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Misdiagnosis? Fibromyalgia or PA?
I was diagnosed with fibromyalgia about 19 years ago, but I wonder whether it was a misdiagnosis. I am still waiting for a PA diagnosis, but have been experiencing many of the symptoms of PA for months. Many of the tests I have done have shown low B12, low folate, low ferritin, all within range but low
I was diagnosed with fibromyalgia about 19 years ago, but I wonder whether it was a misdiagnosis. I am still waiting for a PA diagnosis, but have been experiencing many of the symptoms of PA for months. Many of the tests I have done have shown low B12, low folate, low ferritin, all within range but low
Chickens44
in
Pernicious Anaemia Society
4 months ago
thyroxine
hi there have been having a few problems with taking other meds besides thyroxine which I take in the morning .i am thinking of switching to the evening anybody have any problems with this ? Thanks
hi there have been having a few problems with taking other meds besides thyroxine which I take in the morning .i am thinking of switching to the evening anybody have any problems with this ? Thanks
Gettingoldnow
in
Thyroid UK
4 months ago
Scams
Hello everyone! I wanted to just give a quick post on a scam I experienced here on a chat. It was back in December. I did not approach anyone they sent me a message through the chat. They said, why don't you take T3 on your own? They were very convincing. How they were saying how they took the T3 and
Hello everyone! I wanted to just give a quick post on a scam I experienced here on a chat. It was back in December. I did not approach anyone they sent me a message through the chat. They said, why don't you take T3 on your own? They were very convincing. How they were saying how they took the T3 and
Easylover
in
Thyroid UK
4 months ago
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Run out of t3
Could someone please message me with somewhere I can purchase tiromel quite quickly? I usually stock up when I go to Turkey, but have been unable to go. Stupidly, I didn't realise how low I had got. My gp is aware I outsource my supply.
Could someone please message me with somewhere I can purchase tiromel quite quickly? I usually stock up when I go to Turkey, but have been unable to go. Stupidly, I didn't realise how low I had got. My gp is aware I outsource my supply.
JBLOVELL
in
Thyroid UK
4 months ago
BRCA genetic testing providers
I have signed up to take part in the NHS Jewish-BRCA screening programme https://nhsjewishbrcaprogramme.org.uk/ but I will not get the test or the results before the first round of my IVF starts next month. I only have 1 Jewish grandparent so my risks are low but not as low as non-Jewish person. My grandparent
I have signed up to take part in the NHS Jewish-BRCA screening programme https://nhsjewishbrcaprogramme.org.uk/ but I will not get the test or the results before the first round of my IVF starts next month. I only have 1 Jewish grandparent so my risks are low but not as low as non-Jewish person. My grandparent
Rachiebabe
in
Fertility Network UK
4 months ago
Surviving cancer: some options for you to consider
I just want to share with you all, that I was diagnosed with a T3 (5cm) Tumour called Adenocarcinoma, situated in the junction of the lower oesophagus and upper G. I (stomach) in January. Last year I kept complaining of : chest pains, sore tongue and throat, thick mucus and not being able to gain weight
I just want to share with you all, that I was diagnosed with a T3 (5cm) Tumour called Adenocarcinoma, situated in the junction of the lower oesophagus and upper G. I (stomach) in January. Last year I kept complaining of : chest pains, sore tongue and throat, thick mucus and not being able to gain weight
Artiquety
in
Oesophageal & Gastric Cancer
4 months ago
Naltrexone
I am on thyroxine and T3 medication for under active thyroid. A friend was recently prescribed low dose naltrexone to help with inflammation in the body as well as being on thyroid medication. Does anyone know if naltrexone is available to purchase without prescription in the UK as I would like to trial
I am on thyroxine and T3 medication for under active thyroid. A friend was recently prescribed low dose naltrexone to help with inflammation in the body as well as being on thyroid medication. Does anyone know if naltrexone is available to purchase without prescription in the UK as I would like to trial
Cassandra
in
Thyroid UK
4 months ago
help - I’m new to this
good morning , I am a middle aged lady who was diagnosed incidentally with thyroid nodule back in August 2023 . I had a U3 diagnosis of right lobe thyroid nodule . Had FNA in October 2023 no frank malignant cells to see so was classed as thy2c and was discharged from ENT . In January this year I started
good morning , I am a middle aged lady who was diagnosed incidentally with thyroid nodule back in August 2023 . I had a U3 diagnosis of right lobe thyroid nodule . Had FNA in October 2023 no frank malignant cells to see so was classed as thy2c and was discharged from ENT . In January this year I started
Firtyqwerty
in
Thyroid UK
4 months ago
Ideal ranges info
Hello everyone,Does anyone have a post on calculating target ranges for each of the vitamins we care about (vit d, ferritin etc). I have scrolled through pinned posts and searched but couldn't find the info in one place. Happy Friday to all.
Hello everyone,Does anyone have a post on calculating target ranges for each of the vitamins we care about (vit d, ferritin etc). I have scrolled through pinned posts and searched but couldn't find the info in one place. Happy Friday to all.
Astrido
in
Thyroid UK
4 months ago
Advice for blood test results
Hi all, I would really appreciate some help with my latest blood test results. I have gradually reduced my meds over time, from 150/125 mcg Levothyroxine and 20 mcg liothyronine, to 75 mcg Levothyroxine and 10 mcg liothyronine. I was diagnosed with Hashimoto’s back in 2013, but my TPO has been within
Hi all, I would really appreciate some help with my latest blood test results. I have gradually reduced my meds over time, from 150/125 mcg Levothyroxine and 20 mcg liothyronine, to 75 mcg Levothyroxine and 10 mcg liothyronine. I was diagnosed with Hashimoto’s back in 2013, but my TPO has been within
Elisabetho
in
Thyroid UK
4 months ago
Haematologist’s unsupportive B12 response
In a recent pathology test, my gastroenterologist was concerned with my low haemoglobin count and a high reticulocyte count. She mentioned that although I’m low in ferritin (40) I’m not yet needing an iron infusion just yet. My white cell count was seemingly low also and she suggested that I should get
In a recent pathology test, my gastroenterologist was concerned with my low haemoglobin count and a high reticulocyte count. She mentioned that although I’m low in ferritin (40) I’m not yet needing an iron infusion just yet. My white cell count was seemingly low also and she suggested that I should get
GoneWithTheWind1972
in
Pernicious Anaemia Society
4 months ago
Dithyron?
Hi,Are there any members using Dithyron atm? Don't know much about it.....is it safe to use? Is the T3/T4 ratio correct? Regards
Hi,Are there any members using Dithyron atm? Don't know much about it.....is it safe to use? Is the T3/T4 ratio correct? Regards
Booblet
in
Thyroid UK
4 months ago
ferritin level and symptom question
I first posted a few months ago and based upon replies there were mixed feelings on whether my symptoms were truly RLS. Main complaints were a current/restless sensation in my legs and some twitching, more at night but also in the daytime if I was sitting for long. The symptom that was not fitting
I first posted a few months ago and based upon replies there were mixed feelings on whether my symptoms were truly RLS. Main complaints were a current/restless sensation in my legs and some twitching, more at night but also in the daytime if I was sitting for long. The symptom that was not fitting
Corolla1
in
Restless Legs Syndrome
4 months ago
My results
100 mcg levo37.5mcg of t3 I feel shit and swollen
100 mcg levo37.5mcg of t3 I feel shit and swollen
jparsss
in
Thyroid UK
4 months ago
b12 keeps dropping ferritin
Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after shots all last summer. I tried many supplements until landing on the least bad offender to my stomach. I got my ferritin to 33, but it dropped
Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after shots all last summer. I tried many supplements until landing on the least bad offender to my stomach. I got my ferritin to 33, but it dropped
MuppDog
in
Pernicious Anaemia Society
4 months ago
RLS: nutrition matters, n = 1
Hi, just want to give an update on an experiment I've alluded to in posts on a few others' threads. I recently was able to wean completely off my pramipexole Rx over the course of about a month. (I had been taking it for 6-7 years, increasing over time b/c of augmentation, from .12 mg nightly to about
Hi, just want to give an update on an experiment I've alluded to in posts on a few others' threads. I recently was able to wean completely off my pramipexole Rx over the course of about a month. (I had been taking it for 6-7 years, increasing over time b/c of augmentation, from .12 mg nightly to about
HawkintheHills
in
Restless Legs Syndrome
4 months ago
Weaning off proprananol
Hello everyone,I have Graves disease and had a thyroidectomy in June 2022.I am having conversion problems ,even with a very over-range T4.I know proprananol can reduce T4 to T3 conversion and am looking to try and wean off it. My GP put me on 20mg 3x a day as a migraine preventative. I also take 20mg
Hello everyone,I have Graves disease and had a thyroidectomy in June 2022.I am having conversion problems ,even with a very over-range T4.I know proprananol can reduce T4 to T3 conversion and am looking to try and wean off it. My GP put me on 20mg 3x a day as a migraine preventative. I also take 20mg
Cavapoochonowner
in
Thyroid UK
4 months ago
Teva shortage?
I love Teva thyroxine, it seems to be the only one I function well on. After having lots of problems getting it from my surgery pharmacy I switched to pharmacy2you and it has arrived within 2 days for the last 6 months. However this month it is 2 weeks late and I will run out soon and in phoning them
I love Teva thyroxine, it seems to be the only one I function well on. After having lots of problems getting it from my surgery pharmacy I switched to pharmacy2you and it has arrived within 2 days for the last 6 months. However this month it is 2 weeks late and I will run out soon and in phoning them
Auntyp62
in
Thyroid UK
4 months ago
New test results after NHS ones
Hi I got some good advice after being dispirited last week by 'normal' results from my GP. I got a set done by Monitor my health, hope you can read them. My question is, should I go back to my GP and ask for an increase in Levo from 75mcg to 100mcg or is that not going to help my T3 - which is presumably
Hi I got some good advice after being dispirited last week by 'normal' results from my GP. I got a set done by Monitor my health, hope you can read them. My question is, should I go back to my GP and ask for an increase in Levo from 75mcg to 100mcg or is that not going to help my T3 - which is presumably
CinnamonNutmeg
in
Thyroid UK
4 months ago
T3 greece
did something change? I can’t get Dithyron T3/T4 anywhere in Greece. Haven’t tried just T3 can you still get that?
did something change? I can’t get Dithyron T3/T4 anywhere in Greece. Haven’t tried just T3 can you still get that?
jrenander
in
Thyroid UK
4 months ago
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