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Blood Results - and poor treatment/support from NHS - feel lost and unwell
I have been diagnosed severe Graves with high antibodies for about 8 years and suffered a number of relapses where usually end up in A&E. Due to reading a lot on this forum and other websites I have refused RAI treatment due to the often poor outcomes and don’t really want surgery either as read about
I have been diagnosed severe Graves with high antibodies for about 8 years and suffered a number of relapses where usually end up in A&E. Due to reading a lot on this forum and other websites I have refused RAI treatment due to the often poor outcomes and don’t really want surgery either as read about
LonelyPlace
in
Thyroid UK
11 months ago
Blood test results
Help! I received my blood test results today and had a little panic!! I wondered if I was over medicated. I’m on 50 micrograms Levothyroxine which I realise now that I shouldn’t have taken on the morning of the test. I took the Levo at 5.20am and had the blood test at 10.20am. The results were:- Serum
Help! I received my blood test results today and had a little panic!! I wondered if I was over medicated. I’m on 50 micrograms Levothyroxine which I realise now that I shouldn’t have taken on the morning of the test. I took the Levo at 5.20am and had the blood test at 10.20am. The results were:- Serum
5ESU
in
Thyroid UK
1 year ago
Eczema & Glaucoma
I have glaucoma in one eye and occular hypertension in the other & am in the midst of my worst eczema flare up in over 30 years. What safe drugs can I take to alleviate the rash & (even worse) the itciness that is coming with it? I’ve tried over the counter recommended lotions (50/50, aqueous cream
I have glaucoma in one eye and occular hypertension in the other & am in the midst of my worst eczema flare up in over 30 years. What safe drugs can I take to alleviate the rash & (even worse) the itciness that is coming with it? I’ve tried over the counter recommended lotions (50/50, aqueous cream
YoungontheOutside
in
Glaucoma UK
1 year ago
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Blood test
In reply to my previous post on blood test and gap between last dosage and blood test ,started taking Thyroid S NDT on 7th Sept starting with 1/2 tab increasing to 1 tab on 17th Sept 2 tabs on 20th Sept then 3 tabs on 29th Sept but felt brain malfunction and bodily weakness worse on 3 tabs so reduced
In reply to my previous post on blood test and gap between last dosage and blood test ,started taking Thyroid S NDT on 7th Sept starting with 1/2 tab increasing to 1 tab on 17th Sept 2 tabs on 20th Sept then 3 tabs on 29th Sept but felt brain malfunction and bodily weakness worse on 3 tabs so reduced
delboy25
in
Thyroid UK
11 months ago
Help!
In the last few years I have put on a lot of weight on my stomach.. but have very slim arms and legs. My waist is now 48 inches. I cannot wear anything that zips up etc around my waist. I am normally a 32 inch waist. I have had my pituitary gland looked at, and it is slightly enlarged, but nothing
In the last few years I have put on a lot of weight on my stomach.. but have very slim arms and legs. My waist is now 48 inches. I cannot wear anything that zips up etc around my waist. I am normally a 32 inch waist. I have had my pituitary gland looked at, and it is slightly enlarged, but nothing
PaulaGreene
in
Thyroid UK
1 year ago
At my wits end
Hi Everybody, Can I buy the Tirsint or not , on Tirosint. Com. I obviously haven't been Prescribed it, as in uk. It'll i can't get it .I'm at wits end . I ask before doctor if they can change it , and they say there is no other medicine .is this true ? How come , just got message say ask for other
Hi Everybody, Can I buy the Tirsint or not , on Tirosint. Com. I obviously haven't been Prescribed it, as in uk. It'll i can't get it .I'm at wits end . I ask before doctor if they can change it , and they say there is no other medicine .is this true ? How come , just got message say ask for other
Goldengirl69
in
Thyroid UK
1 year ago
Bruises, Ankles Swelling, ETC.
Never a dull moment. Diagnosed with PMR since Jan '22 and now at 32 mg. Pred after that GCA scare in Jan. 2 3. I am 73, but the bruising has just begun. Nasty ones and I don't remember bumping the areas where they are (like the joint of my big toe at the side), so it doesn't take much. Presuming thinning
Never a dull moment. Diagnosed with PMR since Jan '22 and now at 32 mg. Pred after that GCA scare in Jan. 2 3. I am 73, but the bruising has just begun. Nasty ones and I don't remember bumping the areas where they are (like the joint of my big toe at the side), so it doesn't take much. Presuming thinning
Missus835
in
PMRGCAuk
1 year ago
is this sub clinical or hypo
the above are my daughter’s result. Usual protocols for testing followed. She’s unmedicated, 24 yrs old. She does take Propanalol for anxiety. Symptoms are constipation, fatigue, hair loss, outer third of brows have disappeared, headaches. I appreciate there’s no B12 vit D or ferritin results. It was
the above are my daughter’s result. Usual protocols for testing followed. She’s unmedicated, 24 yrs old. She does take Propanalol for anxiety. Symptoms are constipation, fatigue, hair loss, outer third of brows have disappeared, headaches. I appreciate there’s no B12 vit D or ferritin results. It was
Daisywhoopsa
in
Thyroid UK
11 months ago
Iodine
I know there are discussions about the possibility of worsening Hashimotos but would there be a problem having a very low dose of it whilst on T3 and T4 meds if careful?
I know there are discussions about the possibility of worsening Hashimotos but would there be a problem having a very low dose of it whilst on T3 and T4 meds if careful?
Rock_chick1
in
Thyroid UK
1 year ago
Drs. Susan O'Brien and Catherine Wu Presented the Binet-Rai Medal at 20th International Workshop on Chronic Lymphocytic Leukemia
Two doctors who have spent many many hours helping the CLL community.
I FEEL SURE THAT WE ALL EXPRESS OUR MANY THANKS.
THIS IS AN AWARD THAT IS WELL DESERVED.
During this past weekend's 20th biennial International Workshop on Chronic Lymphocytic Leukemia (iwCLL), Susan M
Two doctors who have spent many many hours helping the CLL community.
I FEEL SURE THAT WE ALL EXPRESS OUR MANY THANKS.
THIS IS AN AWARD THAT IS WELL DESERVED.
During this past weekend's 20th biennial International Workshop on Chronic Lymphocytic Leukemia (iwCLL), Susan M
Kwenda
in
CLL Support
1 year ago
On Lithium, have hypothyroidism,no longer responding to T4 and less to T3. Starting low iodine diet.
I have just started a low Iodine diet as set out by a recent book advocating this to reset the thyroid for Hypothyroidism patients. I have been on Lithium by Bipolar for 15 years. 7 years ago I developed Hypothyroidism. Initially I partially responded to T4 but after 3-4 years I completely slowed down
I have just started a low Iodine diet as set out by a recent book advocating this to reset the thyroid for Hypothyroidism patients. I have been on Lithium by Bipolar for 15 years. 7 years ago I developed Hypothyroidism. Initially I partially responded to T4 but after 3-4 years I completely slowed down
RosannaA
in
Thyroid UK
1 year ago
Ectopics from thyroid?
Hi everyone, I wanted to ask , I had rai 2013 and a year after started experiencing ectopic beats. Took a hold of my life. They come amd go , hearts tests all clear. Does anyone else get them and think they are from not having a thyroid? Getting a dose right is near impossible , and drs say.no. connection
Hi everyone, I wanted to ask , I had rai 2013 and a year after started experiencing ectopic beats. Took a hold of my life. They come amd go , hearts tests all clear. Does anyone else get them and think they are from not having a thyroid? Getting a dose right is near impossible , and drs say.no. connection
Contra21
in
Thyroid UK
1 year ago
Ramblings of an old Parky , Vitamins and finding a professional methodology
I have read so much information on this theme that I should know the subject, but I do not , and the more I read the more I appreciate those professionals that study and research it . My general understanding is that in the past a diet resulting from a complete lack of a particular vitamin would cause
I have read so much information on this theme that I should know the subject, but I do not , and the more I read the more I appreciate those professionals that study and research it . My general understanding is that in the past a diet resulting from a complete lack of a particular vitamin would cause
Gymsack
in
Cure Parkinson's
1 year ago
Advice urgently needed: Endo reducing levo dose yet again based on flawed blood results.
Hello everyone I had thyroidectomy 1992 and since then been on levothyroxine. Roughly, 6 weeks ago levo dose was reduced by GP from 75/50mcg alternate days, to 50mcg daily due to T4 being over range. A very toxic iodine based medication I'm prescribed to treat afib, namely Amiodarone, is pushed T4 over
Hello everyone I had thyroidectomy 1992 and since then been on levothyroxine. Roughly, 6 weeks ago levo dose was reduced by GP from 75/50mcg alternate days, to 50mcg daily due to T4 being over range. A very toxic iodine based medication I'm prescribed to treat afib, namely Amiodarone, is pushed T4 over
DizzyD
in
Thyroid UK
1 year ago
Iodine Uptake?
I need to use iodine solution, but am not sure what "absorption of iodine from this solution may lower the iodine uptake of the thyroid" means in terms of my hypothyroidism. Does the reduction of uptake mean that I will be more hypo, or less?
I need to use iodine solution, but am not sure what "absorption of iodine from this solution may lower the iodine uptake of the thyroid" means in terms of my hypothyroidism. Does the reduction of uptake mean that I will be more hypo, or less?
raglansleeve
in
Thyroid UK
1 year ago
Scan Query
I was supposed to have a scan at a private clinic but when i told them I was allergic to iodine they said I must have it in hospital because it was too risky. Does anyone know why?
I was supposed to have a scan at a private clinic but when i told them I was allergic to iodine they said I must have it in hospital because it was too risky. Does anyone know why?
fairgo45
in
Atrial Fibrillation Support
1 year ago
update
apologies for the vague post.. I was diagnosed as over active thyroid I was put in carbimazole at first which worked however then i became unwell and it dropped my iron levels and white blood cell count. I was then put in propylthiouracil 100mg daily then I had RAI in march this year. I have been
apologies for the vague post.. I was diagnosed as over active thyroid I was put in carbimazole at first which worked however then i became unwell and it dropped my iron levels and white blood cell count. I was then put in propylthiouracil 100mg daily then I had RAI in march this year. I have been
Rubydoo23
in
Thyroid UK
1 year ago
Headlines/chapters of our upcoming eBook
I thought it might be useful to give TUK readers the chapter headlines we will use in the upcoming eBook, giving an indication of the scope of it and the basic thrust .
Hypothyroidism - Reappraisal of Pathophysiology, Diagnosis and Treatment with Implications for a New Paradigm 1
Foreword
I thought it might be useful to give TUK readers the chapter headlines we will use in the upcoming eBook, giving an indication of the scope of it and the basic thrust .
Hypothyroidism - Reappraisal of Pathophysiology, Diagnosis and Treatment with Implications for a New Paradigm 1
Foreword
diogenes
in
Thyroid UK
1 year ago
BTF RAI Study
This study sponsored by the BTF looks like it will ve very useful https://www.btf-thyroid.org/news/2023-btf-research-award-winner?fbclid=iwar3enrjb1xoxe5l10tf2ap64qbpav6pchgch4nlafezvsgfjgncrdp9mdu0 . A lot of thyroid research is fairly useless so it's good to see a study that will be useful whatever
This study sponsored by the BTF looks like it will ve very useful https://www.btf-thyroid.org/news/2023-btf-research-award-winner?fbclid=iwar3enrjb1xoxe5l10tf2ap64qbpav6pchgch4nlafezvsgfjgncrdp9mdu0 . A lot of thyroid research is fairly useless so it's good to see a study that will be useful whatever
jimh111
in
Thyroid UK
1 year ago
Armour
Just joined the group... thank you! Hoping for some help, been on levothyroxine now for over 23 years, it was effective for a few years, but the weight, joint aches started and got worse. The usual for underactive thyroid. Anyway fast forward 20 plus years, the weight sticks better than Gorilla Glue
Just joined the group... thank you! Hoping for some help, been on levothyroxine now for over 23 years, it was effective for a few years, but the weight, joint aches started and got worse. The usual for underactive thyroid. Anyway fast forward 20 plus years, the weight sticks better than Gorilla Glue
SuzanneHowland
in
Thyroid UK
1 year ago
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