Search
Search
About
Log in
Join
Experiences with
Urso
Posts
Communities
1,384 public posts
Filter results
Raised red spots - spider nevi
I have been fortunate since being on
urso
750 mg daily since March 2000 to have no itch and to be perfectly honest apart from being a bit tired wouldn't know I had pbc until 10 days ago!!! The itch has returned big time, but thankfully only at night.
I have been fortunate since being on
urso
750 mg daily since March 2000 to have no itch and to be perfectly honest apart from being a bit tired wouldn't know I had pbc until 10 days ago!!! The itch has returned big time, but thankfully only at night.
madtomdani
in
PBC Foundation
10 years ago
Cold sensation running through body
I have both an underactive thyroid for which I take levothyroxine and also pbc for which I take
urso
.
I have both an underactive thyroid for which I take levothyroxine and also pbc for which I take
urso
.
Hidden
in
Thyroid UK
10 years ago
Urso time limit?
They heard the last doctor that spoke, state that
Urso
does what its going to do, in the first 5 years of taking it. Does anyone know how long
Urso
works?
They heard the last doctor that spoke, state that
Urso
does what its going to do, in the first 5 years of taking it. Does anyone know how long
Urso
works?
WendyMarie
in
PBC Foundation
10 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Advice for someone who is getting angry please.
I was diagnosed jan 2013(after findings of nodules on liver/pancreas)my bloods have never been high but they put me on
urso
last summer.to cut a long story short I am only on a reduced dose of450mg due to not tolerating it well however bloods almost back to normal.the consultant I saw in April said not
I was diagnosed jan 2013(after findings of nodules on liver/pancreas)my bloods have never been high but they put me on
urso
last summer.to cut a long story short I am only on a reduced dose of450mg due to not tolerating it well however bloods almost back to normal.the consultant I saw in April said not
cazz22
in
PBC Foundation
10 years ago
Yeast infections
I was diagnosed with pbc bsck in June and currently on 2000 mg of
urso
per day. I also read that women prone to yeast infections have a higher risk of getting pbc. Any advice on ridding this problem woukd be greatly appreciated. I'm tired of this every month :(
I was diagnosed with pbc bsck in June and currently on 2000 mg of
urso
per day. I also read that women prone to yeast infections have a higher risk of getting pbc. Any advice on ridding this problem woukd be greatly appreciated. I'm tired of this every month :(
Jen11804
in
PBC Foundation
10 years ago
Diarrhoea
I have had diarrhoea for the last couple of weeks which I believe is due to
Urso
, I take the Urofalk capsules , supposed to take four 250mg per day. Cut down to three to see if that helps, I have now decided to stop
Urso
completely for two weeks to be sure it really is the
Urso
.
I have had diarrhoea for the last couple of weeks which I believe is due to
Urso
, I take the Urofalk capsules , supposed to take four 250mg per day. Cut down to three to see if that helps, I have now decided to stop
Urso
completely for two weeks to be sure it really is the
Urso
.
Newsroom
in
PBC Foundation
10 years ago
Getting worried
Does this mean that the although
urso
seems to improve my bloods and has stopped my itching that it isn't preventing my liver deteriorating? Not feeling very positive at the moment but neither do I want to worry those close to me.
Does this mean that the although
urso
seems to improve my bloods and has stopped my itching that it isn't preventing my liver deteriorating? Not feeling very positive at the moment but neither do I want to worry those close to me.
mojo62
in
PBC Foundation
10 years ago
Diagnosed yesterday with PBC
I will be prescribed
urso
and the doctor wants me to have a biopsy to check staging. Unfortunately I have always suffered from health anxiety and feel that by having the biopsy it will make my anxiety worse if for example I was diagnosed with stage 4.
I will be prescribed
urso
and the doctor wants me to have a biopsy to check staging. Unfortunately I have always suffered from health anxiety and feel that by having the biopsy it will make my anxiety worse if for example I was diagnosed with stage 4.
Sammie6
in
PBC Foundation
10 years ago
Finally, some good news!!
Got my first set of blood work back after being on
Urso
for 3 months and my levels are coming down! My ALP went from 500 to 300, and my ALT and AST are now in normal ranges.
Got my first set of blood work back after being on
Urso
for 3 months and my levels are coming down! My ALP went from 500 to 300, and my ALT and AST are now in normal ranges.
NotorDJP
in
PBC Foundation
10 years ago
PBC/AIH or not?
I was diagnosed with PBC a couple of months ago and have been on
urso
since, it does seem to be helping with the fatigue so far. After seeing a consultant he said I should have a biopsy which I have now had and am awaiting the results.
I was diagnosed with PBC a couple of months ago and have been on
urso
since, it does seem to be helping with the fatigue so far. After seeing a consultant he said I should have a biopsy which I have now had and am awaiting the results.
Godfrey1
in
PBC Foundation
10 years ago
Urso side effects?
My consultant wants me to monitor for 8 weeks but I feel completely wiped out by this and the only constant I see is the
Urso
:-( Has anyone experienced something similar? All tips greatfully received! Em x
My consultant wants me to monitor for 8 weeks but I feel completely wiped out by this and the only constant I see is the
Urso
:-( Has anyone experienced something similar? All tips greatfully received! Em x
CheshireEm
in
PBC Foundation
10 years ago
Pbc
I'm currently taking 2000 mg of
urso
daily and I feel ok. I mean no real side affects as of yet. Except for itching which I'm not sure is the
urso
or the pbc. Just wondering if anyone has any further information in this disease.
I'm currently taking 2000 mg of
urso
daily and I feel ok. I mean no real side affects as of yet. Except for itching which I'm not sure is the
urso
or the pbc. Just wondering if anyone has any further information in this disease.
Jen11804
in
British Liver Trust
10 years ago
Pbc
I'm currently taking 2000 mg of
urso
daily and I feel ok. I mean no real side affects as of yet. Except for itching which I'm not sure is the
urso
or the pbc. Just wondering if anyone has any further information in this disease. My husband seems to think I'm tsking
urso
now do I will be fine.
I'm currently taking 2000 mg of
urso
daily and I feel ok. I mean no real side affects as of yet. Except for itching which I'm not sure is the
urso
or the pbc. Just wondering if anyone has any further information in this disease. My husband seems to think I'm tsking
urso
now do I will be fine.
Jen11804
in
PBC Foundation
10 years ago
Follow up appointments
I started on
urso
at the end of January, but my gastro didn't arrange any follow up blood tests. I just took the medication leaflet to my GP who followed me up,with monthly blood tests for 3 months and then another blood test at 6 months.
I started on
urso
at the end of January, but my gastro didn't arrange any follow up blood tests. I just took the medication leaflet to my GP who followed me up,with monthly blood tests for 3 months and then another blood test at 6 months.
Lucylongstockings
in
PBC Foundation
10 years ago
Urso?
Each time I get fill to a new prescription the chemist give me a different brand or the generic version. Rather annoys me. Any way my question is the current lot I have just picked up have for titanium dioxide in,(none of the other brand listed it) It has been classified as a carcinogenic, even used
Each time I get fill to a new prescription the chemist give me a different brand or the generic version. Rather annoys me. Any way my question is the current lot I have just picked up have for titanium dioxide in,(none of the other brand listed it) It has been classified as a carcinogenic, even used
Lisacj
in
PBC Foundation
10 years ago
Urso unavailable??
I have been on
Urso
18 months. Recently told by 2 pharmacies that
Urso
is on back order & will be at least a month before it is available. I find that very strange. Worse yet, is the fact that I called my gastro Dr. & asked if she could prescribe something else.
I have been on
Urso
18 months. Recently told by 2 pharmacies that
Urso
is on back order & will be at least a month before it is available. I find that very strange. Worse yet, is the fact that I called my gastro Dr. & asked if she could prescribe something else.
WendyMarie
in
PBC Foundation
10 years ago
Help please ... flu-like symptoms
Diagnosed w/ PBC late Feb 2014, blood work has continuously improved since starting
Urso
. My problem is that I feel like I have the flu (achy muscles and joints, and extreme fatigue, but NO FEVER AND NO HEAD COLD SYMPTOMS). I was in bed all day Sat and Sun, and missed work Mon (yesterday).
Diagnosed w/ PBC late Feb 2014, blood work has continuously improved since starting
Urso
. My problem is that I feel like I have the flu (achy muscles and joints, and extreme fatigue, but NO FEVER AND NO HEAD COLD SYMPTOMS). I was in bed all day Sat and Sun, and missed work Mon (yesterday).
Abigail53
in
PBC Foundation
10 years ago
Biopsy yes or no?
Even though I've been on
urso
since March. I've refused two thus far & they are getting angry with me. I can also ( & have when they listen) ticked the box to lots of the other symptoms on the list. So on my illnesses summary letter. It is still marked as possible PBC.
Even though I've been on
urso
since March. I've refused two thus far & they are getting angry with me. I can also ( & have when they listen) ticked the box to lots of the other symptoms on the list. So on my illnesses summary letter. It is still marked as possible PBC.
teddybear7
in
PBC Foundation
10 years ago
I was diagnosed with PBC about 10 years ago but I do not have any of the symptoms. I do not think I have PBC.
I was prescribed
Urso
which I still take - god knows why. At my annual medical my live function bloods show normal. Yesterday I visited the consultant at the Royal Free Hospital in Hampstead and I said I do not think I have PBC and he called another doctor to come and do some scans.
I was prescribed
Urso
which I still take - god knows why. At my annual medical my live function bloods show normal. Yesterday I visited the consultant at the Royal Free Hospital in Hampstead and I said I do not think I have PBC and he called another doctor to come and do some scans.
Goks
in
PBC Foundation
10 years ago
Depression, not overwhelming, the looming thoughts. Is this making my fatigue worse?
I have been on
Urso
now for a month now and have been paying more attention to the posts about those that the meds didn't work for. I am a person of faith, and I definitely rely on God for my dailing strength and mental optimism.
I have been on
Urso
now for a month now and have been paying more attention to the posts about those that the meds didn't work for. I am a person of faith, and I definitely rely on God for my dailing strength and mental optimism.
NotorDJP
in
PBC Foundation
10 years ago
1
...
56
57
58
...
70
Next page
10
20
30
40
50
60
70
Filter results
Clear filters
Posted in
All communities
PBC Foundation
1252 results
British Liver Trust
75 results
PBCers Organization
34 results
View top 10 communities
Sort by
Most Relevant
Newest