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Tocilizumab
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Atorvastatin 40mg added to long medication list!
We think is is familial (hereditary) high cholesterol, but is being exasperated by
Tocilizumab
. My GP said that she would start me on a low dose - is 40mg a low dose? My sister is only on 20mg after increasing from 10mg! What are your experiences?
We think is is familial (hereditary) high cholesterol, but is being exasperated by
Tocilizumab
. My GP said that she would start me on a low dose - is 40mg a low dose? My sister is only on 20mg after increasing from 10mg! What are your experiences?
Moomin8
in
NRAS
3 years ago
Tocilizumab was refused.
Any idea why my rheumo told me that I can't have
tocilizumab
? She would not elaborate. MTX was making me sick.
Any idea why my rheumo told me that I can't have
tocilizumab
? She would not elaborate. MTX was making me sick.
Nagswoman
in
PMRGCAuk
3 years ago
New member, but not new to RA
Had to take Ledertrexate / Methotrexate and when that did not help, I was cleared to get 4-weekly IV's of Roactemra /
Tocilizumab
(in combination with weekly Ledertrexate / Methotrexate).
Had to take Ledertrexate / Methotrexate and when that did not help, I was cleared to get 4-weekly IV's of Roactemra /
Tocilizumab
(in combination with weekly Ledertrexate / Methotrexate).
Hidden
in
NRAS
2 years ago
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Liver function tests with Tocilizumab.
My Rheumatologist proposes that I come off
Tocilizumab
and start Methotrexate . It was my understanding that Metotrexate also caused raised liver enzymes. I don’t want to alienate my lovely Rheumatologist but I really don’t want to start Methotrexate. Have I really run out of options?
My Rheumatologist proposes that I come off
Tocilizumab
and start Methotrexate . It was my understanding that Metotrexate also caused raised liver enzymes. I don’t want to alienate my lovely Rheumatologist but I really don’t want to start Methotrexate. Have I really run out of options?
SheffieldJane
in
PMRGCAuk
3 years ago
An update in my quest …
Hi All, I have had a letter back from the State Health Department regarding my endeavours to get an extension to my allocation of
tocilizumab
. Thing is, it’s a Federal decision so I haven’t given up, but not overly optimistic either. I have attached the letter.
Hi All, I have had a letter back from the State Health Department regarding my endeavours to get an extension to my allocation of
tocilizumab
. Thing is, it’s a Federal decision so I haven’t given up, but not overly optimistic either. I have attached the letter.
LemonZest11
in
PMRGCAuk
3 years ago
Advice please
Surely pred below the magic number is less harmful in the long and short term than
Tocilizumab
?
Surely pred below the magic number is less harmful in the long and short term than
Tocilizumab
?
Mahler2
in
PMRGCAuk
3 years ago
Availability of Tocilizumab [TCZ] on NHS
The original NICE gidance on
Tocilizumab
, TA518, was to be reviewed in 2021. Has that review taken place? Have there been any indications that the 1 year max treatment with TCZ on the NHS will be extended?
The original NICE gidance on
Tocilizumab
, TA518, was to be reviewed in 2021. Has that review taken place? Have there been any indications that the 1 year max treatment with TCZ on the NHS will be extended?
GCA-TCZ
in
PMRGCAuk
3 years ago
What next?
Anybody know what date in March
tocilizumab
stops please? I finished Pred. in October and I haven't been informed what's happening, I haven't got a phone appt. so wandered if anyone knew. Thanks.
Anybody know what date in March
tocilizumab
stops please? I finished Pred. in October and I haven't been informed what's happening, I haven't got a phone appt. so wandered if anyone knew. Thanks.
lindyloy
in
PMRGCAuk
3 years ago
Pred sick day rules.
I also wonder if I should omit taking the
Tocilizumab
this week. Any guidance please.
I also wonder if I should omit taking the
Tocilizumab
this week. Any guidance please.
PastelsinArt
in
PMRGCAuk
3 years ago
Fourth vaccination ( booster)
I am due my Biologic
Tocilizumab
over the weekend and the walk in Clinic is tomorrow morning. Any thoughts welcome, thanks.
I am due my Biologic
Tocilizumab
over the weekend and the walk in Clinic is tomorrow morning. Any thoughts welcome, thanks.
Mouseling
in
NRAS
3 years ago
Time to take a BiTE? Bispecific T-Cell Engagers (BiTEs)
Treatment for severe CRS is primarily
tocilizumab
which is used for covid patients and those receiving CAR-T to dampen the process. Of course Tociizumab has its own side effects which need to be considered.
Treatment for severe CRS is primarily
tocilizumab
which is used for covid patients and those receiving CAR-T to dampen the process. Of course Tociizumab has its own side effects which need to be considered.
Jm954
Administrator
in
CLL Support
3 years ago
CD19 CAR-T cell therapy for B-ALL achieved remarkable efficacy with a complete remission of 70–90%
Our center also reported that the levels of CRP, serum ferritin, and D-dimer are associated with severe CRS, and their reduced levels indicate a promising response to
tocilizumab
or corticosteroids (79).
Our center also reported that the levels of CRP, serum ferritin, and D-dimer are associated with severe CRS, and their reduced levels indicate a promising response to
tocilizumab
or corticosteroids (79).
Scout4answers
in
Advanced Prostate Cancer
2 years ago
Tocilizumab
Just tested positive for COVID, I am on
tocilizumab
and just finished a course of steroids. I'm dreading the week ahead. My colleagues have been quite poorly with it. Is anyone else on
tocilizumab
and had COVID x
Just tested positive for COVID, I am on
tocilizumab
and just finished a course of steroids. I'm dreading the week ahead. My colleagues have been quite poorly with it. Is anyone else on
tocilizumab
and had COVID x
Hidden
in
NRAS
3 years ago
Can I quote you?
Hey experts … PMRpro, DorsetLady et al, My local Member of Parliament has just visited me to get information to put to our Federal Health Minister in an attempt to get an exemption so that I can have my allocation of
tocilizumab
extended, or indeed get the drug made available as it is for RA.
Hey experts … PMRpro, DorsetLady et al, My local Member of Parliament has just visited me to get information to put to our Federal Health Minister in an attempt to get an exemption so that I can have my allocation of
tocilizumab
extended, or indeed get the drug made available as it is for RA.
LemonZest11
in
PMRGCAuk
3 years ago
TCZ question
Does anyone know for how long
tocilizumab
is effective in the system? I can’t find an answer and am wondering, since I have started spacing my TCZ jabs quite considerably. Might be that I don’t need to do this if it only lasts a finite time.
Does anyone know for how long
tocilizumab
is effective in the system? I can’t find an answer and am wondering, since I have started spacing my TCZ jabs quite considerably. Might be that I don’t need to do this if it only lasts a finite time.
LemonZest11
in
PMRGCAuk
3 years ago
JCVI advice recommending a fourth Covid jab for LVV-GCA patients on Tocilizumab?
I have been on (self-injected) Ro Actemra (
Tocilizumab
) since July 2019 for LVV-GCA, and it enabled me to cease all other medications (mainly the dreadful Prednisolone) over the course of the first 9 months.( All of my blood results have been totally normal from 2 weeks after starting
Tocilizumab
and
I have been on (self-injected) Ro Actemra (
Tocilizumab
) since July 2019 for LVV-GCA, and it enabled me to cease all other medications (mainly the dreadful Prednisolone) over the course of the first 9 months.( All of my blood results have been totally normal from 2 weeks after starting
Tocilizumab
and
Suzita76
in
PMRGCAuk
3 years ago
Actrema (tocilizumab) and bladder infection
Hi everyone, I had my first infusion of Actrema this week. The infusion went fine but several hours later I started to get symptoms of a urinary tract infection and ended up with a bad UTI. The doctor put me on an antiobiotic while we wait for the culture results and that has helped. I very rarely get
Hi everyone, I had my first infusion of Actrema this week. The infusion went fine but several hours later I started to get symptoms of a urinary tract infection and ended up with a bad UTI. The doctor put me on an antiobiotic while we wait for the culture results and that has helped. I very rarely get
Charkha
in
PMRGCAuk
2 years ago
Blood Results - low neutrophils and low WBC
She was concerned because my neutrophils are now 1.5 and my WBC is 3.8 (or 3.6 - can't remember 🤔) She suggested that I call my clinical nurse to ask what I need to do regarding my
Tocilizumab
and Metoject injections.
She was concerned because my neutrophils are now 1.5 and my WBC is 3.8 (or 3.6 - can't remember 🤔) She suggested that I call my clinical nurse to ask what I need to do regarding my
Tocilizumab
and Metoject injections.
Moomin8
in
NRAS
3 years ago
My RA is nearly always one-sided
I am having my 3rd infusion in 9 months on Wednesday (
Tocilizumab
). This is due to starting/stopping due to neutrophils dropping. They have said that if this happens again I will be starting yet another biologic.
I am having my 3rd infusion in 9 months on Wednesday (
Tocilizumab
). This is due to starting/stopping due to neutrophils dropping. They have said that if this happens again I will be starting yet another biologic.
tazman3
in
NRAS
2 years ago
Tocilizumab, Metoject/booster vaccine/possible positive
However, I wanted to ask: has anyone taking
Tocilizumab
has a third vaccine and/or booster? If so, did you do your
Tocilizumab
injection? I'm due my booster tomorrow and my
Tocilizumab
injection is due today. My Metoject injection is due Saturday. I'm not sure whether to do my injections this week.
However, I wanted to ask: has anyone taking
Tocilizumab
has a third vaccine and/or booster? If so, did you do your
Tocilizumab
injection? I'm due my booster tomorrow and my
Tocilizumab
injection is due today. My Metoject injection is due Saturday. I'm not sure whether to do my injections this week.
Moomin8
in
NRAS
3 years ago
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