Search
Search
About
Log in
Join
Experiences with
Urso
Posts
Communities
1,408 public posts
Filter results
Swallowing problems
I have been on
urso
ten months Had one episode of problem swallowing for 2 weeks Within past week is returning and swallowing painful Has anyone experienced this?
I have been on
urso
ten months Had one episode of problem swallowing for 2 weeks Within past week is returning and swallowing painful Has anyone experienced this?
Ljonesfnp
in
PBC Foundation
7 years ago
Call to arms...
Those with symptoms, those still not on
Urso
, those struggling to get to a consultant, etc... we need your input. Those with success stories, we need your input. We need you. Please help us to make life better for PBC patients, now and forever. Please, Robert.
Those with symptoms, those still not on
Urso
, those struggling to get to a consultant, etc... we need your input. Those with success stories, we need your input. We need you. Please help us to make life better for PBC patients, now and forever. Please, Robert.
PBCRobert
Administrator
in
PBC Foundation
7 years ago
Primary biliary cholangitis
I've been on the
urso
acid with no change and wondered if anyone could provide me with any info or treatment's?
I've been on the
urso
acid with no change and wondered if anyone could provide me with any info or treatment's?
HCantThinkOfA
in
British Liver Trust
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
PBC Antibody GP 210 What does it mean?
Once confirmed
Urso
is the go to treatment and that there is hope that if treatment is working I have a chance. I will be monitored more than usual and that gives me and anybody with this diagnosis some reassurance.
Once confirmed
Urso
is the go to treatment and that there is hope that if treatment is working I have a chance. I will be monitored more than usual and that gives me and anybody with this diagnosis some reassurance.
Jo_Br
in
PBC Foundation
7 years ago
AIH/PBC pregnancy
Im good, felling great, have 1 bud per day, aza and
urso
. Feeling good, have no symptoms.Are there any problems concieve with both AIH/PBC OR WITH PREGNANCY AS SUCH? Can there be more problems to concieve or with pregnancy with bot, Aih/PBC (overlapse) then with only one of them? Thank u
Im good, felling great, have 1 bud per day, aza and
urso
. Feeling good, have no symptoms.Are there any problems concieve with both AIH/PBC OR WITH PREGNANCY AS SUCH? Can there be more problems to concieve or with pregnancy with bot, Aih/PBC (overlapse) then with only one of them? Thank u
anny84
in
British Liver Trust
7 years ago
Test result
Ok just a little fibrose and now i have to take
urso
500 mg And a bone scan to see for osteoporosis. Any way Im happy with the results so fa en hope that the
urso
will do his job. Greet Marianne
Ok just a little fibrose and now i have to take
urso
500 mg And a bone scan to see for osteoporosis. Any way Im happy with the results so fa en hope that the
urso
will do his job. Greet Marianne
marianne349
in
PBC Foundation
7 years ago
New member here
I am wondering if anyone else here had been taking
Urso
for a long time, then stopped for a while and noticed any changes. Also, has anyone had a drastic cost increase in
Urso
? Thanks!
I am wondering if anyone else here had been taking
Urso
for a long time, then stopped for a while and noticed any changes. Also, has anyone had a drastic cost increase in
Urso
? Thanks!
eahicks68
in
PBC Foundation
7 years ago
Delayed reactions to urso
Hi, everyone, I've been taking
urso
for about five months. I felt fine up to about a month/six weeks ago but now I'm experiencing a horrible taste that just won't go away and some nausea. Has anyone else experienced this? I don't know what to do about it.
Hi, everyone, I've been taking
urso
for about five months. I felt fine up to about a month/six weeks ago but now I'm experiencing a horrible taste that just won't go away and some nausea. Has anyone else experienced this? I don't know what to do about it.
tinypixie
in
PBC Foundation
7 years ago
Shivering at night
Hi just been diagnosed over phone with possible pbc (apparently somebody made mistake with blood test) when I asked what is that dr told me to google it - he has prescribed
Urso
- only been taking a few days however the last 3 nights I have been shivering and shaking yet I am burning up on the outside
Hi just been diagnosed over phone with possible pbc (apparently somebody made mistake with blood test) when I asked what is that dr told me to google it - he has prescribed
Urso
- only been taking a few days however the last 3 nights I have been shivering and shaking yet I am burning up on the outside
Cazzie56
in
PBC Foundation
7 years ago
tudca
She can not take
urso
because of side effects and has started oca but within a week the side effects are back. I would love to hear of your experience with Tudca.
She can not take
urso
because of side effects and has started oca but within a week the side effects are back. I would love to hear of your experience with Tudca.
bostonjim
in
PBC Foundation
7 years ago
Newbie here, just making introductions
My new doc put me on
Urso
about three months ago. My AST and ALT are around 65 now, and I had my biopsy yesterday, so hoping for an a actual diagnosis soon. As far as symptoms, I have the itch.
My new doc put me on
Urso
about three months ago. My AST and ALT are around 65 now, and I had my biopsy yesterday, so hoping for an a actual diagnosis soon. As far as symptoms, I have the itch.
CoCoMcD
in
PBC Foundation
7 years ago
Yeast infection and Urso
Anyone has an on-going vaginal yeast infection since starting taking
Urso
? If you do, how do you treat it? What helps? I'd appreciate your input!
Anyone has an on-going vaginal yeast infection since starting taking
Urso
? If you do, how do you treat it? What helps? I'd appreciate your input!
iagra
in
PBC Foundation
7 years ago
Diarrhea after CT-Scan
I `ve been on
URSO
since April 21st ( 2X 500 mg, twice a day) and I was pretty OK before the Scan. Have Had anyone this experience-difficulty to be stabilized?
I `ve been on
URSO
since April 21st ( 2X 500 mg, twice a day) and I was pretty OK before the Scan. Have Had anyone this experience-difficulty to be stabilized?
ritarobainapbc
in
PBC Foundation
7 years ago
Labs are normal
I keep reading most people gain weight with
urso
. Just dont know what yo do anymore.
I keep reading most people gain weight with
urso
. Just dont know what yo do anymore.
Bakerc
in
PBC Foundation
7 years ago
Leg problems and Pbc
Hi I was diagnosed with Pbc and taking the
urso
. The problem I'm having is with my knees mainly. I get knee (patella )tendonopathy every two-3months and now it varies either left or right. I take very strong pain killers which don't help the liver but the pain is terrible without.
Hi I was diagnosed with Pbc and taking the
urso
. The problem I'm having is with my knees mainly. I get knee (patella )tendonopathy every two-3months and now it varies either left or right. I take very strong pain killers which don't help the liver but the pain is terrible without.
Twinkle26
in
PBC Foundation
7 years ago
Milk thistle for PBC?
Anyone on them w/o
URSO
or even with
URSO
?
Anyone on them w/o
URSO
or even with
URSO
?
krazy-girl
in
PBC Foundation
7 years ago
Newbie - Urso
I have just been prescribed 250mg per day of
Urso
to see how it goes. The pharmacist said the
Urso
will probably cause me diarrhoea for the first week and then possibly the itching a lot of people speak about. Does the
Urso
cause the itching or does the disease cause the itching?
I have just been prescribed 250mg per day of
Urso
to see how it goes. The pharmacist said the
Urso
will probably cause me diarrhoea for the first week and then possibly the itching a lot of people speak about. Does the
Urso
cause the itching or does the disease cause the itching?
Tetris73
in
PBC Foundation
7 years ago
Pbc diet?
Hi I was diagnosed 2 years ago but I only started
Urso
yesterday, I've got other medical conditions and I'm currently receiving vedolizumab for UC! As a result of different meds for my UC my weight has gone up by 2 stone. The fatigue is chronic I was sleeping constantly and itching profusely!!
Hi I was diagnosed 2 years ago but I only started
Urso
yesterday, I've got other medical conditions and I'm currently receiving vedolizumab for UC! As a result of different meds for my UC my weight has gone up by 2 stone. The fatigue is chronic I was sleeping constantly and itching profusely!!
bronnieduffy
in
PBC Foundation
7 years ago
Advice please 🤔
I am currently on 1000mg a day of
urso
for PBC, My PBC isn't caused from alcohol as I am a non drinker , however I have 2 family weddings within a few weeks of one another and I would for just on these 2 occasions like to toast the happy couples , is drinking alcohol going to cause me problems or do
I am currently on 1000mg a day of
urso
for PBC, My PBC isn't caused from alcohol as I am a non drinker , however I have 2 family weddings within a few weeks of one another and I would for just on these 2 occasions like to toast the happy couples , is drinking alcohol going to cause me problems or do
Hidden
in
PBC Foundation
7 years ago
Has any one diagnosed with PBC gone untreated for any length of time?
I ask because I first had an allergic response to
Urso
then when we tried again I was classified as a none responder. So I lived with the PBC diagnosis for five years without treatment. I now am on Ocaliva. Just wondering how many of us have gone extended periods without treatment. Kathy
I ask because I first had an allergic response to
Urso
then when we tried again I was classified as a none responder. So I lived with the PBC diagnosis for five years without treatment. I now am on Ocaliva. Just wondering how many of us have gone extended periods without treatment. Kathy
Q8Cooper
in
PBC Foundation
7 years ago
1
...
38
39
40
...
71
Next page
10
20
30
40
50
60
70
Filter results
Clear filters
Posted in
All communities
PBC Foundation
1271 results
British Liver Trust
79 results
PBCers Organization
35 results
View top 10 communities
Sort by
Most Relevant
Newest