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Rituximab and Venentoclax treatment reaction
Hi All it's been a while since I've posted here.just for background I had FCR in 2010, ibrutinib 2015 until 2018 had to stop with stomach bleed and swelling.then just over year ago I went on the
Rituximab
(IV)for six months and oral Venentoclax varying dosages 200 to 400 mgs.
Hi All it's been a while since I've posted here.just for background I had FCR in 2010, ibrutinib 2015 until 2018 had to stop with stomach bleed and swelling.then just over year ago I went on the
Rituximab
(IV)for six months and oral Venentoclax varying dosages 200 to 400 mgs.
Mick491
in
CLL Support
2 years ago
Need Urgent help for CAR-T therapy
Here’s his cancer chronology 9/2009 - DX - Grade 2 Follicular Lymphoma. 9/09 to 11/2016 - W&W 11/2016 - NHL - infiltrating liver 11/2016 to 3/17 - 6 rounds of R-CHOP 4-17 to 11-17 - 3 rounds of
Rituximab
3-18 to 5-18 - 3 rounds of R-DHAP 7-2021 - disease progression and planned for BMT after
Here’s his cancer chronology 9/2009 - DX - Grade 2 Follicular Lymphoma. 9/09 to 11/2016 - W&W 11/2016 - NHL - infiltrating liver 11/2016 to 3/17 - 6 rounds of R-CHOP 4-17 to 11-17 - 3 rounds of
Rituximab
3-18 to 5-18 - 3 rounds of R-DHAP 7-2021 - disease progression and planned for BMT after
nuji
in
CLL Support
2 years ago
Follow up to Rituximab COVID paxlovid...
Follow up: I finished paxlovid 7/16. Felt ok until 7/22 with Different symptoms from 7/11 ED visit but similar to pneumonia and sinus congestion. First available GP appt was today. COVID positive again! (Yes, fully vaxxed, wear mask, live alone, isolate, etc.) Also, flu neg. Doctor also suspects bacterial
Follow up: I finished paxlovid 7/16. Felt ok until 7/22 with Different symptoms from 7/11 ED visit but similar to pneumonia and sinus congestion. First available GP appt was today. COVID positive again! (Yes, fully vaxxed, wear mask, live alone, isolate, etc.) Also, flu neg. Doctor also suspects bacterial
irishponies
in
Vasculitis UK
2 years ago
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Follow up on low platelets and stopping Acalabrutinib
immediately . by the way my white blood cell count also dropped to 3.8 . i don't think it has ever been below 8 .... that was last week ... now i am scheduled for an infusion of
Rituximab
and a bone marrow biopsy . i also ordered more papaya leaf extract .
immediately . by the way my white blood cell count also dropped to 3.8 . i don't think it has ever been below 8 .... that was last week ... now i am scheduled for an infusion of
Rituximab
and a bone marrow biopsy . i also ordered more papaya leaf extract .
craterlake
in
CLL Support
2 years ago
Caught COVID abroad?
I am immunosuppressed after treatment with
rituximab
and cannot produce antibodies against COVID. I would like to fly home to visit family. Have any of you travelled whilst still immunosuppressed? Has anyone ever caught COVID abroad? What did you do?
I am immunosuppressed after treatment with
rituximab
and cannot produce antibodies against COVID. I would like to fly home to visit family. Have any of you travelled whilst still immunosuppressed? Has anyone ever caught COVID abroad? What did you do?
Tonkotsu
in
LUPUS UK
2 years ago
CLL and Covid experiences
Hi, I am 65, have relapsed CLL after FCR treatment, made no antibodies to 6 Covid vaccinations. Otherwise I am healthy and physically very active. I'm so tire of the mask everywhere and so is my wife. Can anyone tell me if they have had Covid and how it went for them? Or anyone that can
Hi, I am 65, have relapsed CLL after FCR treatment, made no antibodies to 6 Covid vaccinations. Otherwise I am healthy and physically very active. I'm so tire of the mask everywhere and so is my wife. Can anyone tell me if they have had Covid and how it went for them? Or anyone that can
skipro
in
CLL Support
1 year ago
Role of RITUXIMAB in CLL treatment in combination with Venetoclax
Has anyone found a clear answer as to what exactly is the necessity and / or contribution of
Rituximab
when used together with Venetoclax in our CLL treatment? As far as I am aware there is no clinical study comparing results of V+R treatment as opposed to V monotherapy.
Has anyone found a clear answer as to what exactly is the necessity and / or contribution of
Rituximab
when used together with Venetoclax in our CLL treatment? As far as I am aware there is no clinical study comparing results of V+R treatment as opposed to V monotherapy.
RamsesII
in
CLL Support
2 years ago
Ever Elusive Remission
Meds: Prednisone 5 mg daily (20 mg in Aug 2021 through March 2022 - almost no taper just reduced to 5 due to side effects) Methotrexate 20 mg since Dec 2021;
Rituximab
infusions - 2 - June 2022 No improvement in labs since August 2021. NO IMPROVEMENT NO REMISSION with 1 year of treatment.
Meds: Prednisone 5 mg daily (20 mg in Aug 2021 through March 2022 - almost no taper just reduced to 5 due to side effects) Methotrexate 20 mg since Dec 2021;
Rituximab
infusions - 2 - June 2022 No improvement in labs since August 2021. NO IMPROVEMENT NO REMISSION with 1 year of treatment.
irishponies
in
Vasculitis UK
2 years ago
Rituximab and covid
I've been on
Rituximab
successfully for several years now. But since learning that
Rituximab
reduces the impact of covid vaccinations, my rheumatologist is understandably slow to prescribe the next infusion.
I've been on
Rituximab
successfully for several years now. But since learning that
Rituximab
reduces the impact of covid vaccinations, my rheumatologist is understandably slow to prescribe the next infusion.
cathie
in
NRAS
2 years ago
Still testing positive after 10 weeks
My mum has CLL and had been on venetoclax +
rituximab
since November 2021 (
rituximab
suspended early due to lowered neutrophils). We had several mishaps (e.g. frequent diarrhoea) however she was quite well until she got on 16 May and she tested covid positive.
My mum has CLL and had been on venetoclax +
rituximab
since November 2021 (
rituximab
suspended early due to lowered neutrophils). We had several mishaps (e.g. frequent diarrhoea) however she was quite well until she got on 16 May and she tested covid positive.
Marymary19
in
CLL Support
2 years ago
vasovagal syncope fainting - anyone else have this?
I had
Rituximab
x 2 in June but prior to this had not had since 2020 due to increased risk of catching covid and death. Back then there were no antivirals.
I had
Rituximab
x 2 in June but prior to this had not had since 2020 due to increased risk of catching covid and death. Back then there were no antivirals.
egre
in
Vasculitis UK
2 years ago
Dental work SURPRISE - mtx -rituximab - Prolia - prednisone
Today is dose #30 mtx 20 mg, had two
rituximab
infusions in June. Trying to achieve remission.) Thanks for your help!
Today is dose #30 mtx 20 mg, had two
rituximab
infusions in June. Trying to achieve remission.) Thanks for your help!
irishponies
in
Vasculitis UK
2 years ago
What shall i do??
Hello, I,m René from holland. I get the diagnose cll in november 2019. I have a 11 ATM deletion, en unmutated. My blood results and a ct scan gives the reason to start a treatment. I will speak mij doctor next monday, then i hear probably what kind of treatment it will be. It’s amost sure it will
Hello, I,m René from holland. I get the diagnose cll in november 2019. I have a 11 ATM deletion, en unmutated. My blood results and a ct scan gives the reason to start a treatment. I will speak mij doctor next monday, then i hear probably what kind of treatment it will be. It’s amost sure it will
Renefaassen
in
CLL Support
1 year ago
What a journey
So, a trip to the James to a CLL specialist, after multiple tests and a lot of sole searching, with a neck that looked like a basketball, WBC at 390,000 I done 12 weeks of
Rituximab
and Benadryl, that took my neck size to normal, but gave me time to look for a clinical trial, soon after stopping my cancer
So, a trip to the James to a CLL specialist, after multiple tests and a lot of sole searching, with a neck that looked like a basketball, WBC at 390,000 I done 12 weeks of
Rituximab
and Benadryl, that took my neck size to normal, but gave me time to look for a clinical trial, soon after stopping my cancer
CAM729
in
CLL Support
2 years ago
Richters and DLBCL after CLL in 2013
After CLL diagnosed in 2013, unmutated, Trisomie 12, CD 38 neg., started FCR 6 cycles in Uni Clinic Cologne (Prof Hallek) up to 4/2014. MRD neg and CR. Then 9 years without therapy living well, no side effects. Now, in Oct 2023 the CLL quickly turned back with RT and tp 53, as well as DLBCL near stomach
After CLL diagnosed in 2013, unmutated, Trisomie 12, CD 38 neg., started FCR 6 cycles in Uni Clinic Cologne (Prof Hallek) up to 4/2014. MRD neg and CR. Then 9 years without therapy living well, no side effects. Now, in Oct 2023 the CLL quickly turned back with RT and tp 53, as well as DLBCL near stomach
seoul1949
in
CLL Support
1 year ago
Vaccination after Rituximab infusion.
Hi, has anyone been advised on the best timing for the covid /flu booster after a
Rituximab
infusion? I believe it is 6 weeks minimum, but I am just wondering if its worth trying to delay it for a bit longer?
Hi, has anyone been advised on the best timing for the covid /flu booster after a
Rituximab
infusion? I believe it is 6 weeks minimum, but I am just wondering if its worth trying to delay it for a bit longer?
trenarren
in
NRAS
2 years ago
Zanubrutinib Bests Bendamustine-Rituximab in Previously Untreated CLL/SLL
More info here:https://www.cancertherapyadvisor.com/home/cancer-topics/chronic-lymphocytic-leukemia/zanubrutinib-bests-bendamustine-
rituximab
-cll-sll-previously-untreated/
More info here:https://www.cancertherapyadvisor.com/home/cancer-topics/chronic-lymphocytic-leukemia/zanubrutinib-bests-bendamustine-
rituximab
-cll-sll-previously-untreated/
Yalokin
in
CLL Support
2 years ago
Treatment-naive or relapsed CLL patients will soon have zanubrutinib/Brukinsa as a treatment option in the EU
In these two trials, BRUKINSA demonstrated superior efficacy versus either bendamustine plus
rituximab
(B+R) or ibrutinib in first-line or R/R CLL, respectively.
In these two trials, BRUKINSA demonstrated superior efficacy versus either bendamustine plus
rituximab
(B+R) or ibrutinib in first-line or R/R CLL, respectively.
AussieNeil
Partner
in
CLL Support
2 years ago
Rituximab and tetanus (etc.)
This is to all my fellow immune suppressed folks about
rituximab
. I've been unable to find solid information, and my consultants aren't sure, so wondered if anyone here knows. Does
rituximab
impact our tetanus jabs and similar?
This is to all my fellow immune suppressed folks about
rituximab
. I've been unable to find solid information, and my consultants aren't sure, so wondered if anyone here knows. Does
rituximab
impact our tetanus jabs and similar?
Grizzly-bear
in
Vasculitis UK
2 years ago
Osteoporosis
I am just completing 1 year on Venetoclax having also had 6 x
Rituximab
. My most recent CT scan showed 2 fractured vertebrae which my GP thinks is probably osteoporosis but a bone density scan will confirm this shortly. We checked the scan taken before treatment and no fractures.
I am just completing 1 year on Venetoclax having also had 6 x
Rituximab
. My most recent CT scan showed 2 fractured vertebrae which my GP thinks is probably osteoporosis but a bone density scan will confirm this shortly. We checked the scan taken before treatment and no fractures.
Dawson21
in
CLL Support
2 years ago
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