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Urso
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Feeling Unloved!!!
Have just left my GP having been told I probably don't need 6 monthly blood test to check my liver function any longer, probably don't need to see my hospital consultant every 6 months and can probably stop taking the
urso
now!!!!
Have just left my GP having been told I probably don't need 6 monthly blood test to check my liver function any longer, probably don't need to see my hospital consultant every 6 months and can probably stop taking the
urso
now!!!!
Milo2
in
PBC Foundation
7 years ago
Hello I am brand new to the group, and sure am glad to have found you!
I had a severe intolerant reaction to
Urso
so I went untreated for five years (perhaps longer as I had a pos. AMA when had a bout of debilitating joint pain 15 years ago. I am now 56 and have been started on Ocaliva.
I had a severe intolerant reaction to
Urso
so I went untreated for five years (perhaps longer as I had a pos. AMA when had a bout of debilitating joint pain 15 years ago. I am now 56 and have been started on Ocaliva.
Q8Cooper
in
PBC Foundation
7 years ago
Rash
Been on
urso
for 1 month and no problems but I developed a fine slightly raised rash on both lower legs... thought it was oetechiae same color and all but that is usually flat... does pbc cause this?
Been on
urso
for 1 month and no problems but I developed a fine slightly raised rash on both lower legs... thought it was oetechiae same color and all but that is usually flat... does pbc cause this?
Pamela4475
in
PBC Foundation
7 years ago
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Finally some good news on labs
Been on
Urso
for 7 Months and was worried in my last post that my alk phosphatase was creeping up again. It had gone back up to 177 but re tested a month later and back down to 145. Dr. Said they may never be within normal limits but as long as they are going in right direction, I should be happy.
Been on
Urso
for 7 Months and was worried in my last post that my alk phosphatase was creeping up again. It had gone back up to 177 but re tested a month later and back down to 145. Dr. Said they may never be within normal limits but as long as they are going in right direction, I should be happy.
LorraineLouise
in
PBC Foundation
7 years ago
Period 10 Days Late(and trying for a baby)
Can
Urso
affect my monthly cycle? Does PBC affect a monthly cycle. So confused and fed up! My skin has become increasingly itchy too so wondered if there's a link. Thanks
Can
Urso
affect my monthly cycle? Does PBC affect a monthly cycle. So confused and fed up! My skin has become increasingly itchy too so wondered if there's a link. Thanks
mrsreddave
in
PBC Foundation
7 years ago
Just a quick question
When they say take
urso
at night , is that at bed time ?? I thought you had to take with food so when they say take at night do they mean with your evening meal or going to Bed ??
When they say take
urso
at night , is that at bed time ?? I thought you had to take with food so when they say take at night do they mean with your evening meal or going to Bed ??
Lmur
in
PBC Foundation
7 years ago
PBC - Fibrosis stage 2
I take
Urso
500 three times a day. Ultrasounds and CT scabs said that I have. Cirrhosis but they were wrong. I work 40 plus hours per week as A Director of Social Services. I pray everyday and enjoy every day that I have. Whining accomplishes nothing.
I take
Urso
500 three times a day. Ultrasounds and CT scabs said that I have. Cirrhosis but they were wrong. I work 40 plus hours per week as A Director of Social Services. I pray everyday and enjoy every day that I have. Whining accomplishes nothing.
Ellewoods33
in
PBC Foundation
7 years ago
Day 2 of Urso
After being diagnosed just over a week ago I am on day 3 of
urso
in the morning. So far I seem to be o.k but keep waiting for side effects to get me. I seem to have heartburn after taking the last tablet of day. Let's hope it works feeling hopefull.
After being diagnosed just over a week ago I am on day 3 of
urso
in the morning. So far I seem to be o.k but keep waiting for side effects to get me. I seem to have heartburn after taking the last tablet of day. Let's hope it works feeling hopefull.
Lisamarie33
in
PBC Foundation
7 years ago
Anxiety
Also, I go to the bathroom alot I don't know if it's the medication (
Urso
) cleaning me out but I get anxious about going somewhere because of needing to use the bathroom. Now my dr.
Also, I go to the bathroom alot I don't know if it's the medication (
Urso
) cleaning me out but I get anxious about going somewhere because of needing to use the bathroom. Now my dr.
dolphinlover2020
in
PBC Foundation
7 years ago
Adverse response to Urso so put on Ocaliva. My alkaline phosphatase remains around 300. How do I know if the Ocaliva is working?
Hi, I am a 56yr old female diagnosed with PBC six years ago. I had a severe reaction to Ursol the first time I tried it, waited a year and tried it again but was unresponsive to it. I started Ocaliva 5mg for three months and since my alkaline phosphatase remained around 300 my doctor increased the
Hi, I am a 56yr old female diagnosed with PBC six years ago. I had a severe reaction to Ursol the first time I tried it, waited a year and tried it again but was unresponsive to it. I started Ocaliva 5mg for three months and since my alkaline phosphatase remained around 300 my doctor increased the
Q8Cooper
in
PBC Foundation
7 years ago
Urso and tricor (fenofibrates?)
Is anyone on
urso
and tricor and how are you tolerating these meds? I want to thank everybody in advance.... if it was not for this site I don't know what I would do.... live on an island with no family for hours away... ❤️ Thanks for helping
Is anyone on
urso
and tricor and how are you tolerating these meds? I want to thank everybody in advance.... if it was not for this site I don't know what I would do.... live on an island with no family for hours away... ❤️ Thanks for helping
Pamela4475
in
PBC Foundation
7 years ago
Nexium and urso
Does anyone here take meds for Fred and pbc? When I look these two up it doesn't seem like I should take together
Does anyone here take meds for Fred and pbc? When I look these two up it doesn't seem like I should take together
Pamela4475
in
PBC Foundation
7 years ago
Stage 3 Grade 3.5
Not good at all however, I am responding to the
Urso
and my liver enzymes are now in the 600 range (were 1700) and my AMA's are down 20%... Not sure if either of those #'s right now just that they are down... I'd like to talk to those of you in this stage and in this Grade Range...
Not good at all however, I am responding to the
Urso
and my liver enzymes are now in the 600 range (were 1700) and my AMA's are down 20%... Not sure if either of those #'s right now just that they are down... I'd like to talk to those of you in this stage and in this Grade Range...
tonia17
in
PBC Foundation
7 years ago
So much going on
He did put me on
URSO
which I took for a couple months but became extremely bloated. I did just recently start taking
URSO
again to see how it goes. Since being diagnosed I have heart issues last year they put in a pacemaker/defibrillator. I have PVC's &PAC's with tachycardia.
He did put me on
URSO
which I took for a couple months but became extremely bloated. I did just recently start taking
URSO
again to see how it goes. Since being diagnosed I have heart issues last year they put in a pacemaker/defibrillator. I have PVC's &PAC's with tachycardia.
mek4wlk
in
PBC Foundation
7 years ago
Pbc pain
I have mild right uppercquadrant pain on and off all day.... on
urso
... is this an expected side effect?
I have mild right uppercquadrant pain on and off all day.... on
urso
... is this an expected side effect?
Pamela4475
in
PBC Foundation
7 years ago
Creatinine Level
Hi All have had PBC for over 10 years and now i am showing high Creatinine levels, has anybody else noticed their levels going up, just wondered if it could have anything to do with taking
Urso
. Any feed back would be great Tia.
Hi All have had PBC for over 10 years and now i am showing high Creatinine levels, has anybody else noticed their levels going up, just wondered if it could have anything to do with taking
Urso
. Any feed back would be great Tia.
Kevviv
in
PBC Foundation
7 years ago
One of those days
Plus I just started having "metal mouth" with the
URSO
... Sorry for my bitch session...I know it could be worse...😥
Plus I just started having "metal mouth" with the
URSO
... Sorry for my bitch session...I know it could be worse...😥
tonia66
in
PBC Foundation
7 years ago
New to pbc
I was just diagnosed with pbc and have started taking
urso
300mg three times a day....he wants me to take Lipitor but I am a little scared became of the effect on the liver enzymes.... does anyone else take Lipitor?
I was just diagnosed with pbc and have started taking
urso
300mg three times a day....he wants me to take Lipitor but I am a little scared became of the effect on the liver enzymes.... does anyone else take Lipitor?
Pamela4475
in
PBC Foundation
7 years ago
That's not my feet
I'm taking 20 mgs prednisone, 1000mgs of
Urso
and 50 mgs of azathioprine
I'm taking 20 mgs prednisone, 1000mgs of
Urso
and 50 mgs of azathioprine
Hidden
in
PBC Foundation
7 years ago
Well got the referral, third time lucky!
That is all I know, so whatever I have (still seems to be PBC)
Urso
seems to be doing its thang!!
That is all I know, so whatever I have (still seems to be PBC)
Urso
seems to be doing its thang!!
Jo_Br
in
PBC Foundation
7 years ago
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