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Experiences with
Tysabri
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Tysabri
I have used
Tysabri
for 3 years and I’m really happy with it.
Tysabri
can be a first DMT. Some insurance companies will only cover
Tysabri
if a patient has tried one of the less expensive drugs first and didn’t have good enough results. If your insurance will allow it I would start it first.
I have used
Tysabri
for 3 years and I’m really happy with it.
Tysabri
can be a first DMT. Some insurance companies will only cover
Tysabri
if a patient has tried one of the less expensive drugs first and didn’t have good enough results. If your insurance will allow it I would start it first.
Phil413
in
My MSAA Community
5 years ago
Which med???
What are your experiences with Ocrecus,
Tysabri
, Tecfidera, or Gilenya?? I think I am leading toward Tecfidera but still researching and contemplating
What are your experiences with Ocrecus,
Tysabri
, Tecfidera, or Gilenya?? I think I am leading toward Tecfidera but still researching and contemplating
Disneycde
in
My MSAA Community
5 years ago
MS Update
https://multiplesclerosisnewstoday.com/2019/01/14/ms-news-spasticity-
tysabri
-mobility-devices-mesenchymal-stem-cell-trial/?utm_source=Multiple+Sclerosis&utm_campaign=a5fddd39b7-RSS_US_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_b5fb7a3dae-a5fddd39b7-71754961
https://multiplesclerosisnewstoday.com/2019/01/14/ms-news-spasticity-
tysabri
-mobility-devices-mesenchymal-stem-cell-trial/?utm_source=Multiple+Sclerosis&utm_campaign=a5fddd39b7-RSS_US_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_b5fb7a3dae-a5fddd39b7-71754961
Hidden
in
My MSAA Community
5 years ago
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MS...ugh
I have been feeling good on
tysabri
... not GREAT but good. So I will take it. I've been back to work since last Wed. Went to work yesterday doing good picked up my son from school around 4 and we went to Costco.
I have been feeling good on
tysabri
... not GREAT but good. So I will take it. I've been back to work since last Wed. Went to work yesterday doing good picked up my son from school around 4 and we went to Costco.
ktaylor8899
in
My MSAA Community
5 years ago
Second Full Ocrevus Infusion
The infusion also made me tired as usual but that happened with
Tysabri
too. I’m scheduled for MRI’s on Wednesday.
The infusion also made me tired as usual but that happened with
Tysabri
too. I’m scheduled for MRI’s on Wednesday.
Raingrrl
in
My MSAA Community
6 years ago
Hello everyone.
I was on
Tysabri
but it slowly quit working for me. Depression has also been a fight.i think I need to get in touch with my physiologist to get my medicine adjusted or changed. I was on Zoloft 250mgs a day.
I was on
Tysabri
but it slowly quit working for me. Depression has also been a fight.i think I need to get in touch with my physiologist to get my medicine adjusted or changed. I was on Zoloft 250mgs a day.
dailygrump40
in
My MSAA Community
6 years ago
Bit of good news 😁😁😁😁😁
Well I'm still JCV very low positive so the MS nurses told me today when I was having my 8th
Tysabri
infusion. They are happy and i am..........just got the MRI next week - fingers crossed.
Well I'm still JCV very low positive so the MS nurses told me today when I was having my 8th
Tysabri
infusion. They are happy and i am..........just got the MRI next week - fingers crossed.
janetb1968
in
My MSAA Community
6 years ago
Chemotherapy and radiation and MS
I am currently on my 2nd week of chemo pills and radiation for rectal cancer (Yes...colonoscopies are worth the trouble) I had to stop
tysabri
for this treatment. My MS is wacko, more than usual. Does anyone have experience with this?
I am currently on my 2nd week of chemo pills and radiation for rectal cancer (Yes...colonoscopies are worth the trouble) I had to stop
tysabri
for this treatment. My MS is wacko, more than usual. Does anyone have experience with this?
Good_enough
in
My MSAA Community
6 years ago
1 more Tysabri then ...
She said to do the
Tysabri
that was scheduled for Monday as they could not get the Ocrevus scheduled by next week & I'm 9+ weeks since my last
Tysabri
. Then no more & she should know more about the insurance stuff by time for something else. It's a relief to know that something is happening. Mary
She said to do the
Tysabri
that was scheduled for Monday as they could not get the Ocrevus scheduled by next week & I'm 9+ weeks since my last
Tysabri
. Then no more & she should know more about the insurance stuff by time for something else. It's a relief to know that something is happening. Mary
kycmary
in
My MSAA Community
6 years ago
MRI this month......worried + nervous 😮😮😮😮
Got my MRI this month checking about the
Tysabri
and if it's working on the lesions......just seems another thing to worry myself silly about! Hope u are all as well as u can be and it's getting a bit chilly here in England. Wrap up warm everyone xxx
Got my MRI this month checking about the
Tysabri
and if it's working on the lesions......just seems another thing to worry myself silly about! Hope u are all as well as u can be and it's getting a bit chilly here in England. Wrap up warm everyone xxx
janetb1968
in
My MSAA Community
6 years ago
tysabri vs ocrevus
looking for anyone who has gone from
tysabri
to ocrevus. doctor wants me to change not because i have to, just thinks i might get better results. i'm terrified at the thought of changing! any advice? Vicki
looking for anyone who has gone from
tysabri
to ocrevus. doctor wants me to change not because i have to, just thinks i might get better results. i'm terrified at the thought of changing! any advice? Vicki
vickisue55
in
My MSAA Community
6 years ago
Starting Tysabri...what to do? Side effects so scary
Im suppose to start
Tysabri
soon, my neurologist thinks it will stop me from being systematic right now. I see alot of you are starting Ocrevus. Would that be better in the long run? Im only 46 and feel so confused with treatments. Any suggestions before I start
Tysabri
and while Im on it?
Im suppose to start
Tysabri
soon, my neurologist thinks it will stop me from being systematic right now. I see alot of you are starting Ocrevus. Would that be better in the long run? Im only 46 and feel so confused with treatments. Any suggestions before I start
Tysabri
and while Im on it?
Mymarcus2010
in
My MSAA Community
6 years ago
They weren’t kidding about Ocrevus and respiratory illness risk!
I was on
Tysabri
for 5+ years and rarely got sick. I only got a couple of minor colds in that time. Since
Tysabri
is imminosuppresant, I was careful.
I was on
Tysabri
for 5+ years and rarely got sick. I only got a couple of minor colds in that time. Since
Tysabri
is imminosuppresant, I was careful.
Raingrrl
in
My MSAA Community
6 years ago
I am very confused & a little scared!
That I understand but every other month on
Tysabri
makes no since. She sent me to another Dr. an MS specialist I sent him an email asking about this every other month doing
Tysabri
. Hope I hear from him in the morning.
That I understand but every other month on
Tysabri
makes no since. She sent me to another Dr. an MS specialist I sent him an email asking about this every other month doing
Tysabri
. Hope I hear from him in the morning.
kycmary
in
My MSAA Community
6 years ago
Test to Monitor Tysabri Levels in Relapsing MS Patients, moNATor by Abreos Biosciences, Available in US
This is some great new for
Tysabri
users! From Multiple Sclerosis News Today email I received today.
This is some great new for
Tysabri
users! From Multiple Sclerosis News Today email I received today.
bxrmom
in
My MSAA Community
6 years ago
Ocrevus or not?
Finally talked with my Neuro she is not going to put me on Ocrevus doing the
Tysabri
washout by having
Tysabri
every other month for the next 4 months then nothing for 4 months then I go back to see her in late April.
Finally talked with my Neuro she is not going to put me on Ocrevus doing the
Tysabri
washout by having
Tysabri
every other month for the next 4 months then nothing for 4 months then I go back to see her in late April.
kycmary
in
My MSAA Community
6 years ago
FINALLY! Ocrevus
BUT... scared that I will have bad reactions to this like I did
tysabri
. Now waiting for the call to set up a date. Any words of advice or positive encouragement is appreciated. Thanks Jenny 😎😕
BUT... scared that I will have bad reactions to this like I did
tysabri
. Now waiting for the call to set up a date. Any words of advice or positive encouragement is appreciated. Thanks Jenny 😎😕
jkdavid99
in
My MSAA Community
6 years ago
Didn't play out last night after all 🙄🙄🙄🙄
Hi everyone the
Tysabri
infusion won unfortunately I always feel shattered on the evening of the infusion. I'm gutted but nevermind worse things happen hope u are all well 💕💕💕💕💕.
Hi everyone the
Tysabri
infusion won unfortunately I always feel shattered on the evening of the infusion. I'm gutted but nevermind worse things happen hope u are all well 💕💕💕💕💕.
janetb1968
in
My MSAA Community
6 years ago
What would be the reasons for immediately starting me on tysabri before trying anything else? I thought this was a last resort.
My neurologist a bra me to start on
tysabri
. After doing research, I realized that this treatment is a last resort. What would be the reasons for immediately starting me on this before trying anything else?
My neurologist a bra me to start on
tysabri
. After doing research, I realized that this treatment is a last resort. What would be the reasons for immediately starting me on this before trying anything else?
jojt
in
My MSAA Community
6 years ago
Playing out next Friday night after the Tysabri infusion 😊
Got my
Tysabri
infusion next Friday 27th July. Also have been invited to one of the Endoscopy doctors leaving party aswell that night.. It's at a posh Indian restaurant called The Raj and for some reason I'm really nervous about going and really looking forward to seeing everybody aswell 🙄🙄🙄🙄.
Got my
Tysabri
infusion next Friday 27th July. Also have been invited to one of the Endoscopy doctors leaving party aswell that night.. It's at a posh Indian restaurant called The Raj and for some reason I'm really nervous about going and really looking forward to seeing everybody aswell 🙄🙄🙄🙄.
janetb1968
in
My MSAA Community
6 years ago
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