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natural treatments
Just checking in to see if anyone has treated PMR with cannabis? I realize it is illegal in many places and it may not be ok to discuss here. I apologize in advance if I'm breaking any rules. Cannabis or medicinal marijuana is legal where I live. I have no interest in getting high. I am in search of
Just checking in to see if anyone has treated PMR with cannabis? I realize it is illegal in many places and it may not be ok to discuss here. I apologize in advance if I'm breaking any rules. Cannabis or medicinal marijuana is legal where I live. I have no interest in getting high. I am in search of
naturalchoice
in
PMRGCAuk
6 years ago
I’d like to introduce myself
New here and want to share my history with you. On Dec 2015 went to primary doctor due to sore throat and while there told him “oh by the way, my index finger is swollen and really hurts.” Sent me to a rheumatologist who thought I had psoriatic arthritis ( I have2 brothers with that) and started me
New here and want to share my history with you. On Dec 2015 went to primary doctor due to sore throat and while there told him “oh by the way, my index finger is swollen and really hurts.” Sent me to a rheumatologist who thought I had psoriatic arthritis ( I have2 brothers with that) and started me
sara1215
in
NRAS
6 years ago
Giant Cell concerns
Was diagnosed with PMR August 2017, Giant Cell Dec. 2017...started Actemra injections twice monthly in May 2018. All has been good but now I am on a prednisone taper (5 mg for 10 days) along with the Actemra twice monthly injections. Headaches have begun again, along with jaw pain. Should I increase
Was diagnosed with PMR August 2017, Giant Cell Dec. 2017...started Actemra injections twice monthly in May 2018. All has been good but now I am on a prednisone taper (5 mg for 10 days) along with the Actemra twice monthly injections. Headaches have begun again, along with jaw pain. Should I increase
golfnut67
in
PMRGCAuk
6 years ago
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Adrenal insufficiency or what?
I've just had my 16th weekly shot of Actemra and I am tapering 0.5 mg of pred every 2 weeks, now on 5/5.5. My PMR symptoms seem to be under control, I'm in Bern for my grandson's first birthday and have been amazed at all the activities I have been able to do, like swim in a river (Aree) which has a
I've just had my 16th weekly shot of Actemra and I am tapering 0.5 mg of pred every 2 weeks, now on 5/5.5. My PMR symptoms seem to be under control, I'm in Bern for my grandson's first birthday and have been amazed at all the activities I have been able to do, like swim in a river (Aree) which has a
Gaijin
in
PMRGCAuk
6 years ago
Actermra and Pred tapering.
I have just read Jim's post about his wife now on 5mg prednisone and reducing having had Actemra. I am in a similar position having been diagnosed with large vessel GCA in November 2017 although with symptoms for at least 9 months prior to that. I too am down to 5mg prednisone ( I was on 100mg daily
I have just read Jim's post about his wife now on 5mg prednisone and reducing having had Actemra. I am in a similar position having been diagnosed with large vessel GCA in November 2017 although with symptoms for at least 9 months prior to that. I too am down to 5mg prednisone ( I was on 100mg daily
Hidden
in
PMRGCAuk
6 years ago
Slight puffy face at 4 mgs. Prednisone and skin breakout on face.
After 15 months and tapered to 4mgs. Prednisone, I thought my face would be back to normal. Is this typical? Also does the prednisone give a touch of acne at age 74? I know that compared to the amount of pain that I’m in that these other issues are no big deal but it’s bad enough to have the pain
After 15 months and tapered to 4mgs. Prednisone, I thought my face would be back to normal. Is this typical? Also does the prednisone give a touch of acne at age 74? I know that compared to the amount of pain that I’m in that these other issues are no big deal but it’s bad enough to have the pain
Leeleep
in
PMRGCAuk
6 years ago
Actemra and hair loss
Kia ora I have been on monthly infusions of Actermra for 6 months now and recently noticed daily hair loss and that my hair has become straighter. I am wondering if anyone had any experience of this or suggestions to minimise this?
Kia ora I have been on monthly infusions of Actermra for 6 months now and recently noticed daily hair loss and that my hair has become straighter. I am wondering if anyone had any experience of this or suggestions to minimise this?
Hidden
in
PMRGCAuk
6 years ago
HELP...TCA,PMR, FIBRO Actemra
I went to see the Rheumy today. I am on weekly shots of Actemra and 2mg. Rayos (Prednisone). I have been on Actemra for 1 year. For 6 weeks I had really blurry vision again, headache, temporal soreness, headaches with some stabbing pain, and numbness tingling throughout my body (Parathesia). My doctor
I went to see the Rheumy today. I am on weekly shots of Actemra and 2mg. Rayos (Prednisone). I have been on Actemra for 1 year. For 6 weeks I had really blurry vision again, headache, temporal soreness, headaches with some stabbing pain, and numbness tingling throughout my body (Parathesia). My doctor
Dream21
in
PMRGCAuk
6 years ago
Tapering glitch while on Actemra
I was walking to the market this morning when I had to turn back and go home due to severe pain in my hips caused by walking. I lay down for a bit and felt OK. Then, while sitting, having my lunch, I suddenly felt very sleepy so I decided to have a nap, from which I was awakened by the worst pain in
I was walking to the market this morning when I had to turn back and go home due to severe pain in my hips caused by walking. I lay down for a bit and felt OK. Then, while sitting, having my lunch, I suddenly felt very sleepy so I decided to have a nap, from which I was awakened by the worst pain in
Gaijin
in
PMRGCAuk
6 years ago
PMR, shoulder, arm injuries
I have had PMR For almost 5 years. I have been on Actemra for a year while tapering the prednisone down to 3m. I remember some of you posting of rotator cuff injuries. I think I have such an injury and will know more when I see the doctor on Monday. I feel like I am in a flare....or did the flare precipitate
I have had PMR For almost 5 years. I have been on Actemra for a year while tapering the prednisone down to 3m. I remember some of you posting of rotator cuff injuries. I think I have such an injury and will know more when I see the doctor on Monday. I feel like I am in a flare....or did the flare precipitate
Klah
in
PMRGCAuk
6 years ago
List of biologics.
Hi I’m looking for a full list of biologics that treat RA. So far I have: Actemra Cimzia Enbrel Humira Kineret Orencia Remicade Rituxan Simpsoni Am I missing any?
Hi I’m looking for a full list of biologics that treat RA. So far I have: Actemra Cimzia Enbrel Humira Kineret Orencia Remicade Rituxan Simpsoni Am I missing any?
Hobbits
in
NRAS
6 years ago
butt pain
Sooooooooo a year ago I had severe butt pain in my left cheek but no pain down the leg, MRI showed a bulge, I was having neck and shoulder pain at the time but no one connected the two so wasn't diagnosed correctly. Thinking it was the bulge they did back surgery, pain went away for a couple of days
Sooooooooo a year ago I had severe butt pain in my left cheek but no pain down the leg, MRI showed a bulge, I was having neck and shoulder pain at the time but no one connected the two so wasn't diagnosed correctly. Thinking it was the bulge they did back surgery, pain went away for a couple of days
pwalker801
in
PMRGCAuk
6 years ago
Biting flies
I'm on
RoActemra
and Mtx. Any advice? I never have got on with midgy bites.
I'm on
RoActemra
and Mtx. Any advice? I never have got on with midgy bites.
Hidden
in
NRAS
6 years ago
Tapering and lab results - do the stars always align?
Responding to another post earlier I mentioned I’m down to 5 (ready to go lower as it’s been a month with no issues) and my lab results from this week showed my ESR at 24 and CRP 2.4 (CRP half of what it was 3 months ago). I’ve noticed that many people who are taking similar amounts of prednisone have
Responding to another post earlier I mentioned I’m down to 5 (ready to go lower as it’s been a month with no issues) and my lab results from this week showed my ESR at 24 and CRP 2.4 (CRP half of what it was 3 months ago). I’ve noticed that many people who are taking similar amounts of prednisone have
Nitrobunny
in
PMRGCAuk
6 years ago
Body Pain
14 months of dosing down my prednisone and at new dose of 4 mgs. Also taking weekly Actemra injection without side effects. Prior to developing GCA/PMR I was a fibromyalgia patient since 1982. As bad as I thought fibromyalgia was it was truly a walk in the park compared to this disease. My spine
14 months of dosing down my prednisone and at new dose of 4 mgs. Also taking weekly Actemra injection without side effects. Prior to developing GCA/PMR I was a fibromyalgia patient since 1982. As bad as I thought fibromyalgia was it was truly a walk in the park compared to this disease. My spine
Leeleep
in
PMRGCAuk
6 years ago
Third Actemra Infusion
I am getting ready for my third Actemra infusion scheduled for this Friday. This past week I have been experiencing some transient shooting pains in my head, left shoulder pain and popping, transient right knee pain, and one day had a little bit of jaw pain. I have also developed a cough with increased
I am getting ready for my third Actemra infusion scheduled for this Friday. This past week I have been experiencing some transient shooting pains in my head, left shoulder pain and popping, transient right knee pain, and one day had a little bit of jaw pain. I have also developed a cough with increased
CRW-68
in
PMRGCAuk
6 years ago
Scoop on latest rheumi visit.
I had my 8th injection of Actemra last week, before I could get the next batch, I needed the rheumi's OK. My rheumi has no interest in any of my symptoms, practically the whole time I'm sitting in a chair across from him, he is typing away, making it very hard to even get a word in! He showed me my
I had my 8th injection of Actemra last week, before I could get the next batch, I needed the rheumi's OK. My rheumi has no interest in any of my symptoms, practically the whole time I'm sitting in a chair across from him, he is typing away, making it very hard to even get a word in! He showed me my
Gaijin
in
PMRGCAuk
6 years ago
Lots of awful pain.
I’m at 4.5 prednisone and take Actemra weekly. Been on prednisone around 14 months. Was as high as 60. I’m basically grain and sugar free diet and no chemical. Grass fed beef and organic when possible. However I feel like Im going to die. Headaches and all the typical pain areas. I’m on two Vicodin
I’m at 4.5 prednisone and take Actemra weekly. Been on prednisone around 14 months. Was as high as 60. I’m basically grain and sugar free diet and no chemical. Grass fed beef and organic when possible. However I feel like Im going to die. Headaches and all the typical pain areas. I’m on two Vicodin
Leeleep
in
PMRGCAuk
6 years ago
Severe pain
I recently finished a steroid taper which my doctor provided me with because of severe pain. I finished it about a week ago and the pain immediately returned. Both knees swollen like softballs and strangely enough my right calf muscle is extremely sore and inflamed. It’s swollen all the way into my ankle
I recently finished a steroid taper which my doctor provided me with because of severe pain. I finished it about a week ago and the pain immediately returned. Both knees swollen like softballs and strangely enough my right calf muscle is extremely sore and inflamed. It’s swollen all the way into my ankle
Dmcquate88
in
NRAS
6 years ago
weakness in legs
Question ~ was diagnosed in Febr 2018 with PMR & GCA started on 65 mg prednisone, have tapered and have been at 40 mg of Prednisone for a week I also take weekly injections of Actemra, sed rate is 2 and CRP. My question is for the last 3 days my hips, legs, are like they don't want to work like they
Question ~ was diagnosed in Febr 2018 with PMR & GCA started on 65 mg prednisone, have tapered and have been at 40 mg of Prednisone for a week I also take weekly injections of Actemra, sed rate is 2 and CRP. My question is for the last 3 days my hips, legs, are like they don't want to work like they
pwalker801
in
PMRGCAuk
6 years ago
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