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Experiences with
Systemic mastocytosis
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Communities
4 public communities
The UK Mastocytosis Support Group
583 members
The UK Mastocytosis Support Group community is for anyone with diagnosed or un-diagnosed Mast Cell Diseases or those supporting them. The UK Mastocytosis Support Group is a charity that supports people with Mast Cell Diseases including Mastocytosis and mast cell activation syndromes. We support people by informing them of various aspects of Mast Cell Diseases and testing.
Ehlers-Danlos Support UK
2,987 members
Ehlers-Danlos Support UK (EDS) assists those with Ehlers-Danlos. It is a genetic connective tissue condition that is a multi-systemic syndrome.
LUpus Patients Understanding and Support
3,456 members
Lupus Patients Understanding & Support (LUPUS) is a non-profit organisation for patients-affected-by-systemic lupus erythematosus, lupus variant conditions and the antiphospholipid antibody (Hughes) Syndrome. Our organisation was founded in 2000 with the intention of providing free information and free online psychological support. Our organisation is unique in that it has its own in-house counsellor and psychotherapist. Lupus Patients Understanding & Support (LUPUS) has two further websites. Our information website can be seen here: http://www.lupus-support.org.uk while our online psychological support at the LUpus Message Board is here: http://www.lupus-support.org and registration is free. Come and Join Us on Facebook: https://www.facebook.com/SUPPORT4LUPUS We are here to help and support you and your families. Please contact us or share your stories here on HealthUnlocked!
Multiple System Atrophy Trust
1,731 members
The Multiple System Atrophy Trust is the only charity in the UK and Ireland that provides information and support to people affected by Multiple System Atrophy (MSA). We do this through a number of ways including our three MSA Nurse Specialists, a network of Support Groups, information resources and our MSA News magazine. We also provide funding towards research projects and small grants to our members. We are entirely funded by voluntary donations. Share your stories, ask questions and support one another!