tysabri vs ocrevus: looking for anyone who... - My MSAA Community

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tysabri vs ocrevus

vickisue55 profile image
7 Replies

looking for anyone who has gone from tysabri to ocrevus. doctor wants me to change not because i have to, just thinks i might get better results. i'm terrified at the thought of changing! any advice?

Vicki

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vickisue55
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7 Replies
greaterexp profile image
greaterexp

I think it's really up to you. I'd do my own research and compare the two as to effectiveness and side effects. If you are stable on something, I would question changing. It doesn't mean that I wouldn't necessarily switch, but I'd want a good reason to do so.

I wish you well with your decision. Let us know what you decide.

vickisue55 profile image
vickisue55 in reply togreaterexp

thank you for responding. I have been doing lots of research. Dr. suggested change as I told her I really only get 2-3 weeks of feeling good from Tysabri. The 4th week I really go downhill with major fatigue, right leg and are don't work as well. After talking to several people I think I've decided to hold off until after my knee replacement surgery in early 2019. will keep you posted.

greaterexp profile image
greaterexp in reply tovickisue55

That seems like sound thinking to me!

Juliew19673 profile image
Juliew19673

I've only been given Ocrevus and it has worked well for me. If my Neurologist suggested something different I would be hesitant as well. I'm going to follow your post so update with what you decide. Fingers crossed for you!

Johngm profile image
Johngm in reply toJuliew19673

I sure hope Ocrevus works as well as many of the reviews. I'm starting it in October. My current med only gives me diarrhea. John

kdali profile image
kdali

You can always go back to Tysabri. GL!

RoyceNewton profile image
RoyceNewton

calm down Vicki. changing is really no biggie. There is no reason to be afraid, if you are stable now changing should be easy. There will be some side effects and your body might not like Ocrevus, so have a plan for if you need to change back before you start. Plan for what you can and expect the unexpected, and relax it will be okay.

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