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Urso
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Biopsy results
Dr has upped
urso
to correct dose for my weight and prescribed steroids and vit d , blood tests needed , dexa scan and fibro scan also needed dr said he will be seeing me often till he's happy with bloods .
Dr has upped
urso
to correct dose for my weight and prescribed steroids and vit d , blood tests needed , dexa scan and fibro scan also needed dr said he will be seeing me often till he's happy with bloods .
Louisethew
in
PBC Foundation
6 years ago
Long time off of here due to life lol.
I also take
urso
for the PBC side of things and again this gives me nausea and bloats me out...I just want to feel well do you have any suggestions apart from the obvious rest...do less work and definitely less traveling.
I also take
urso
for the PBC side of things and again this gives me nausea and bloats me out...I just want to feel well do you have any suggestions apart from the obvious rest...do less work and definitely less traveling.
Alley27
in
PBC Foundation
6 years ago
Blood results
the
URSO
still 1000 has anyone else done it like this and if so when you're off the prednisone does it stay down
the
URSO
still 1000 has anyone else done it like this and if so when you're off the prednisone does it stay down
mjk98
in
PBC Foundation
6 years ago
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PBC Gallbladder removed
Once I went to the specialist he put me on two pills a day of
Urso
and two pills a day of omneprazole . That medicine has helped a lot . When I asked if the PBC caused my gallbladder to fail , the doc said no there is no relation . No relation ???? What ????
Once I went to the specialist he put me on two pills a day of
Urso
and two pills a day of omneprazole . That medicine has helped a lot . When I asked if the PBC caused my gallbladder to fail , the doc said no there is no relation . No relation ???? What ????
Seybeaute
in
PBC Foundation
6 years ago
PBC/AIH overlap : Prednisolone
Unfortunately my labs never fully responded to
Urso
and most of the time feel fine. Have mild itching from time to time and recently a bit of fatigue and pain, after more tests and biopsy i was diagnosed with AIH overlap last week.
Unfortunately my labs never fully responded to
Urso
and most of the time feel fine. Have mild itching from time to time and recently a bit of fatigue and pain, after more tests and biopsy i was diagnosed with AIH overlap last week.
SandraS
in
PBC Foundation
6 years ago
Meds question
I am used to taking a 500 mg of
urso
and a now 10 mg of prednisone in the morning with breakfast Then with dinner I take another 500 mg of
urso
and a 50 mg of AZA. I am thinking about switching the prednisone and AZA. Meaning taking AZA in the morning with breakfast and prednisone at dinner.
I am used to taking a 500 mg of
urso
and a now 10 mg of prednisone in the morning with breakfast Then with dinner I take another 500 mg of
urso
and a 50 mg of AZA. I am thinking about switching the prednisone and AZA. Meaning taking AZA in the morning with breakfast and prednisone at dinner.
Hidden
in
PBC Foundation
6 years ago
Forgot to take medication
I forgot to take my prednisone and
Urso
this morning and last night I forgot to take
Urso
and AZA. My children are brutal these days. I’m not sure if I should at least take my
Urso
and prednisone that I missed this morning. I will be up all night if I take it now. My stress is bad these days.
I forgot to take my prednisone and
Urso
this morning and last night I forgot to take
Urso
and AZA. My children are brutal these days. I’m not sure if I should at least take my
Urso
and prednisone that I missed this morning. I will be up all night if I take it now. My stress is bad these days.
Hidden
in
PBC Foundation
6 years ago
Do I have PBC
My question is should I continue with
urso
?
My question is should I continue with
urso
?
Hidden
in
PBC Foundation
6 years ago
Can I take Milk thistle while on ocaliva
I have just recently been started on ocaliva due to poor response from
URSO
. I wondered if there were any contraindications against taking milk thistle while on ocaliva. I forgot to ask my consultant if it was ok.
I have just recently been started on ocaliva due to poor response from
URSO
. I wondered if there were any contraindications against taking milk thistle while on ocaliva. I forgot to ask my consultant if it was ok.
Gilz1702
in
PBC Foundation
6 years ago
Pbc diagnosed but not been tested
Should I stop the
urso
until diagnosis confirmed or would you wait to see gastro again then ask for the tests. Thanks
Should I stop the
urso
until diagnosis confirmed or would you wait to see gastro again then ask for the tests. Thanks
Rleo
in
PBC Foundation
6 years ago
Just diagnosed
Dr. prescribed
URSO
and I understand that this med. can slow down the process but can it also lower AMA test results? Thanks for any help. I am pretty overwhelmed. Ellyne
Dr. prescribed
URSO
and I understand that this med. can slow down the process but can it also lower AMA test results? Thanks for any help. I am pretty overwhelmed. Ellyne
Ellyne
in
PBC Foundation
6 years ago
MISDIAGNOSED
Hi Guys, Has anyone ever been misdiagnosed with PBC iiWAS DIAGNOSED 4YRS AGO AND HAVE BEEN TAKING
URSO
, NOW MY DR BELIEVES I MAY HAVE BEEN MISDIANOSED, I AM SO CONFUSED WAITING TO SEE SPECIALIST NEXT WEEK :(.
Hi Guys, Has anyone ever been misdiagnosed with PBC iiWAS DIAGNOSED 4YRS AGO AND HAVE BEEN TAKING
URSO
, NOW MY DR BELIEVES I MAY HAVE BEEN MISDIANOSED, I AM SO CONFUSED WAITING TO SEE SPECIALIST NEXT WEEK :(.
susanashworth
in
PBC Foundation
6 years ago
Fibroscan 12.2?
I take 1000mg of
Urso
and have just had a fibroscan of 12.2. My LFTs are only slightly abnormal but I am anaemic. I really just want to check in and say hello
I take 1000mg of
Urso
and have just had a fibroscan of 12.2. My LFTs are only slightly abnormal but I am anaemic. I really just want to check in and say hello
Pin44
in
PBC Foundation
6 years ago
Itchy on Ocaliva - it comes and it goes?
I’ve been on ocaliva for seven weeks and
Urso
for seven months. I was slightly itchy on
Urso
but not a big deal. Week 2 on ocaliva i was extremely itchy, then it subsided and now i am crazy itchy again. Anyone else experienced similar?
I’ve been on ocaliva for seven weeks and
Urso
for seven months. I was slightly itchy on
Urso
but not a big deal. Week 2 on ocaliva i was extremely itchy, then it subsided and now i am crazy itchy again. Anyone else experienced similar?
Ottley3
in
PBC Foundation
6 years ago
Itching 😡
Hey guys..... can you still have itching with
urso
and normal labs? I was itching free for several months and labs are within normal range for a few months but now have the itching again 😞
Hey guys..... can you still have itching with
urso
and normal labs? I was itching free for several months and labs are within normal range for a few months but now have the itching again 😞
Pamela4475
in
PBC Foundation
6 years ago
I'm new-+AMA, no symptoms, Urso?
So, doctor wants to put me on
Urso
, but with what I've read, I don't know if I want to or need to take it. Is there harm in taking
Urso
before you should any symptoms or elevated tests other than high AMA? Thanks for reading.
So, doctor wants to put me on
Urso
, but with what I've read, I don't know if I want to or need to take it. Is there harm in taking
Urso
before you should any symptoms or elevated tests other than high AMA? Thanks for reading.
Bobrummel217
in
PBC Foundation
6 years ago
Can you diagnose early-stage PBC with blood tests only
He diagnosed PBC and prescribed the
URSO
with a view to reviewing the
URSO
effectiveness after 3 months. He said my wife had early stage PBC, although he did not arrange for a biopsy. Can one competently diagnose early stage PBC without an actual biopsy?
He diagnosed PBC and prescribed the
URSO
with a view to reviewing the
URSO
effectiveness after 3 months. He said my wife had early stage PBC, although he did not arrange for a biopsy. Can one competently diagnose early stage PBC without an actual biopsy?
Nicholas101
in
PBC Foundation
6 years ago
Rifampicin
Any tips on what time of day it is best given and does it need to be a set amount of time beforeor after his other current medications ( vitamins and
Urso
) I have contacted the liver nurses at Kings, but thought I'd see if anyone on here had any advice!
Any tips on what time of day it is best given and does it need to be a set amount of time beforeor after his other current medications ( vitamins and
Urso
) I have contacted the liver nurses at Kings, but thought I'd see if anyone on here had any advice!
LizHawes
in
Children's Liver Disease Foundation
6 years ago
Citalopram and increased Alkaline Phosphate
Hi Back again 😘 So diagnosed 6 months ago with PBC and taking
urso
, December ALP was 280 Have developed anxiety and prescribed Citalopram 10mg which I have taken for 3 weeks, had bloods done at 2 weeks and ALP has gone up to 380 Has anyone had similar?
Hi Back again 😘 So diagnosed 6 months ago with PBC and taking
urso
, December ALP was 280 Have developed anxiety and prescribed Citalopram 10mg which I have taken for 3 weeks, had bloods done at 2 weeks and ALP has gone up to 380 Has anyone had similar?
Rozm2004
in
PBC Foundation
6 years ago
NEED SOME AVISE
BUT BEFORE STARTING MY LAB WORKS WHERE 50% MUCH BETTER SINCE I WAS FIRST DIAGNOSED WITH PBC AND TAKING 1 GRM OF
URSO
. WELL 15 DAYS LATER MY NEW LABS REPORTED NO CHANGES AT ALL, WITH SLIGHTLY HIGHER GGT AND AST/ALT.
BUT BEFORE STARTING MY LAB WORKS WHERE 50% MUCH BETTER SINCE I WAS FIRST DIAGNOSED WITH PBC AND TAKING 1 GRM OF
URSO
. WELL 15 DAYS LATER MY NEW LABS REPORTED NO CHANGES AT ALL, WITH SLIGHTLY HIGHER GGT AND AST/ALT.
YADILURO
in
PBC Foundation
6 years ago
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