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My son’s PSA rose a bit today.
My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to continue to test every three months, stay on current meds Lupron, Abiraterone/prednisone for another year and two months then stop meds and wait
My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to continue to test every three months, stay on current meds Lupron, Abiraterone/prednisone for another year and two months then stop meds and wait
Cactus297
in
Advanced Prostate Cancer
8 months ago
Unexpected Dive in PSA
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
805guy
in
Prostate Cancer And Gay Men
8 months ago
PSMA scans and radiation of oligometastases
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
Horse12888
in
Advanced Prostate Cancer
8 months ago
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Carolyn Moulding
Hi, I have always been an anxious person, since the age of 5 years old. I am now 67 years, and I am totally obsessed with my blood pressure and readings. I know I have high bp, as it is in my family history. But it drives me insane.
Hi, I have always been an anxious person, since the age of 5 years old. I am now 67 years, and I am totally obsessed with my blood pressure and readings. I know I have high bp, as it is in my family history. But it drives me insane.
tykesammy
in
Anxiety Support
8 months ago
Unexpected Dive in PSA
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
805guy
in
Prostate Cancer Under 60
8 months ago
Statins and Malcolm Kendrick's: The Great Cholestrol Con!
I saw Helvella's post regarding the article in the Guardian on NHS checks; I did post this elsewhere, but I guess would only be visible to folk following the original post, so I thought it may be helpful to post separately. Some on here may well be aware of this work: The work of Malcolm Kendrick
I saw Helvella's post regarding the article in the Guardian on NHS checks; I did post this elsewhere, but I guess would only be visible to folk following the original post, so I thought it may be helpful to post separately. Some on here may well be aware of this work: The work of Malcolm Kendrick
Lavender-Blue
in
Thyroid UK
1 year ago
SBRT alternative
So I've been trying to decide on what treatment I wanted to do and finally decided that I'd go with SBRT. Well unfortunately the MRIdian SBRT is going away at the end of the month. I reached out to Dr. Kishan to verify and this was the response "Unfortunately that is likely correct. We will be doing
So I've been trying to decide on what treatment I wanted to do and finally decided that I'd go with SBRT. Well unfortunately the MRIdian SBRT is going away at the end of the month. I reached out to Dr. Kishan to verify and this was the response "Unfortunately that is likely correct. We will be doing
MauiJef
in
Prostate Cancer Network
8 months ago
I am livid, confused , worried and scared as hell that my ORGOVYX -ADT symptoms are mine for life.
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
JWS13
in
Advanced Prostate Cancer
9 months ago
[b]HOW LONG TO GET YOUR TESTOSTERONE BACK TO NORMAL (4-500) AFTER 4 MOS Treatment WITH ORGOVYX. It is now 5 months post treatment with Orgovyx.[/b]
[i]
HOW LONG TO GET YOUR TESTOSTERONE BACK AFTER 4 MOS TX WITH ORGOVYX.
[/i] Finally 7 mos . Post 20 imrt TX, 5 months post 4 mos. tx with Orgovyx, got my final blood labs:
PSA .2 PSA free.1
,very happy with this!
Testosterone 79
-VERY UNHAPPY WITH THIS ( still symptomatic for
[i]
HOW LONG TO GET YOUR TESTOSTERONE BACK AFTER 4 MOS TX WITH ORGOVYX.
[/i] Finally 7 mos . Post 20 imrt TX, 5 months post 4 mos. tx with Orgovyx, got my final blood labs:
PSA .2 PSA free.1
,very happy with this!
Testosterone 79
-VERY UNHAPPY WITH THIS ( still symptomatic for
JWS13
in
Advanced Prostate Cancer
9 months ago
Unusual swelling with lymphodeema
Hi I have a tendency to get swelling on the outer aspect of my right thigh, the leg that gets the worst lymphodeema. I have lymphodeema which originated in the right leg, & gradually increased to affect my left leg & abdo, badly... Stomach can go up & down with fluid like I'm pregnant & then gradually
Hi I have a tendency to get swelling on the outer aspect of my right thigh, the leg that gets the worst lymphodeema. I have lymphodeema which originated in the right leg, & gradually increased to affect my left leg & abdo, badly... Stomach can go up & down with fluid like I'm pregnant & then gradually
megs2
in
LSN
10 months ago
Food supplements I hope will help
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
Brad70
in
Advanced Prostate Cancer
9 months ago
Aetna appeal for Firmagon denial
My husband was diagnosed with high risk aggressive prostate cancer, Gleason 9. Plus one para rectal node positive. The doctor prescribed 2 years of ADT plus 5 weeks of IMRT. Had first 240 mg dose of firmagon on September 14 with no major side effects so far. Doctor used firmagon to avoid testosterone
My husband was diagnosed with high risk aggressive prostate cancer, Gleason 9. Plus one para rectal node positive. The doctor prescribed 2 years of ADT plus 5 weeks of IMRT. Had first 240 mg dose of firmagon on September 14 with no major side effects so far. Doctor used firmagon to avoid testosterone
Oatmeal2
in
Prostate Cancer Network
9 months ago
Hiccups ?
I am getting regular hiccups for the last three days - Is this a sign of something seriously wrong ? I am 72 Yrs old on diabetics tablets and with insulin the sugar level is under control - I regularly have a peg of whiskey and ginger beer with the evening meal. Also, I take a few tablets daily to keep
I am getting regular hiccups for the last three days - Is this a sign of something seriously wrong ? I am 72 Yrs old on diabetics tablets and with insulin the sugar level is under control - I regularly have a peg of whiskey and ginger beer with the evening meal. Also, I take a few tablets daily to keep
baboigeorge83
in
Diabetes & Hypertension Help Society
9 months ago
concurrent salvage ADT with IRMT
Hello, 1st time caller, History: RALP - 1/2020, Gleason 7 (4+3), pre treatment psa of 11, psa started climbing 5/2023 to 1.651, was at 2.5 prior to psma/pet/ct on 6/21/2023. Impression: Equivocal small faint focal uptake in prostatetectomy bed and non enlarged left external iliac nodes. Doc at AHN
Hello, 1st time caller, History: RALP - 1/2020, Gleason 7 (4+3), pre treatment psa of 11, psa started climbing 5/2023 to 1.651, was at 2.5 prior to psma/pet/ct on 6/21/2023. Impression: Equivocal small faint focal uptake in prostatetectomy bed and non enlarged left external iliac nodes. Doc at AHN
live2play
in
Advanced Prostate Cancer
9 months ago
Looking for advice, yet again, please.
I had an appointment to see my GP today regarding high blood pressure. I have been taking 10mg Ramipril for some time but recently BP has been high and erratic. Apparently, I cannot go to a higher Ramipril dose, therefore, need to change. I’m aware that some BP medication can interfere with RLS, so
I had an appointment to see my GP today regarding high blood pressure. I have been taking 10mg Ramipril for some time but recently BP has been high and erratic. Apparently, I cannot go to a higher Ramipril dose, therefore, need to change. I’m aware that some BP medication can interfere with RLS, so
Mulberry100
in
Restless Legs Syndrome
9 months ago
memantine
Just picked up rx for memantine for migraines.. does anyone have any knowledge of this RX and RLS? Also got Sumatriptan? Not sure about taking either… Thanks in advance
Just picked up rx for memantine for migraines.. does anyone have any knowledge of this RX and RLS? Also got Sumatriptan? Not sure about taking either… Thanks in advance
hdsocfam
in
Restless Legs Syndrome
9 months ago
Alpro Almond Milk..... why do they do this? Any chemists have words of advice?
I stopped having cow's milk sometime ago and have been very happy using Alpro Almond milk instead. It contains Vitamins D2, E, B2 and B12 and calcium as shown in the photo. I noticed today that the packaging had changed and thought to myself "I wonder if anything else has?" So I checked. Yes indeed
I stopped having cow's milk sometime ago and have been very happy using Alpro Almond milk instead. It contains Vitamins D2, E, B2 and B12 and calcium as shown in the photo. I noticed today that the packaging had changed and thought to myself "I wonder if anything else has?" So I checked. Yes indeed
goingholiday
in
Thyroid UK
9 months ago
New Study - Men on adt for 6 months- 75% recover Testosterone BUT median time is 18 MONTHS!!!????-Orgovyxx may be different? Yes I Hope??
New Meta Analysis From Marcap Consortium says :
Men on adt for 6 months -75% recover Testosterone BUT the median recovery time is 18 months !!!
AND THE OTHER 25% -NEVER!??
I TOOK ORGOVYXX FOR 4 MONTHS ???? THEY SAY IT MAY BE DIFFERENT FOR ORGOVYXX??
P.S. Any studies
New Meta Analysis From Marcap Consortium says :
Men on adt for 6 months -75% recover Testosterone BUT the median recovery time is 18 months !!!
AND THE OTHER 25% -NEVER!??
I TOOK ORGOVYXX FOR 4 MONTHS ???? THEY SAY IT MAY BE DIFFERENT FOR ORGOVYXX??
P.S. Any studies
JWS13
in
Advanced Prostate Cancer
9 months ago
SIB/Flame Protocol
The RO recommends Simultaneous Integrated Boost (SIB) as part of my treatment. PSA was 19.76 (4/2023), then 21.78 (5/2023 to confirm initial PSA). He is concerned that the PSA does not match the Gleason score (4+3, grade 3) as PSA has surpassed 20. Multiplanar MRI and PSMA PET indicated no metastasis
The RO recommends Simultaneous Integrated Boost (SIB) as part of my treatment. PSA was 19.76 (4/2023), then 21.78 (5/2023 to confirm initial PSA). He is concerned that the PSA does not match the Gleason score (4+3, grade 3) as PSA has surpassed 20. Multiplanar MRI and PSMA PET indicated no metastasis
805guy
in
Prostate Cancer Network
9 months ago
Gleason 10 Stage 4 Metastatic Responding Well to Treatment
At this time I feel well with minimal side effects. Feel free to ask questions. Here's a time line of my experience this summer: Investigative Procedures: 22-Mar - PSA test: 26.5 ng/mL 18-Apr - Repeat PSA test: 25.0 ng/mL 1-May - MRI scan of pelvic region for biopsy planning 19-Mar - Transperineal
At this time I feel well with minimal side effects. Feel free to ask questions. Here's a time line of my experience this summer: Investigative Procedures: 22-Mar - PSA test: 26.5 ng/mL 18-Apr - Repeat PSA test: 25.0 ng/mL 1-May - MRI scan of pelvic region for biopsy planning 19-Mar - Transperineal
Brad70
in
Advanced Prostate Cancer
9 months ago
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