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Urso
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Recently diagnosed
Also eating pills morning and evening is new, and sometimes I forget to take
Urso
with my meal. If I take
Urso
later than my meal, it can actually give me some itch(?) As sad as I am to have this disease -I also have asthma- I must say that I feel better than I have in years.
Also eating pills morning and evening is new, and sometimes I forget to take
Urso
with my meal. If I take
Urso
later than my meal, it can actually give me some itch(?) As sad as I am to have this disease -I also have asthma- I must say that I feel better than I have in years.
Lisbeth_66
in
PBC Foundation
10 years ago
Blood tests for tumor
Hi everyone, I was DIAGNOSED with PBC, been taking
URSO
500MG twice a day, I've had blood tests and MRI scan & having a CT SCAN on Wednesday, I'm actually getting really frightened because the latest blood tests are a result of the mri scan revealing enlarged lymph nodes.
Hi everyone, I was DIAGNOSED with PBC, been taking
URSO
500MG twice a day, I've had blood tests and MRI scan & having a CT SCAN on Wednesday, I'm actually getting really frightened because the latest blood tests are a result of the mri scan revealing enlarged lymph nodes.
Justineasprey
in
PBC Foundation
10 years ago
Yet Another "New Kid"
So my GI doc says my liver isn't behaving and starts the
Urso
with the consult to the hepatologist, my PCP says my gallbladder isn't playing nice and has to be removed so gives me the surgical referral, and on top of that I have to see a rheumatologist to rule out any other autoimmune conditions.
So my GI doc says my liver isn't behaving and starts the
Urso
with the consult to the hepatologist, my PCP says my gallbladder isn't playing nice and has to be removed so gives me the surgical referral, and on top of that I have to see a rheumatologist to rule out any other autoimmune conditions.
jmanderson1984
in
PBC Foundation
10 years ago
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Fluctuating AMA positive, normal LFTs, raised IgM and ANA
Due to normal LFTs, I've not got an official PBC diagnosis and am not on
Urso
. I'm just ignoring it for now, but was curious to know if anyone was in a similar boat. For those of you with postive AMA but normal LFTs, do you also have raised IgM? Has anyone progressed with a vacillating AMA?
Due to normal LFTs, I've not got an official PBC diagnosis and am not on
Urso
. I'm just ignoring it for now, but was curious to know if anyone was in a similar boat. For those of you with postive AMA but normal LFTs, do you also have raised IgM? Has anyone progressed with a vacillating AMA?
Keren
in
PBC Foundation
10 years ago
PBC and Diabetes
Hi, I have just been diagnosed with PBC and have been put on
URSO
by my Liver Consultant who I have met once after being referred by my GP. I don't see him again until end of Feb.
Hi, I have just been diagnosed with PBC and have been put on
URSO
by my Liver Consultant who I have met once after being referred by my GP. I don't see him again until end of Feb.
Caz1908
in
PBC Foundation
10 years ago
Hello! Just stumbled across this and couldn't be happier!
I also know another woman personally who has PBC and her
urso
stopped working. Has anyone else encountered that? Nice to know this place exists! I for sure thought I was alone and it's definitely been tough doing it alone and not having anyone in my corner understand.
I also know another woman personally who has PBC and her
urso
stopped working. Has anyone else encountered that? Nice to know this place exists! I for sure thought I was alone and it's definitely been tough doing it alone and not having anyone in my corner understand.
TaylorC1991
in
PBC Foundation
10 years ago
Do you think your Pbc is worse since being diagnosed?
Dx with Pbc 8 months ago and been on
urso
7 months. Bloods have gone back to normal. My mind, soul and body have not since learning about this disease. I worry consistently. Driving myself insane. I have the support of my husband and daughters.
Dx with Pbc 8 months ago and been on
urso
7 months. Bloods have gone back to normal. My mind, soul and body have not since learning about this disease. I worry consistently. Driving myself insane. I have the support of my husband and daughters.
Geordielasstx
in
PBC Foundation
10 years ago
Very lengthy but worth the read
There is a new medicine study which is good news, for people not responding well to
Urso
. There is a Dr who is trying to get more studies and get those of us with PBC the help and more attention to this disease.
There is a new medicine study which is good news, for people not responding well to
Urso
. There is a Dr who is trying to get more studies and get those of us with PBC the help and more attention to this disease.
donna01
in
PBC Foundation
10 years ago
6 monthly checks?
I've responded well to
Urso
, though I get the acid reflux badly quite often. Sorry, more background than you need.
I've responded well to
Urso
, though I get the acid reflux badly quite often. Sorry, more background than you need.
Hidden
in
PBC Foundation
10 years ago
Cystitis sachets ok with Urso?
And if so, does anyone know whether taking the over-the-counter sachets which you dissolve in water are ok with
Urso
/PBC? Any help appreciated....until I can call the doctor in the morning!!!
And if so, does anyone know whether taking the over-the-counter sachets which you dissolve in water are ok with
Urso
/PBC? Any help appreciated....until I can call the doctor in the morning!!!
KK72
in
PBC Foundation
10 years ago
Bad days
Am on
urso
and was told it was for the rest of my life. Is it normal to have great days, where I feel nothing is wrong, and then have a really bad day..or two? The fatigue is the worst for me so far, and upset stomach.
Am on
urso
and was told it was for the rest of my life. Is it normal to have great days, where I feel nothing is wrong, and then have a really bad day..or two? The fatigue is the worst for me so far, and upset stomach.
Macushla
in
PBC Foundation
10 years ago
Nose Bleeds?
Hi, I have been getting short lived, light nose bleeds probably once a week/fortnight for quite a long time although they are not serious, I wondered if anyone else gets them and if they might be a side effect of our condition or the
Urso
medication?
Hi, I have been getting short lived, light nose bleeds probably once a week/fortnight for quite a long time although they are not serious, I wondered if anyone else gets them and if they might be a side effect of our condition or the
Urso
medication?
Mayflower53
in
PBC Foundation
10 years ago
Urso
Chemist can't supply my
urso
. Off to gp's wish me luck. Worried.com.
Chemist can't supply my
urso
. Off to gp's wish me luck. Worried.com.
teddybear7
in
PBC Foundation
10 years ago
urso and pbc
I have been on
urso
for 14 yrs. it went from $55 for a 3 mo supply to $800 and that's half price! My dr took me off
urso
for a month. my test results over doubled! GGT went from 360 to 689 and I started feeling sick to my stomach after eating sometimes and body aches.
I have been on
urso
for 14 yrs. it went from $55 for a 3 mo supply to $800 and that's half price! My dr took me off
urso
for a month. my test results over doubled! GGT went from 360 to 689 and I started feeling sick to my stomach after eating sometimes and body aches.
jpickle
in
PBC Foundation
10 years ago
Feeling down with PBC
I am on
urso
but my specialist told right from the rip not to get my hopes up. He really did not think it would do much good. Not sure why he would say that when others are doing so well with the meds. My biopsy said Chronic Hep... PBC with bridging and fibrosis.
I am on
urso
but my specialist told right from the rip not to get my hopes up. He really did not think it would do much good. Not sure why he would say that when others are doing so well with the meds. My biopsy said Chronic Hep... PBC with bridging and fibrosis.
shirley29485
in
British Liver Trust
10 years ago
Urso and cholesterol lowering drugs?
Also does anyone get itchy with
Urso
? I had an awful night scratching last night. Thanks a lot gill x
Also does anyone get itchy with
Urso
? I had an awful night scratching last night. Thanks a lot gill x
mclachlang
in
PBC Foundation
10 years ago
Autoimmune PBC
have appoint with my specialist and will be putting me on
URSO
think that's the short spelling. I have Bronchiectasis and MAC on top of it..So my body is very busy with many things. I am trying to deal with it. I'm finding myself not emotional at all.
have appoint with my specialist and will be putting me on
URSO
think that's the short spelling. I have Bronchiectasis and MAC on top of it..So my body is very busy with many things. I am trying to deal with it. I'm finding myself not emotional at all.
shirley29485
in
British Liver Trust
10 years ago
Experience with LFT's going up and down??
I began taking
URSO
, and after 2 months, my ALP had gone down to 366 and my AST and ALT were in the high 40's--down from 200 or so. All was well, but just had my blood drawn yesterday, and everything is up again. ALP 650, ALT 160, AST 120. I go to my hepatologist next week.
I began taking
URSO
, and after 2 months, my ALP had gone down to 366 and my AST and ALT were in the high 40's--down from 200 or so. All was well, but just had my blood drawn yesterday, and everything is up again. ALP 650, ALT 160, AST 120. I go to my hepatologist next week.
kgohn
in
PBC Foundation
10 years ago
Carole
I have been on
urso
for the last 3 months. I have found over the last few weeks I am not remembering things & starting to wonder if I am having loss of memory . I'm only 46 and have always had a good memory. Does anyone else have this problem x
I have been on
urso
for the last 3 months. I have found over the last few weeks I am not remembering things & starting to wonder if I am having loss of memory . I'm only 46 and have always had a good memory. Does anyone else have this problem x
Carolebroadbent
in
PBC Foundation
10 years ago
NEW PBC DRUG??
She says it is supposed to be better than
Urso
, by slowing down the progression & also reversing liver damage. When I asked the name she said it has not been given an official name yet, on the chemical name for now. I was shocked. Does anyone know or have any info about this?
She says it is supposed to be better than
Urso
, by slowing down the progression & also reversing liver damage. When I asked the name she said it has not been given an official name yet, on the chemical name for now. I was shocked. Does anyone know or have any info about this?
WendyMarie
in
PBC Foundation
10 years ago
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