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Urso
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Itchy skin
I mentioned it to my liver consultant but he just said I’ll up your dose on
urso
acid but is this really going to help as I’ve read there is other medication for itching symptoms ? Feel so alone
I mentioned it to my liver consultant but he just said I’ll up your dose on
urso
acid but is this really going to help as I’ve read there is other medication for itching symptoms ? Feel so alone
Shezza123
in
British Liver Trust
5 years ago
Numbers
I have a problem understanding my numbers, I was at my consultant yesterday, he gave me my numbers as follows, Bilirubin 8, alk phos 118, alt 14 can anyone tell me if this is ok, he says they are good, What is AMA & Albumin, I'm getting very confused with it all, I don't and never have, had the
Urso
,
I have a problem understanding my numbers, I was at my consultant yesterday, he gave me my numbers as follows, Bilirubin 8, alk phos 118, alt 14 can anyone tell me if this is ok, he says they are good, What is AMA & Albumin, I'm getting very confused with it all, I don't and never have, had the
Urso
,
Jaycee
in
PBC Foundation
5 years ago
Living with PBC
I continue the
Urso
but hopefully now I can avoid the flares. I'm also going to see if I can reverse some of the liver damage buy doing the Hulda Clark liver cleanse. I will get back to everyone in a month to give you my results.
I continue the
Urso
but hopefully now I can avoid the flares. I'm also going to see if I can reverse some of the liver damage buy doing the Hulda Clark liver cleanse. I will get back to everyone in a month to give you my results.
Joncel36
in
PBC Foundation
5 years ago
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Newly diagnosed...slow start to treatment
Had a call from the private consultant on 26th October and h has referred me back to the NHS consultant who did the biopsy for treatment with
urso
. So far have heard nothing - has anyone had experience of how long it takes to get from diagnosis to start of treatment.
Had a call from the private consultant on 26th October and h has referred me back to the NHS consultant who did the biopsy for treatment with
urso
. So far have heard nothing - has anyone had experience of how long it takes to get from diagnosis to start of treatment.
JenniferTh
in
PBC Foundation
5 years ago
Bloodwork?
next week I don't know what questions I should be asking, I have had PBC for a lot of years but kind of ignored it as I seem to be asymptomatic so havn't bothered about it too much, but I believe varices are a progression so it's time I took control of this, I have only ever had 1 biopsy, I don't take
Urso
next week I don't know what questions I should be asking, I have had PBC for a lot of years but kind of ignored it as I seem to be asymptomatic so havn't bothered about it too much, but I believe varices are a progression so it's time I took control of this, I have only ever had 1 biopsy, I don't take
Urso
Jaycee
in
PBC Foundation
5 years ago
Urso I. Spain
Hi everyone, I have just received my first prescription of
urso
in spain. It is still in casual form like I had in the UK but a yellow and green one. My normal one was white. My Dr has put on the prescription, take one every eight hours. I normally take all three after breakfast.
Hi everyone, I have just received my first prescription of
urso
in spain. It is still in casual form like I had in the UK but a yellow and green one. My normal one was white. My Dr has put on the prescription, take one every eight hours. I normally take all three after breakfast.
Spanishnan
in
PBC Foundation
5 years ago
Numbers went up
I did not take my
Urso
for 4-5 days due to being sick and just not taking my medicine ! Ugh 😑
I did not take my
Urso
for 4-5 days due to being sick and just not taking my medicine ! Ugh 😑
1155Cat
in
PBC Foundation
5 years ago
Any advice
The
Urso
seemed hit the spot for a while, symptoms eased for few weeks. Then different ones would appear, visited doc few times, he suggested search Google which I had😱 as he wasn’t clued up on Liver problems, and also to contact Liver Nurse.
The
Urso
seemed hit the spot for a while, symptoms eased for few weeks. Then different ones would appear, visited doc few times, he suggested search Google which I had😱 as he wasn’t clued up on Liver problems, and also to contact Liver Nurse.
Hidden
in
British Liver Trust
5 years ago
Urso post transplant
However, the hepatologist broached the subject with me today, which surprised me, and said there is now some recent study evidence to show that taking
Urso
post tp for pbc sufferers may be advantageous and has now put me back on it, albeit a slightly lower dose than before Anyone else heard of this??
However, the hepatologist broached the subject with me today, which surprised me, and said there is now some recent study evidence to show that taking
Urso
post tp for pbc sufferers may be advantageous and has now put me back on it, albeit a slightly lower dose than before Anyone else heard of this??
Huggy7614
in
PBC Foundation
5 years ago
I’m new here
I will be starting
Urso
tomorrow. Is sit normal not to be seen sooner? Basically any info I have found is on here was not really told anything at my appointment today
I will be starting
Urso
tomorrow. Is sit normal not to be seen sooner? Basically any info I have found is on here was not really told anything at my appointment today
kast18
in
PBC Foundation
5 years ago
Urso post transplant
However, the hepatologist broached the subject with me, which surprised me, and said there is now some recent study evidence to show that taking
Urso
post tp for pbc sufferers may be advantageous and has now put me back on it, albeit a slightly lower dose than before Anyone else heard of this??
However, the hepatologist broached the subject with me, which surprised me, and said there is now some recent study evidence to show that taking
Urso
post tp for pbc sufferers may be advantageous and has now put me back on it, albeit a slightly lower dose than before Anyone else heard of this??
Huggy7614
in
British Liver Trust
5 years ago
Hello everyone
I'm on
urso
now but I'm confused about quite a lot. I don't know what stage I'm at or what to eat or not, how much exercise. All I can remember really from the conversation was I could have 3, 5 or 10 years and 20% chance of transplant, give up smoking and eat a balanced diet.
I'm on
urso
now but I'm confused about quite a lot. I don't know what stage I'm at or what to eat or not, how much exercise. All I can remember really from the conversation was I could have 3, 5 or 10 years and 20% chance of transplant, give up smoking and eat a balanced diet.
Totumpole
in
PBC Foundation
5 years ago
Could high AMA be something else?
So March doc gives me
urso
3 weeks later all levels normal ALP cut more than half. Had mri showed no liver/ bile damage all normal but AMA still 181. Now 6 mths later still taking
urso
all levels well within normal but AMA still 181. So can this AMA produce a false positive for PBC?
So March doc gives me
urso
3 weeks later all levels normal ALP cut more than half. Had mri showed no liver/ bile damage all normal but AMA still 181. Now 6 mths later still taking
urso
all levels well within normal but AMA still 181. So can this AMA produce a false positive for PBC?
tnchikadee
in
PBC Foundation
5 years ago
The Dreaded Itch
I began taking
Urso
, Prednisone and Imuran 4 wks ago and excited there was still no itching. I thought it was over for good. until today and tonight...Ugh!!..I'm so upset It's back again...a stinging itch all over my body but predominantly on my arms, scalp, and palms. Is this typical?
I began taking
Urso
, Prednisone and Imuran 4 wks ago and excited there was still no itching. I thought it was over for good. until today and tonight...Ugh!!..I'm so upset It's back again...a stinging itch all over my body but predominantly on my arms, scalp, and palms. Is this typical?
positivethoughts03
in
PBC Foundation
5 years ago
Clinical trial for Seladelpar
Diagnosed and have been on
URSO
for 20+ years. Had good results until a couple of years ago. Specialist decided I needed to add OKA to see if the combination wold help.
Diagnosed and have been on
URSO
for 20+ years. Had good results until a couple of years ago. Specialist decided I needed to add OKA to see if the combination wold help.
kat750
in
PBC Foundation
5 years ago
Dizzy spells
Could it be anything to do with
urso
? Didn't have these problems before I started taking them🤔🤔🤔
Could it be anything to do with
urso
? Didn't have these problems before I started taking them🤔🤔🤔
Spanishnan
in
British Liver Trust
5 years ago
Upper right quadrant pain
I was diagnosed with PBC 2 1/2 years ago after a slightly elevated ALT 32.. the blood tests revealed AMA 1:641, I was referred to a gastroenterologist who prescribed 500mg
Urso
2x/day. Up until then the only symptoms i had were itching and fatigue.
I was diagnosed with PBC 2 1/2 years ago after a slightly elevated ALT 32.. the blood tests revealed AMA 1:641, I was referred to a gastroenterologist who prescribed 500mg
Urso
2x/day. Up until then the only symptoms i had were itching and fatigue.
Lili1214
in
PBC Foundation
5 years ago
Itch
Hi guys I need help, I am currently taking
URSO
after having a break for a year, never did I have this itch ! Seems to get worse in the evening , What would you suggest to help take the itch away!!!
Hi guys I need help, I am currently taking
URSO
after having a break for a year, never did I have this itch ! Seems to get worse in the evening , What would you suggest to help take the itch away!!!
susanashworth
in
PBC Foundation
5 years ago
Hot flushes...menopause or PBC?
I managed to get numbers down with herbal remedy in combination with my usual
URSO
. I still take both but I’m wondering if they’re not working again. It’s just such a faff trying to get a drs appointment here in the UK.
I managed to get numbers down with herbal remedy in combination with my usual
URSO
. I still take both but I’m wondering if they’re not working again. It’s just such a faff trying to get a drs appointment here in the UK.
Hils67
in
PBC Foundation
5 years ago
Three months since diagnosis and Urso
I’m trying to gain some insight if this is my new life with PBC and
URSO
or of this is all a big coincidence. Thank you everyone! Xoxo
I’m trying to gain some insight if this is my new life with PBC and
URSO
or of this is all a big coincidence. Thank you everyone! Xoxo
Katienharley
in
PBC Foundation
5 years ago
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