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Treating autoimmune hemolytic anemia (AIHA)
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
SantaZia
in
CLL Support
2 years ago
Medication mixes
My 9 yr old son has been on the highest dose of Desmopressin for a year, and movicol and docusate sodium. We recently changed to both Pico sulfate, and Laxido, and he is now wetting almost every night. Does anyone know if it will be the new medication conflicting with the Desmo melts? Many thanks.
My 9 yr old son has been on the highest dose of Desmopressin for a year, and movicol and docusate sodium. We recently changed to both Pico sulfate, and Laxido, and he is now wetting almost every night. Does anyone know if it will be the new medication conflicting with the Desmo melts? Many thanks.
Hopeful1234567
in
ERIC
2 years ago
Implications of butyrate and its derivatives for gut health and animal production 2018
Implications of butyrate and its derivatives for gut health and animal production https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC6104520/ Looks like I won't be dropping butyrate anytime soon. 2. Butyrate in the human colon The importance of butyrate for human colon health has been demonstrated in
Implications of butyrate and its derivatives for gut health and animal production https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC6104520/ Looks like I won't be dropping butyrate anytime soon. 2. Butyrate in the human colon The importance of butyrate for human colon health has been demonstrated in
Bolt_Upright
in
Cure Parkinson's
2 years ago
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Private endocrinologist
I want to get a second opinion on advice from endocrinologist to have radioactive iodine. Can anyone recommend someone within the London area? I would be grateful if you could pm me. Many thanks.
I want to get a second opinion on advice from endocrinologist to have radioactive iodine. Can anyone recommend someone within the London area? I would be grateful if you could pm me. Many thanks.
Silversnow
in
Thyroid UK
2 years ago
Help with thyroid blood tests
Good afternoon everyone ❤️ I was wondering if anyone could help with these thyroid results, ( these results are for my cousin who's been suffering with overactive thyroid symptoms since early last year).. TSH... (0.25)...RANGE..(0.30..4.50)...T3..(4.6.)..RANGE..( 3.1..6.8).. T4.. (19.1)..RANGE..(11.00
Good afternoon everyone ❤️ I was wondering if anyone could help with these thyroid results, ( these results are for my cousin who's been suffering with overactive thyroid symptoms since early last year).. TSH... (0.25)...RANGE..(0.30..4.50)...T3..(4.6.)..RANGE..( 3.1..6.8).. T4.. (19.1)..RANGE..(11.00
birkie
in
Thyroid UK
2 years ago
Blood work results.
Good morning. I finally got all the results the endo asked me to bring with me on Thursday. My cholesterol is high but I won't bother you reading it. I'll put the reference values in brackets. My sodium is 131 (135-146) Vit D-OH total: 29 (30-100) Vit D-OH D3 : 29 Vit D. 25 OH, D2 : <4 Testosterone
Good morning. I finally got all the results the endo asked me to bring with me on Thursday. My cholesterol is high but I won't bother you reading it. I'll put the reference values in brackets. My sodium is 131 (135-146) Vit D-OH total: 29 (30-100) Vit D-OH D3 : 29 Vit D. 25 OH, D2 : <4 Testosterone
Hidden
in
Thyroid UK
2 years ago
My partner's story
Hello to everyone, I've been a silent member of this group for a few weeks and I have found your posts really helpful. I have decided that now is the time to share with you the story so far with my partner and his diagnosis of alcohol related liver disease. He's 43 years old and he's been a daily drinker
Hello to everyone, I've been a silent member of this group for a few weeks and I have found your posts really helpful. I have decided that now is the time to share with you the story so far with my partner and his diagnosis of alcohol related liver disease. He's 43 years old and he's been a daily drinker
Bibbs
in
British Liver Trust
2 years ago
Fixing the Microbiome - Fighting Pathogens?
I do a lot of things to help my brain and clean up a-synuclein in the gut (and hopefully the brain), but it seems to me that no protocol is complete unless it addresses normalizing the microbiome, and assuming that if there is some pathogen in the microbiome that started this cascade, addressing that
I do a lot of things to help my brain and clean up a-synuclein in the gut (and hopefully the brain), but it seems to me that no protocol is complete unless it addresses normalizing the microbiome, and assuming that if there is some pathogen in the microbiome that started this cascade, addressing that
Bolt_Upright
in
Cure Parkinson's
2 years ago
Vitamin advice
I know from here that multi vitamins are generally no good I wondered what the experts think to these Alive woman’s energy vitamins please? I currently take vitamins D, K, C, magnesium and selenium, but wouldn’t mind trying something for an extra energy boost! In addition to the photo, they also contain
I know from here that multi vitamins are generally no good I wondered what the experts think to these Alive woman’s energy vitamins please? I currently take vitamins D, K, C, magnesium and selenium, but wouldn’t mind trying something for an extra energy boost! In addition to the photo, they also contain
CornishChick
in
Thyroid UK
2 years ago
People of HU - 'A day in a life' living with IBS
To end the year, we are sharing stories of a few members to give you a glimpse into the lives of people using our platform to better their health. The patient voice is at the heart of everything that we do. By showcasing to others how valuable each community is to our members, we aim to further empower
To end the year, we are sharing stories of a few members to give you a glimpse into the lives of people using our platform to better their health. The patient voice is at the heart of everything that we do. By showcasing to others how valuable each community is to our members, we aim to further empower
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
2 years ago
TSH of 18.76 yet i'm told i'm on "appropriate medication"
Hi all, I know TSH isn't everything, however, I'm puzzled as to how the notes on my file after my NHS TFT last week say "on appropriate medication"! Just to recap, I had been taking 100mg levo daily for 6 weeks (having reduced from 125mg after being well over range for T4 and having symptoms). My private
Hi all, I know TSH isn't everything, however, I'm puzzled as to how the notes on my file after my NHS TFT last week say "on appropriate medication"! Just to recap, I had been taking 100mg levo daily for 6 weeks (having reduced from 125mg after being well over range for T4 and having symptoms). My private
Thyroidsam
in
Thyroid UK
2 years ago
Doctor re sodium.
At the beginning of September I received a copy of a letter sent by my GCA Consultant to my Doctor. In it she said my sodium was low - 128 - and would my Doctor look into it. I have heard nothing. Should I be worried?
At the beginning of September I received a copy of a letter sent by my GCA Consultant to my Doctor. In it she said my sodium was low - 128 - and would my Doctor look into it. I have heard nothing. Should I be worried?
prunus
in
PMRGCAuk
2 years ago
NDT (Erfa) and Iodine Supplementation
Has anyone use iodine supplementation as well as NDT?
Has anyone use iodine supplementation as well as NDT?
Wanderlust2483
in
Thyroid UK
2 years ago
What's an average thyroid gland size? How small is mine in comparison after RAI? Measurements are here.
I had RAI many years ago, and now take T3 with T4. I was interested to find out how much of my thyroid is left, and I wondered if it being smaller was the reason I now need the T3. So I had a private thyroid ultrasound done. It gives me measurements, but doesn't say how it compares with a 'normal' or
I had RAI many years ago, and now take T3 with T4. I was interested to find out how much of my thyroid is left, and I wondered if it being smaller was the reason I now need the T3. So I had a private thyroid ultrasound done. It gives me measurements, but doesn't say how it compares with a 'normal' or
TaraJR
in
Thyroid UK
2 years ago
Does anyone have a Low sodium level?
My levels are super low, Hyponatremia like. Docs have told me it’s related to AMN, but they seem to blame it for everything 😊
My levels are super low, Hyponatremia like. Docs have told me it’s related to AMN, but they seem to blame it for everything 😊
3WheelWonder
in
AMN EASIER
2 years ago
Rapid decline in GFR, getting no answers.
I am a 46 year old male. In Jan. 2019 my GFR was 63 - when it was checked in Early 2021 it had dropped to 27. Now only a few months later I am down to an 18. I do have Type II Diabetes but it has been controlled for several years (5.4 - 6.5 A1c). We would not have caught the GFR drop had my BP not gone
I am a 46 year old male. In Jan. 2019 my GFR was 63 - when it was checked in Early 2021 it had dropped to 27. Now only a few months later I am down to an 18. I do have Type II Diabetes but it has been controlled for several years (5.4 - 6.5 A1c). We would not have caught the GFR drop had my BP not gone
MSWwv
in
Kidney Disease
2 years ago
Actinium/Keytruda/Xtandi trial update after 24 weeks.
At the 24 week mark of my trial at Weill Cornell, I had updated NM whole body bone scan and CTs of chest/abdomen/pelvis. Also had updated blood work. Was expecting my next 6 week infusion of Keytruda the next day. While waiting in the treatment area, there was some kind of a delay. Nurse came over
At the 24 week mark of my trial at Weill Cornell, I had updated NM whole body bone scan and CTs of chest/abdomen/pelvis. Also had updated blood work. Was expecting my next 6 week infusion of Keytruda the next day. While waiting in the treatment area, there was some kind of a delay. Nurse came over
HopingForTheBest1
in
Advanced Prostate Cancer
2 years ago
High TSH, High T4, Low T3 - advice please
Hi everyone, I posted on here around 6 weeks ago after feeling worse and worse and getting nowhere with my GP/Endo. I had RAI back in Feb 20 and since coming off block and replace (due to the reaction after RAI), I can’t say I’ve felt well for more than a couple of weeks at a time. I really started going
Hi everyone, I posted on here around 6 weeks ago after feeling worse and worse and getting nowhere with my GP/Endo. I had RAI back in Feb 20 and since coming off block and replace (due to the reaction after RAI), I can’t say I’ve felt well for more than a couple of weeks at a time. I really started going
Thyroidsam
in
Thyroid UK
2 years ago
Sodium levels
Hi. Wonder if anyone has had this My blood sodium levels was 130 range 135-145 Retested , then 133 . No further investigation. GP said it was normal . I looked this up and hypothyroidism is the only thing that applies to me. I noticeable pee less in the day . I did end up in hospital going
Hi. Wonder if anyone has had this My blood sodium levels was 130 range 135-145 Retested , then 133 . No further investigation. GP said it was normal . I looked this up and hypothyroidism is the only thing that applies to me. I noticeable pee less in the day . I did end up in hospital going
Gcart
in
Thyroid UK
3 years ago
Reference Levels for TSH in Iodine-Sufficient Low-Risk Pregnant Women
Just don't be different! If TSH levels are, as stated, population specific because of differences in ethnicity, then we need a rather more significant changes than just making the top of the TSH reference interval a bit higher. I think it easy to imagine a clinic in the north of India. They pick up
Just don't be different! If TSH levels are, as stated, population specific because of differences in ethnicity, then we need a rather more significant changes than just making the top of the TSH reference interval a bit higher. I think it easy to imagine a clinic in the north of India. They pick up
helvella
Thyroid UK
in
Thyroid UK
2 years ago
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