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Change in plans - looks like neuroendocrine
From my last post, I had an allergic reaction 15 minutes into my first dose of Docetaxel - part of a clinical trial combining Docetaxel and Xofigo (Radium-223). Two weeks later, I had a second reaction despite additional precautions (oral decadron 3 days prior, IV Benadryl and Decadron immediately prior
From my last post, I had an allergic reaction 15 minutes into my first dose of Docetaxel - part of a clinical trial combining Docetaxel and Xofigo (Radium-223). Two weeks later, I had a second reaction despite additional precautions (oral decadron 3 days prior, IV Benadryl and Decadron immediately prior
TonyS58
in
Advanced Prostate Cancer
3 years ago
Salt, hypothyroidism, high BP and fluid retention
I have been on blood pressure medication for a few years and although it has lowered my BP (initally 180/105), it´s still borderline high according to GP (never < 130/90 in doctor´s office). I also tend to retain fluid and look puffy. My GP says that is what you´d expect in someone who eats too much
I have been on blood pressure medication for a few years and although it has lowered my BP (initally 180/105), it´s still borderline high according to GP (never < 130/90 in doctor´s office). I also tend to retain fluid and look puffy. My GP says that is what you´d expect in someone who eats too much
Hidden
in
Thyroid UK
3 years ago
Options after Zytiga fails
I've been on the Magnitude clinical trial for 8 months and now Zytiga has failed. I have extensive bone mets (greater than 30). The most recent bone scan shows 5 new mets so I'll be off the trial. I'm in Canada and think my next options are either Radium 223 or chemo. I've had genetic testing and
I've been on the Magnitude clinical trial for 8 months and now Zytiga has failed. I have extensive bone mets (greater than 30). The most recent bone scan shows 5 new mets so I'll be off the trial. I'm in Canada and think my next options are either Radium 223 or chemo. I've had genetic testing and
davebliz
in
Advanced Prostate Cancer
3 years ago
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Constipation
Hi everyone , could anyone tell me the amount of sodium picosulfate they give their child please , more so on a maintenance dose. I’m really struggling to find a happy medium for a maintenance dose for my son. We are constantly having to disimpact because he get blocked up whenever I reduce the laxatives
Hi everyone , could anyone tell me the amount of sodium picosulfate they give their child please , more so on a maintenance dose. I’m really struggling to find a happy medium for a maintenance dose for my son. We are constantly having to disimpact because he get blocked up whenever I reduce the laxatives
Sarsar3
in
ERIC
3 years ago
I need some advice please after AKI (due to BP meds) a few months ago
Hi, I'm in the UK and being monitored by my GP, who I think is well intentioned but not particularly well informed. At the moment my eGFR has risen to 73, and I am being regularly tested for:- Serum Sodium, Serum Potassium, Serum Urea, Creatinine, and FBC & Ferritin. My question is Are there any other
Hi, I'm in the UK and being monitored by my GP, who I think is well intentioned but not particularly well informed. At the moment my eGFR has risen to 73, and I am being regularly tested for:- Serum Sodium, Serum Potassium, Serum Urea, Creatinine, and FBC & Ferritin. My question is Are there any other
nellie237
in
Kidney Disease
3 years ago
New Here
I was just recently diagnosed, well not even that, I was told my numbers were off and my sodium is low, I've been a type 1 diabetic for over 50 years, I'm just reading on the internet and being frightened and depressed. I've given up dairy and colas and coffee, no small sacrifices! I haven't seen
I was just recently diagnosed, well not even that, I was told my numbers were off and my sodium is low, I've been a type 1 diabetic for over 50 years, I'm just reading on the internet and being frightened and depressed. I've given up dairy and colas and coffee, no small sacrifices! I haven't seen
Turtlewoman
in
Kidney Disease
3 years ago
What aspects of CMP (comprehensive metabolic panel) in my blood should I be most concerned ?
Hello fellow warriors! I had a blood draw today and have some comments and questions. Comment - I am the one to suggest every blood draw to monitor PSA, Testosterone , and other “numbers” that are reported from CMP results. I believe if I did not do this , I would never be asked about this . Is this
Hello fellow warriors! I had a blood draw today and have some comments and questions. Comment - I am the one to suggest every blood draw to monitor PSA, Testosterone , and other “numbers” that are reported from CMP results. I believe if I did not do this , I would never be asked about this . Is this
G9doingfine
in
Advanced Prostate Cancer
3 years ago
Help with bloods please
Good afternoon I wondered if someone could help me interpret my blood results. On 25th March I was tested looking for arthritis but they did a thyroid test and it came back abnormal so a week later I tested again, still abnormal but this time T3 was in range. I was referred to Endo who prescribed
Good afternoon I wondered if someone could help me interpret my blood results. On 25th March I was tested looking for arthritis but they did a thyroid test and it came back abnormal so a week later I tested again, still abnormal but this time T3 was in range. I was referred to Endo who prescribed
Bubba28
in
Thyroid UK
3 years ago
Low Sodium after Rituximab Infusion
Hi all I hope you are all keeping well. I had my 6 monthly Rituximab infusion 3 weeks ago and 10 days later I got up on Bank Holiday Monday at felt really strange, like I was going to pass out, felt really nauseous and as the day went on I felt so ill I ended up in A&E and kept overnight for observation
Hi all I hope you are all keeping well. I had my 6 monthly Rituximab infusion 3 weeks ago and 10 days later I got up on Bank Holiday Monday at felt really strange, like I was going to pass out, felt really nauseous and as the day went on I felt so ill I ended up in A&E and kept overnight for observation
Investigator1
in
Vasculitis UK
3 years ago
Sodium intake article from Davita.
Here is a link to article about sodium intake and importance. https://blogs.davita.com/kidney-diet-tips/back-to-basics-sodium-intake-why-is-it-important/?
Here is a link to article about sodium intake and importance. https://blogs.davita.com/kidney-diet-tips/back-to-basics-sodium-intake-why-is-it-important/?
orangecity41
NKF Ambassador
in
Kidney Disease
3 years ago
vendor for bulk raws to mix rehydration salts?
ive been using electrolye solutions to mitigate side effects of adderall treatment such as muscle cramping, brain fog and fatigue caused by the cns stimulation, modulated metabolism, improved hydrolysis, reduced urination and and increased sweating. it works great, but they're expensive over time no
ive been using electrolye solutions to mitigate side effects of adderall treatment such as muscle cramping, brain fog and fatigue caused by the cns stimulation, modulated metabolism, improved hydrolysis, reduced urination and and increased sweating. it works great, but they're expensive over time no
minutiaepast
in
CHADD's Adult ADHD Support
3 years ago
Statins
Hi everyone, I am 67 years old with my GFR's in the fifties and have been keeping my numbers steady for the last three years. My cholesterol numbers have not been good over those last 3 years being at 190 then 234 and now at 250. I pretty much
Hi everyone, I am 67 years old with my GFR's in the fifties and have been keeping my numbers steady for the last three years. My cholesterol numbers have not been good over those last 3 years being at 190 then 234 and now at 250. I pretty much
Ryde54
in
Kidney Disease
3 years ago
TSH Blood test results help in understanding
Result of last month : GP prescribed 100mg 3 weeks ago, reduced last week to 50mg as I felt awful. *** Astrix identifies deficiency -/+ TPOab 124 (0-24.0) *** HbA1 42 (20-41) *** T4 12.5 (11.2-20.2) TSH 6.32 (0.27-4.2) *** eGFRcreat 81 (90-120) *** Sodium 141 (133-146) Potassium 4.8 (3.5-5.3) Urea level
Result of last month : GP prescribed 100mg 3 weeks ago, reduced last week to 50mg as I felt awful. *** Astrix identifies deficiency -/+ TPOab 124 (0-24.0) *** HbA1 42 (20-41) *** T4 12.5 (11.2-20.2) TSH 6.32 (0.27-4.2) *** eGFRcreat 81 (90-120) *** Sodium 141 (133-146) Potassium 4.8 (3.5-5.3) Urea level
Nambo
in
Thyroid UK
3 years ago
Kidney blood test worried
Hello, I am really worried about my blood test results, creatinine is 134 umol/l and eGFR is only 38, my sodium is high and my calcium and corrected calcium are low,urea is normal, I had the 1st dose of covid vaccine 3 weeks ago and I have been feeling very tired, not sure whether it's related. My
Hello, I am really worried about my blood test results, creatinine is 134 umol/l and eGFR is only 38, my sodium is high and my calcium and corrected calcium are low,urea is normal, I had the 1st dose of covid vaccine 3 weeks ago and I have been feeling very tired, not sure whether it's related. My
Nela17
in
Kidney Disease
3 years ago
Increasing salt intake and meds
Last week you all responded to my post about my husbands OH. He has increased his salt intake, using margarita mix and a salted rim, along with a little extra salt ingested. He couldn't stomach the salty water. His OH has improved alot, Thank you all for the suggestions. Now today he accidently took
Last week you all responded to my post about my husbands OH. He has increased his salt intake, using margarita mix and a salted rim, along with a little extra salt ingested. He couldn't stomach the salty water. His OH has improved alot, Thank you all for the suggestions. Now today he accidently took
sharron2
in
Cure Parkinson's
3 years ago
New member not diagnosed.
Hello everyone, I'm a new member here who's spent the last couple weeks researching liver disease, reading your stories, trying to prepare myself for what I may have to look forward to. A little back story. I'm a 38 year old disabled combat veteran. I sustained a traumatic brain injury while in Iraq
Hello everyone, I'm a new member here who's spent the last couple weeks researching liver disease, reading your stories, trying to prepare myself for what I may have to look forward to. A little back story. I'm a 38 year old disabled combat veteran. I sustained a traumatic brain injury while in Iraq
Lobretto1983
in
Living with Fatty Liver and NASH
3 years ago
IBS, resection surgery and Imodium
I had a bowel resection surgery for a cyst about a year ago. They took 13 inches of my bowel out. Some small and some large intestine. I had IBS D before surgery but seemed to manage it by the way I would eat. Since surgery though it comes and goes way more frequently. I just started trying to use Imodium
I had a bowel resection surgery for a cyst about a year ago. They took 13 inches of my bowel out. Some small and some large intestine. I had IBS D before surgery but seemed to manage it by the way I would eat. Since surgery though it comes and goes way more frequently. I just started trying to use Imodium
Natas6
in
IBS Network
3 years ago
Zometa pain flare advice
Hi everyone, I'm posting on behalf of my Father (61 fit & healthy very active never ever sick, dx last Aug 2020, stage 4 multiple widespread bone mets & few lymph nodes, psa 84) immediately started decapeptyl injection every 3 months & zometa infusion. 9 rounds of chemo (taxotere) brought psa to 9.8
Hi everyone, I'm posting on behalf of my Father (61 fit & healthy very active never ever sick, dx last Aug 2020, stage 4 multiple widespread bone mets & few lymph nodes, psa 84) immediately started decapeptyl injection every 3 months & zometa infusion. 9 rounds of chemo (taxotere) brought psa to 9.8
Nickhmcg
in
Advanced Prostate Cancer
3 years ago
Akkermansia - how to increase levels in the gut microbiome
This is a follow-on from my Akkermansia post. 1] while Akkermansia is not yet a common probiotic, Bifidobacterium is. - 2019, Spain: Bifidobacterium animalis subsp. lactis (Ba8145) "ingestion decreased waist circumference, waist circumference/height ratio, and Conicity index ...versus its baseline
This is a follow-on from my Akkermansia post. 1] while Akkermansia is not yet a common probiotic, Bifidobacterium is. - 2019, Spain: Bifidobacterium animalis subsp. lactis (Ba8145) "ingestion decreased waist circumference, waist circumference/height ratio, and Conicity index ...versus its baseline
pjoshea13
in
Advanced Prostate Cancer
3 years ago
Investigating the Influence of Excipients on the Stability of Levothyroxine Sodium Pentahydrate
There has been a tiny rivulet of papers questioning the formulation of levothyroxine products. Time and again, the papers identify problems with excipients of which a large proportion of real products contain at least one. I'm sure it is not the entire picture. But this rivulet has been flowing for
There has been a tiny rivulet of papers questioning the formulation of levothyroxine products. Time and again, the papers identify problems with excipients of which a large proportion of real products contain at least one. I'm sure it is not the entire picture. But this rivulet has been flowing for
helvella
Thyroid UK
in
Thyroid UK
3 years ago
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