonide and azothioprine.my teeth, not my mouth, hurt especially when I eat anything
ZiggyBean
in
PBC Foundation
10 years ago
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