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First NHS Endo Apt - a battle story
I've even been put on
steroids
! Now during these investigations, sub-clinical hyperthyroidism was found and I had to fight the GP for levothyroxine - I felt better on this however still get pain. I'm currently on 50mg.
I've even been put on
steroids
! Now during these investigations, sub-clinical hyperthyroidism was found and I had to fight the GP for levothyroxine - I felt better on this however still get pain. I'm currently on 50mg.
CherryPie2
in
Thyroid UK
2 months ago
Overdoing it?
Between starting
Steroids
in July 2023 and going on holiday in November I had put on a stone and got sluggish and I was still tired and inactive. Three weeks' warm sunshine and some peace and quiet and I lost half a stone and got to regularly swimming a mile a day and clocking 10,000 steps.
Between starting
Steroids
in July 2023 and going on holiday in November I had put on a stone and got sluggish and I was still tired and inactive. Three weeks' warm sunshine and some peace and quiet and I lost half a stone and got to regularly swimming a mile a day and clocking 10,000 steps.
Curious101
in
PMRGCAuk
5 months ago
Histiocytoid Sweet's syndrome - unusual crusted lesions
-
Steroids
only gave temporary relief. - Condition successfully managed with dapsone. "Corticosteroids are considered first-line therapy for HSS, and our patient was initially treated with corticosteroids with temporary relief.
-
Steroids
only gave temporary relief. - Condition successfully managed with dapsone. "Corticosteroids are considered first-line therapy for HSS, and our patient was initially treated with corticosteroids with temporary relief.
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
27 days ago
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blood results rising inflammation markers
I was advised my gp to increase my
steroids
from 5mg to 8mg in August due to increased inflammation markers. I had my bloods taken again after two weeks on 8mg and inflammation markers normal.
I was advised my gp to increase my
steroids
from 5mg to 8mg in August due to increased inflammation markers. I had my bloods taken again after two weeks on 8mg and inflammation markers normal.
Lynlea
in
PMRGCAuk
8 months ago
COPD ( Bronchiectasis) / RA.
I was most Interested in your comments, particularly the fact that you have been on
Steroids
for a number of years and you are also receiving a Jak Inhibitor to treat your RA.May I ask you, if you also suffer from any COPD symptoms, as a Consultant told me that I couldn't have that type of treatment
I was most Interested in your comments, particularly the fact that you have been on
Steroids
for a number of years and you are also receiving a Jak Inhibitor to treat your RA.May I ask you, if you also suffer from any COPD symptoms, as a Consultant told me that I couldn't have that type of treatment
Chanelady
in
NRAS
8 months ago
Newly diagnosed
I'm unable to have
steroids
and was wondering how the alternatives work. Thanks on advance
I'm unable to have
steroids
and was wondering how the alternatives work. Thanks on advance
Joann63
in
PMRGCAuk
9 months ago
Update.
The
steroids
I am on has have improved my haemoglobin and I am reducing the dosage over 4 weeks. I am to stay on folic acid tablets for the mean time. The letter I received states that my haematologist cannot say whether or when the Rituximab I received will kick in.
The
steroids
I am on has have improved my haemoglobin and I am reducing the dosage over 4 weeks. I am to stay on folic acid tablets for the mean time. The letter I received states that my haematologist cannot say whether or when the Rituximab I received will kick in.
Jacksc06
in
CLL Support
7 months ago
I stopped steroids rapidly and all PMR symptoms returned - HELP!
I have difficult situation as I was responding really well 25mg of
steroids
per day, when I developed a CSR in my eye.
I have difficult situation as I was responding really well 25mg of
steroids
per day, when I developed a CSR in my eye.
Megasorearms
in
PMRGCAuk
9 months ago
Can’t reduce below 5mg
But I’m worried that I’ll never be able to get off the
steroids
! Any advice please? I’d be very grateful.
But I’m worried that I’ll never be able to get off the
steroids
! Any advice please? I’d be very grateful.
Apple6
in
PMRGCAuk
5 months ago
After 25 days back on prednisone...
Last week my C-rp was 3, down from 6 before returning to
steroids
. ESR was 23, down from 63. Will have regular bloods to keep track. Full glucose bloods showed possibly pre diabetic, have taken immediate steps to cut processed sugar from diet. Am life long vegetarian with a sweet tooth!
Last week my C-rp was 3, down from 6 before returning to
steroids
. ESR was 23, down from 63. Will have regular bloods to keep track. Full glucose bloods showed possibly pre diabetic, have taken immediate steps to cut processed sugar from diet. Am life long vegetarian with a sweet tooth!
Biba5
in
PMRGCAuk
2 months ago
Follow up to my last post about nausea & unable to eat.
Then they decided I needed an extra 2 units of rapid acting insulin twice a day - because I was on
steroids
, they said. I told them I'd already allowed for that since I've been on
steroids
over 3 years but they insisted on giving it to me. I had a hypoglycaemic reaction.
Then they decided I needed an extra 2 units of rapid acting insulin twice a day - because I was on
steroids
, they said. I told them I'd already allowed for that since I've been on
steroids
over 3 years but they insisted on giving it to me. I had a hypoglycaemic reaction.
strawclutching
in
PMRGCAuk
4 months ago
Alternate day prednisolone.
I was keen to take less
steroids
so I have reduced my prednisolone by 0.5mg/day on alternate days, reducing every 3 weeks. So 4/3.5 then 4/3.0 and so on to 4mg alternate days and nil on the other days. Obviously this has taken some time.
I was keen to take less
steroids
so I have reduced my prednisolone by 0.5mg/day on alternate days, reducing every 3 weeks. So 4/3.5 then 4/3.0 and so on to 4mg alternate days and nil on the other days. Obviously this has taken some time.
Whippet1960
in
PMRGCAuk
6 months ago
Head MRI
I've been on prednisolone to help the plexopathy, which coincidentally helped the other symptoms noted above, sadly I'm now off the
steroids
and things are declining again.
I've been on prednisolone to help the plexopathy, which coincidentally helped the other symptoms noted above, sadly I'm now off the
steroids
and things are declining again.
Viklou
in
My MSAA Community
2 months ago
GCA relapse?
I really don’t want to get back on
steroids
unless I am sure this is a relapse. They’ve played havoc with my body. Jackie
I really don’t want to get back on
steroids
unless I am sure this is a relapse. They’ve played havoc with my body. Jackie
Jsaoughs
in
PMRGCAuk
9 months ago
Thank you
I was immediately admitted to hospital and given IV
steroids
to try to bring my inflammatory markers down (they started at 132).
I was immediately admitted to hospital and given IV
steroids
to try to bring my inflammatory markers down (they started at 132).
Dance62
in
PMRGCAuk
3 months ago
There’s no point to this post
I’m still not taking the
steroids
for the PMR so I feel like I’m up sh*t creek without a paddle! 🤷♀️😆. Thanks for listening. X
I’m still not taking the
steroids
for the PMR so I feel like I’m up sh*t creek without a paddle! 🤷♀️😆. Thanks for listening. X
Bramble2000
in
PMRGCAuk
7 months ago
Not PMR? Not sure what to do next
Not sure the
steroids
worked as it hasn’t really improved. Went to a private rheumatologist, and have just had all the results back. She can see no cause of the pain, all bloods and scans have come back ok. Says it’s not PMR due to not presenting the symptoms and that he is male and under 65.
Not sure the
steroids
worked as it hasn’t really improved. Went to a private rheumatologist, and have just had all the results back. She can see no cause of the pain, all bloods and scans have come back ok. Says it’s not PMR due to not presenting the symptoms and that he is male and under 65.
Avdb
in
PMRGCAuk
4 months ago
Acute steroid myopathy
Finally spoke to NHS rheumatologist today (second consultation) and been advised that I don't have PMR because of my age, normal blood work and non response to
steroids
.
Finally spoke to NHS rheumatologist today (second consultation) and been advised that I don't have PMR because of my age, normal blood work and non response to
steroids
.
Body_bonkers
in
PMRGCAuk
9 months ago
Week 3 done
My opthamologist saw me yesterday and I'm now on several different medications as my eyes aren't producing many tears including an immunosuppressant and temporary
steroids
. She thinks that it seems to be an autoimmune cause.
My opthamologist saw me yesterday and I'm now on several different medications as my eyes aren't producing many tears including an immunosuppressant and temporary
steroids
. She thinks that it seems to be an autoimmune cause.
Irishgirlrunning23
in
Couch to 5K
5 months ago
Asthma and mental health effects.
I think I am reacting to the
steroids
( to be discussed with the nurse) and wonder if a steroid free medication might be a possible alternative . I am at my wits end .
I think I am reacting to the
steroids
( to be discussed with the nurse) and wonder if a steroid free medication might be a possible alternative . I am at my wits end .
Hugmaker
in
Asthma Community Forum
3 months ago
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