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Tocilizumab
I have had all my blood tests and x-ray, the TB blood test came back failed, the nurse said it was the test that failed not that I have TB. I was asked to go for another blood test last Monday, I am hoping all the results come back clear. I have no idea how long it will take to get the results. I was
I have had all my blood tests and x-ray, the TB blood test came back failed, the nurse said it was the test that failed not that I have TB. I was asked to go for another blood test last Monday, I am hoping all the results come back clear. I have no idea how long it will take to get the results. I was
angel-delight
in
NRAS
9 years ago
Biologic Medication
they have suggested
Tocilizumab
but have also given me a choice of another two meds . Does anybody have any experience or comments pls - I still work full time so I need the least disruption x thank you x
they have suggested
Tocilizumab
but have also given me a choice of another two meds . Does anybody have any experience or comments pls - I still work full time so I need the least disruption x thank you x
LS1957
in
NRAS
9 years ago
Tocilizumab
Hello and thank you to everyone who responded to my previous posts regarding the above injections. I went to see my Biologic's nurse yesterday for a second part to the assessment before I can start the Toci injections. Yesterday the nurse explained about the injections and asked me if I would take
Hello and thank you to everyone who responded to my previous posts regarding the above injections. I went to see my Biologic's nurse yesterday for a second part to the assessment before I can start the Toci injections. Yesterday the nurse explained about the injections and asked me if I would take
angel-delight
in
NRAS
9 years ago
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Tocilizumab injections
Does anyone out there have
tocilizumab
injections? I have had tocs monthly infusion for over 2 years & i have got on really well with it. At my last session the nurse asked if i had been to rhumy clinic lately, i said i was due any time now.
Does anyone out there have
tocilizumab
injections? I have had tocs monthly infusion for over 2 years & i have got on really well with it. At my last session the nurse asked if i had been to rhumy clinic lately, i said i was due any time now.
alibromo
in
NRAS
9 years ago
Tocilizumab
Hello, I have had RD for approx 20 years taking various medications but I haven't heard of
Tocilizumab
. I was wondering if anyone has any information on this medication and if it worked for them. I realize everyone reacts differently and what work for one doesn't always work for another.
Hello, I have had RD for approx 20 years taking various medications but I haven't heard of
Tocilizumab
. I was wondering if anyone has any information on this medication and if it worked for them. I realize everyone reacts differently and what work for one doesn't always work for another.
angel-delight
in
NRAS
9 years ago
Anyone on Tocilizumab
I have had RD for approx 20years, my consultant recommended
Tocilizumab
infusions after Enbrel injections stopped working, but I have yet to discuss this with anyone at the clinic. I have been on various other medication such as MTX, Hydrox and had to come off those due to side effects.
I have had RD for approx 20years, my consultant recommended
Tocilizumab
infusions after Enbrel injections stopped working, but I have yet to discuss this with anyone at the clinic. I have been on various other medication such as MTX, Hydrox and had to come off those due to side effects.
angel-delight
in
Lung Conditions Community Forum
9 years ago
Fed up!
My rheumatologist wants me to try IV
tocilizumab
but unfortunately my hospital (cumberland infirmary in carlisle) are unable to give me this treatment due to lack of infusion facilities! I feel very angry & frustrated I am 44 years old & a single parent of 2 children.
My rheumatologist wants me to try IV
tocilizumab
but unfortunately my hospital (cumberland infirmary in carlisle) are unable to give me this treatment due to lack of infusion facilities! I feel very angry & frustrated I am 44 years old & a single parent of 2 children.
Rachel43
in
NRAS
9 years ago
Tocilizumab
I wanted to ask those of you on tocs how you are given the infusion. I have been on it just over 2 years , i used to have a saline drip while waiting for my meds to be made up. I would then have my tocs which would take 1 hour then 30 mins of saline to flush it through. I went yesterday they have stopped
I wanted to ask those of you on tocs how you are given the infusion. I have been on it just over 2 years , i used to have a saline drip while waiting for my meds to be made up. I would then have my tocs which would take 1 hour then 30 mins of saline to flush it through. I went yesterday they have stopped
alibromo
in
NRAS
9 years ago
Not Happy
Hi all after 6 months on steroids following a real bad time on Cimzia, I was advised was going on
tocilizumab
. So went to see Rehumy nurse beginning of October I was asked how I was doing, general chat until I pointed out I was supposed to be there for the
tocilizumab
.
Hi all after 6 months on steroids following a real bad time on Cimzia, I was advised was going on
tocilizumab
. So went to see Rehumy nurse beginning of October I was asked how I was doing, general chat until I pointed out I was supposed to be there for the
tocilizumab
.
shazbat
in
NRAS
10 years ago
Neutrophils
I am on
Tocilizumab
for my RA and should have had treatment today, but (not for the first time) I was unable to have it because my neutrophils had dropped too low. Does anyone else have the same problem?
I am on
Tocilizumab
for my RA and should have had treatment today, but (not for the first time) I was unable to have it because my neutrophils had dropped too low. Does anyone else have the same problem?
Littlefruitbat
in
NRAS
10 years ago
tocilizumab and neck pain
I had my first infusion on Wednesday and about 2 hours later started having a twinge on the side of my neck which gradually got worse, ended up taking 2 codeine and paracetamol every 4 hours, coving my neck with gel and anything else to try to stop the pain. Two days later the neck is slightly better
I had my first infusion on Wednesday and about 2 hours later started having a twinge on the side of my neck which gradually got worse, ended up taking 2 codeine and paracetamol every 4 hours, coving my neck with gel and anything else to try to stop the pain. Two days later the neck is slightly better
Ozzy
in
NRAS
10 years ago
Hi. I have had a really sore dry throat & what sounds like a smokers cough although i have never smoked in my life. Should i be concerned.
I am on monthly infusion of
tocilizumab
. I have already had a week of antibiotics about 4 weeks ago. Fed up of feeling so ill & tired :-( Alison xx
I am on monthly infusion of
tocilizumab
. I have already had a week of antibiotics about 4 weeks ago. Fed up of feeling so ill & tired :-( Alison xx
alibromo
in
NRAS
10 years ago
Can anyone share their experiences of Tocilizumab? I've been on everything and reacted. This is latest suggestion. I have ANA antibodies.
peejay74
in
NRAS
10 years ago
Lung nodules
My drug is
tocilizumab
, no Mtx, and no other drugs of significance. I use co-codamol too. Thanks.
My drug is
tocilizumab
, no Mtx, and no other drugs of significance. I use co-codamol too. Thanks.
tilstongal
in
NRAS
10 years ago
Changing biologics
No longer having
tocilizumab
will be changing to simponi, not sure how long the change will take to implement, not to long hopefully. Feeling a little more positive today.
No longer having
tocilizumab
will be changing to simponi, not sure how long the change will take to implement, not to long hopefully. Feeling a little more positive today.
Crazyjo
in
NRAS
10 years ago
Cholesterol!
Gone up to 8.4 since been on
tocilizumab
. Not happy as be more drugs to control that to now!
Gone up to 8.4 since been on
tocilizumab
. Not happy as be more drugs to control that to now!
Crazyjo
in
NRAS
10 years ago
Infusion done!
Tocilizumab
infusion done. Need to have lung function for my chest and for the ulcers I need to up my dose of folic acid. Give it couple days and see how the pain goes, if no better I be back on the phone for some more steroids
Tocilizumab
infusion done. Need to have lung function for my chest and for the ulcers I need to up my dose of folic acid. Give it couple days and see how the pain goes, if no better I be back on the phone for some more steroids
Crazyjo
in
NRAS
10 years ago
TOCILIZUMAB (RoActemra)
Here's something to cheer you all up. Just had my 9th Toc infusion and 9th consec month of CRP &ESR of 1 & 2 respect and 9th month of remission without side effects or any infections whatsoever.
Here's something to cheer you all up. Just had my 9th Toc infusion and 9th consec month of CRP &ESR of 1 & 2 respect and 9th month of remission without side effects or any infections whatsoever.
harryhunt
in
NRAS
10 years ago
Nearly time
Blood test this morning, fingers crossed all ok so can have my
tocilizumab
infusion Wednesday afternoon.. Felt like a long wait but almost here. Just hope I get the relief I need this time as can't carry on like been the last two weeks
Blood test this morning, fingers crossed all ok so can have my
tocilizumab
infusion Wednesday afternoon.. Felt like a long wait but almost here. Just hope I get the relief I need this time as can't carry on like been the last two weeks
Crazyjo
in
NRAS
10 years ago
So slow!
This week seems to be going so slow, rang rhuemy nurse again this time she was polite but advised have to wait for my
tocilizumab
and if need more steroids will see after that... Frustrated and in pain!
This week seems to be going so slow, rang rhuemy nurse again this time she was polite but advised have to wait for my
tocilizumab
and if need more steroids will see after that... Frustrated and in pain!
Crazyjo
in
NRAS
10 years ago
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