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Experiences with
Urso
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Other medicine
One of
URSO
side effects is hair loss ... can we take Biotin when taking
URSO
?? Also ... can we take Mucinex ??
One of
URSO
side effects is hair loss ... can we take Biotin when taking
URSO
?? Also ... can we take Mucinex ??
1155Cat
in
PBC Foundation
5 years ago
Sunshine
And if it is true ... is it because of the
URSO
or just because of PBC ???
And if it is true ... is it because of the
URSO
or just because of PBC ???
1155Cat
in
PBC Foundation
5 years ago
Alkaline phosphate number ??
Hi just wondering if someone Could help, I was diagnosed 3 years ago but only just about to start
URSO
. Just received letter from consultant which stated my alkaline phosphate was 197, consultant has never explained much about PBC or what the numbers mean. Is this normal number or high ??
Hi just wondering if someone Could help, I was diagnosed 3 years ago but only just about to start
URSO
. Just received letter from consultant which stated my alkaline phosphate was 197, consultant has never explained much about PBC or what the numbers mean. Is this normal number or high ??
Mnoye
in
PBC Foundation
5 years ago
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Fibroscan shows slight fatty liver
I was diagnosed early stage 1 in 2000 and have responded well to
Urso
, LFT's came back to almost normal in the first year and have stayed there since. I went for a fibroscan yesterday.
I was diagnosed early stage 1 in 2000 and have responded well to
Urso
, LFT's came back to almost normal in the first year and have stayed there since. I went for a fibroscan yesterday.
kizzywizzy99
in
PBC Foundation
5 years ago
UV light therapy
I am currently unresponsive to
urso
and find my itch is getting progressively worse but is always worse in the winter x Thanks in advance Charlene
I am currently unresponsive to
urso
and find my itch is getting progressively worse but is always worse in the winter x Thanks in advance Charlene
Char_char1980
in
PBC Foundation
5 years ago
Diagnosed and confused
Should I be getting the amount of
urso
the pcbf suggests or is that just a rough guide? I've read a lot about the early stages and a lot about transplants, but not found much about the middle bit. How long can you last with cirrhosis before things get ugly?
Should I be getting the amount of
urso
the pcbf suggests or is that just a rough guide? I've read a lot about the early stages and a lot about transplants, but not found much about the middle bit. How long can you last with cirrhosis before things get ugly?
hells456
in
PBC Foundation
5 years ago
Protein shakes
I don’t have cirrhosis yet I am
urso
responder stage 2 pbc. Any recommendations are appreciated 🙏🏻🙏🏻🙏🏻
I don’t have cirrhosis yet I am
urso
responder stage 2 pbc. Any recommendations are appreciated 🙏🏻🙏🏻🙏🏻
Sona_akb
in
PBC Foundation
5 years ago
Symptoms of non responder to urso
Can anyone tell me what the symptoms are if you are a non responder to
urso
. Thanks everyone.
Can anyone tell me what the symptoms are if you are a non responder to
urso
. Thanks everyone.
Spanishnan
in
PBC Foundation
5 years ago
Travel Insurance and PBC
LFTs showed a bit of an increase a few years ago so I started on
Urso
and luckily was a responder. LFTs settled down again and I just have an annual blood test. At one point the consultant said that I don't actually have PBC but I am at risk of it developing at some stage.
LFTs showed a bit of an increase a few years ago so I started on
Urso
and luckily was a responder. LFTs settled down again and I just have an annual blood test. At one point the consultant said that I don't actually have PBC but I am at risk of it developing at some stage.
swinstan
in
PBC Foundation
5 years ago
Very negative Newspaper article abou PBC and AIH
Fortunately my LFT's are now within the normal range due to being an
Urso
responder and possibly rule out AIH. My sister showed me an article about PBC and the headlines were "I felt ok and fit then I was given a death sentance " !!!!!! A very negative article.
Fortunately my LFT's are now within the normal range due to being an
Urso
responder and possibly rule out AIH. My sister showed me an article about PBC and the headlines were "I felt ok and fit then I was given a death sentance " !!!!!! A very negative article.
Beatrice110924
in
PBC Foundation
5 years ago
1st appointment. What to ask
I'm taking
Urso
daily. Tomorrow is my first appointment since august. I expect they will explain results from the various tests. Is there anything specific I should ask them? Should I ask for bone density test? Is that done as standard or only if other concerns?
I'm taking
Urso
daily. Tomorrow is my first appointment since august. I expect they will explain results from the various tests. Is there anything specific I should ask them? Should I ask for bone density test? Is that done as standard or only if other concerns?
Trots
in
PBC Foundation
5 years ago
2nd MRE Score....
I'm only taking
URSO
. Guess it's not slowing fibrosis. I dont know. OCA was a wash as in 30 days plus on it my ALT and AST went in the red. So, my hepatologist took me off. Well, that's it. Any comments about how you're doing, insights, wisdom, or good jokes welcomed ❤.
I'm only taking
URSO
. Guess it's not slowing fibrosis. I dont know. OCA was a wash as in 30 days plus on it my ALT and AST went in the red. So, my hepatologist took me off. Well, that's it. Any comments about how you're doing, insights, wisdom, or good jokes welcomed ❤.
Ktltel
in
PBC Foundation
5 years ago
Dosage chart for Urso
This chart is from the early days of 250 mg tablets so if you take 500 mg you would be taking less pills but the total mags per day would be the same.
This chart is from the early days of 250 mg tablets so if you take 500 mg you would be taking less pills but the total mags per day would be the same.
PBCCarol
in
PBCers Organization
5 years ago
MRI with Contrast /PBC
I asked my doctor about staging, , my liver numbers are normal since being on
urso
and he said the mri tells him enough of a picture. I see everyone getting staged , should I be concerned?
I asked my doctor about staging, , my liver numbers are normal since being on
urso
and he said the mri tells him enough of a picture. I see everyone getting staged , should I be concerned?
tnchikadee
in
British Liver Trust
5 years ago
Recently diagnosed
Has anyone else experienced similar concerns or been advised that they should not take HRT in conjunction with
URSO
?
Has anyone else experienced similar concerns or been advised that they should not take HRT in conjunction with
URSO
?
Ronald1
in
PBC Foundation
5 years ago
Increased urination with urso
Just wondered if anyone else has experienced having to go to the loo at least twice an hour when taking
Urso
. Very inconvenient! Last night was up 4 times through the night so disturbing sleep patterns too. Just started taking a couple of weeks ago so maybe just teething problems.
Just wondered if anyone else has experienced having to go to the loo at least twice an hour when taking
Urso
. Very inconvenient! Last night was up 4 times through the night so disturbing sleep patterns too. Just started taking a couple of weeks ago so maybe just teething problems.
JenniferTh
in
PBC Foundation
5 years ago
New to Group
I’m currently on
Urso
and Fenofibrate. My ALP and all my other numbers are now in the normal range except ALT, and just found out I have NASH as well. I started a vegan diet 6 months ago and went in for blood work yesterday. Fingers crossed!
I’m currently on
Urso
and Fenofibrate. My ALP and all my other numbers are now in the normal range except ALT, and just found out I have NASH as well. I started a vegan diet 6 months ago and went in for blood work yesterday. Fingers crossed!
Shiloh01
in
PBCers Organization
5 years ago
Annual update, DNA testing, Gastric Bypass, Fungal Skin Infection, Brittle Nails, Looking for GI doc
Still not on
URSO
but thankfully have not experienced the generalized puritis since 2010. I did have a biopsy on my arm this past year, concern for skin cancer but the biopsy revealed a fungal infection deep under my skin.
Still not on
URSO
but thankfully have not experienced the generalized puritis since 2010. I did have a biopsy on my arm this past year, concern for skin cancer but the biopsy revealed a fungal infection deep under my skin.
Cooper6
in
PBC Foundation
5 years ago
Studies about Biliary Atresia
And medical treatment is also very limited (
URSO
, some antibiotic to prevent Colengetisis etc) and they are also not cure. Liver keeps suffering most of the time. I know first sentences may break your hearth and maybe makes you feel worse.
And medical treatment is also very limited (
URSO
, some antibiotic to prevent Colengetisis etc) and they are also not cure. Liver keeps suffering most of the time. I know first sentences may break your hearth and maybe makes you feel worse.
Pearon
in
Children's Liver Disease Foundation
5 years ago
More medications
There’s no way I can take
Urso
in this time scale so this is where the magic wand can work wonders 🤦♀️🤷♀️. Is it just me with brain fog or is there another way to fit all the meds in, including levothyroxine?
There’s no way I can take
Urso
in this time scale so this is where the magic wand can work wonders 🤦♀️🤷♀️. Is it just me with brain fog or is there another way to fit all the meds in, including levothyroxine?
P13jne
in
PBC Foundation
5 years ago
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