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Urso
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Anyone having Hemoglobin problems?
On one 500 mg
URSO
since March 2019. All liver labs currently are within range. My Ammonia was 70 a month ago..on massive dose of Lactulose...currently it is 25..yay! Does anyone know if PBC causes low hemoglobin or has any effect on your hemoglobin? Mine is very seldom up to 8.
On one 500 mg
URSO
since March 2019. All liver labs currently are within range. My Ammonia was 70 a month ago..on massive dose of Lactulose...currently it is 25..yay! Does anyone know if PBC causes low hemoglobin or has any effect on your hemoglobin? Mine is very seldom up to 8.
Miamomma
in
PBCers Organization
4 years ago
I 'm new here
I have read that if you take
urso
you don't need to take antiacids.
I have read that if you take
urso
you don't need to take antiacids.
recipes
in
PBC Foundation
5 years ago
Dry irritating cough
I have been on
Urso
for a couple of years now and have had a dry irritating cough for at least that long. I don't know if it is due to the
Urso
, side effects do state cough and sore throat. I just wonder if anyone has had this problem and what to do about it.
I have been on
Urso
for a couple of years now and have had a dry irritating cough for at least that long. I don't know if it is due to the
Urso
, side effects do state cough and sore throat. I just wonder if anyone has had this problem and what to do about it.
atmn2g
in
PBC Foundation
5 years ago
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Be positive
A relief knowing that they found the problem Could of been worse now on
Urso
and antihistamine for itchy legs been on
Urso
for 3 weeks fingers crossed no noticed any side effects yet.
A relief knowing that they found the problem Could of been worse now on
Urso
and antihistamine for itchy legs been on
Urso
for 3 weeks fingers crossed no noticed any side effects yet.
wakeboarding
in
PBC Foundation
5 years ago
Where do you get your Urso prescription?
I started on
Urso
at the end of December and was given a two month supply, they are running out now and I don't know where to get more. Do I go to my GP for a repeat or should I wait until called in by the consultant to see if they're working? The appointment is due but hasn't been made yet.
I started on
Urso
at the end of December and was given a two month supply, they are running out now and I don't know where to get more. Do I go to my GP for a repeat or should I wait until called in by the consultant to see if they're working? The appointment is due but hasn't been made yet.
hells456
in
PBC Foundation
5 years ago
Post flu virus
I was dx with PBC 10 months ago and take
urso
. Is this just a bug or something to do with my pbc? I have been reasonably well up to now.
I was dx with PBC 10 months ago and take
urso
. Is this just a bug or something to do with my pbc? I have been reasonably well up to now.
Spanishnan
in
PBC Foundation
5 years ago
Aching & Brain fog in PBC
Hi, I was diagnosed with PBC in October last year through routine blood tests due to fatigue and was started on
Urso
500mg twice daily.
Hi, I was diagnosed with PBC in October last year through routine blood tests due to fatigue and was started on
Urso
500mg twice daily.
Willow1050
in
PBC Foundation
5 years ago
What shows Urso is working?
I know it's all important, but what specifically shows you are responding to
Urso
?
I know it's all important, but what specifically shows you are responding to
Urso
?
hells456
in
PBC Foundation
5 years ago
Other medicine
One of
URSO
side effects is hair loss ... can we take Biotin when taking
URSO
?? Also ... can we take Mucinex ??
One of
URSO
side effects is hair loss ... can we take Biotin when taking
URSO
?? Also ... can we take Mucinex ??
1155Cat
in
PBC Foundation
5 years ago
Sunshine
And if it is true ... is it because of the
URSO
or just because of PBC ???
And if it is true ... is it because of the
URSO
or just because of PBC ???
1155Cat
in
PBC Foundation
5 years ago
Alkaline phosphate number ??
Hi just wondering if someone Could help, I was diagnosed 3 years ago but only just about to start
URSO
. Just received letter from consultant which stated my alkaline phosphate was 197, consultant has never explained much about PBC or what the numbers mean. Is this normal number or high ??
Hi just wondering if someone Could help, I was diagnosed 3 years ago but only just about to start
URSO
. Just received letter from consultant which stated my alkaline phosphate was 197, consultant has never explained much about PBC or what the numbers mean. Is this normal number or high ??
Mnoye
in
PBC Foundation
5 years ago
Fibroscan shows slight fatty liver
I was diagnosed early stage 1 in 2000 and have responded well to
Urso
, LFT's came back to almost normal in the first year and have stayed there since. I went for a fibroscan yesterday.
I was diagnosed early stage 1 in 2000 and have responded well to
Urso
, LFT's came back to almost normal in the first year and have stayed there since. I went for a fibroscan yesterday.
kizzywizzy99
in
PBC Foundation
5 years ago
UV light therapy
I am currently unresponsive to
urso
and find my itch is getting progressively worse but is always worse in the winter x Thanks in advance Charlene
I am currently unresponsive to
urso
and find my itch is getting progressively worse but is always worse in the winter x Thanks in advance Charlene
Char_char1980
in
PBC Foundation
5 years ago
Diagnosed and confused
Should I be getting the amount of
urso
the pcbf suggests or is that just a rough guide? I've read a lot about the early stages and a lot about transplants, but not found much about the middle bit. How long can you last with cirrhosis before things get ugly?
Should I be getting the amount of
urso
the pcbf suggests or is that just a rough guide? I've read a lot about the early stages and a lot about transplants, but not found much about the middle bit. How long can you last with cirrhosis before things get ugly?
hells456
in
PBC Foundation
5 years ago
Protein shakes
I donβt have cirrhosis yet I am
urso
responder stage 2 pbc. Any recommendations are appreciated ππ»ππ»ππ»
I donβt have cirrhosis yet I am
urso
responder stage 2 pbc. Any recommendations are appreciated ππ»ππ»ππ»
Sona_akb
in
PBC Foundation
5 years ago
Travel Insurance and PBC
LFTs showed a bit of an increase a few years ago so I started on
Urso
and luckily was a responder. LFTs settled down again and I just have an annual blood test. At one point the consultant said that I don't actually have PBC but I am at risk of it developing at some stage.
LFTs showed a bit of an increase a few years ago so I started on
Urso
and luckily was a responder. LFTs settled down again and I just have an annual blood test. At one point the consultant said that I don't actually have PBC but I am at risk of it developing at some stage.
swinstan
in
PBC Foundation
5 years ago
Symptoms of non responder to urso
Can anyone tell me what the symptoms are if you are a non responder to
urso
. Thanks everyone.
Can anyone tell me what the symptoms are if you are a non responder to
urso
. Thanks everyone.
Spanishnan
in
PBC Foundation
5 years ago
Very negative Newspaper article abou PBC and AIH
Fortunately my LFT's are now within the normal range due to being an
Urso
responder and possibly rule out AIH. My sister showed me an article about PBC and the headlines were "I felt ok and fit then I was given a death sentance " !!!!!! A very negative article.
Fortunately my LFT's are now within the normal range due to being an
Urso
responder and possibly rule out AIH. My sister showed me an article about PBC and the headlines were "I felt ok and fit then I was given a death sentance " !!!!!! A very negative article.
Beatrice110924
in
PBC Foundation
5 years ago
1st appointment. What to ask
I'm taking
Urso
daily. Tomorrow is my first appointment since august. I expect they will explain results from the various tests. Is there anything specific I should ask them? Should I ask for bone density test? Is that done as standard or only if other concerns?
I'm taking
Urso
daily. Tomorrow is my first appointment since august. I expect they will explain results from the various tests. Is there anything specific I should ask them? Should I ask for bone density test? Is that done as standard or only if other concerns?
Trots
in
PBC Foundation
5 years ago
2nd MRE Score....
I'm only taking
URSO
. Guess it's not slowing fibrosis. I dont know. OCA was a wash as in 30 days plus on it my ALT and AST went in the red. So, my hepatologist took me off. Well, that's it. Any comments about how you're doing, insights, wisdom, or good jokes welcomed β€.
I'm only taking
URSO
. Guess it's not slowing fibrosis. I dont know. OCA was a wash as in 30 days plus on it my ALT and AST went in the red. So, my hepatologist took me off. Well, that's it. Any comments about how you're doing, insights, wisdom, or good jokes welcomed β€.
Ktltel
in
PBC Foundation
5 years ago
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