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Advice please
Hi, I’m new to this Restless Legs Syndrome forum. I have been really struggling with restless legs really bad. I have always had an unpleasant crawling/tickling sensation in my legs. I am on Mirtazapine and it has made my restless legs worse. I now cannot sleep unless I have paracetamol every night
Hi, I’m new to this Restless Legs Syndrome forum. I have been really struggling with restless legs really bad. I have always had an unpleasant crawling/tickling sensation in my legs. I am on Mirtazapine and it has made my restless legs worse. I now cannot sleep unless I have paracetamol every night
NikNak98
in
Restless Legs Syndrome
2 months ago
Severe RLS in Las Vegas, NV
Hello....my GP doctors have been treating my RLS with ropinirole (augmentation), pramipexole (various addictions) and most recently gabapentin (ineffective) over the past 23 years. I have tried neurologists and vein drs but no one displays a strong desire to help me minimize or eliminate my RLS. Does
Hello....my GP doctors have been treating my RLS with ropinirole (augmentation), pramipexole (various addictions) and most recently gabapentin (ineffective) over the past 23 years. I have tried neurologists and vein drs but no one displays a strong desire to help me minimize or eliminate my RLS. Does
2024LilRap
in
Restless Legs Syndrome
2 months ago
Musings on stress relievers – I know what might help to alleviate stress, but why don’t I do them?
Spoiler alert: This post is REALLY long! Stress seems to be a biggie for most of us in this day and age. Part of the human condition in general it would appear (thanks cave dwelling ancestors!) and also more specifically when dealing with PMR/GCA. As PMRpro and others often mention, it is frequently
Spoiler alert: This post is REALLY long! Stress seems to be a biggie for most of us in this day and age. Part of the human condition in general it would appear (thanks cave dwelling ancestors!) and also more specifically when dealing with PMR/GCA. As PMRpro and others often mention, it is frequently
ubaoz
in
PMRGCAuk
4 months ago
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Efficacy of Trihexyphenidyl on Apraxia of Eyelid Opening in Parkinsonism: A Case Report
Apraxia of eyelid opening (AEO) is occasionally seen in Parkinson’s disease (PD) or related diseases. However, many clinicians have trouble with the management of AEO by Parkinsonism. The following link mentions a case of apraxia of eyelids opening in PD patient which was successfully treated with the
Apraxia of eyelid opening (AEO) is occasionally seen in Parkinson’s disease (PD) or related diseases. However, many clinicians have trouble with the management of AEO by Parkinsonism. The following link mentions a case of apraxia of eyelids opening in PD patient which was successfully treated with the
Farooqji
in
Cure Parkinson's
7 months ago
Buprenorphine and methadone
Hi there everyone I am now seeing dr Stephen Gibson pain specialist and Anesthesiologist. Dr prof yee referred me to him for low dose opioids. I started on 5mg Buprenorphine patch- zero relief. He has added 5 mg methadone - instant relief. Any thoughts as to why the mix and not just the methadone?
Hi there everyone I am now seeing dr Stephen Gibson pain specialist and Anesthesiologist. Dr prof yee referred me to him for low dose opioids. I started on 5mg Buprenorphine patch- zero relief. He has added 5 mg methadone - instant relief. Any thoughts as to why the mix and not just the methadone?
JenniferBut
in
Restless Legs Syndrome
2 months ago
Hubby's RLS
My husbands RLS has increased with age and his recent full knee replacement two years ago. We have been seeing an RLS/Sleep doctor from Johns Hopkins since last November and are on a slow journey to figure out which combinations of meds will help him. He was on 2 Horizant pills when we first saw him
My husbands RLS has increased with age and his recent full knee replacement two years ago. We have been seeing an RLS/Sleep doctor from Johns Hopkins since last November and are on a slow journey to figure out which combinations of meds will help him. He was on 2 Horizant pills when we first saw him
tiffanie125d
in
Restless Legs Syndrome
2 months ago
Discontinued DA
Hi F58 UK Update on withdrawing from Ropinirole tablets. I have had RLS for over 10 yrs and tried Pramipexol, then changed to Ropinirole. After visiting consultant they recommended Gabapentin. After advice from this forum I am reducing my Ropinirole. My Ropinirole dose was 1.5mg 3 x day. Gabapentin
Hi F58 UK Update on withdrawing from Ropinirole tablets. I have had RLS for over 10 yrs and tried Pramipexol, then changed to Ropinirole. After visiting consultant they recommended Gabapentin. After advice from this forum I am reducing my Ropinirole. My Ropinirole dose was 1.5mg 3 x day. Gabapentin
Louless9
in
Restless Legs Syndrome
2 months ago
Celexa
Hello, I have had RLS since my early 20's, (I'm 66). I am currently taking .5 Pramipexole and would like to begin weening off with the goal to stop taking it entirely. Has anyone been able to successfully return to Celexa after a break in taking it? I tried Wellbutrin and it did nothing for anxiety
Hello, I have had RLS since my early 20's, (I'm 66). I am currently taking .5 Pramipexole and would like to begin weening off with the goal to stop taking it entirely. Has anyone been able to successfully return to Celexa after a break in taking it? I tried Wellbutrin and it did nothing for anxiety
Ilovequilting
in
Restless Legs Syndrome
2 months ago
Exercise can reduce cortisol leading to benefits and meditation offers benefits
"Exercise can reduce stress and anxiety Exercise has been shown to improve many of the non-motor symptoms of PD, including stress and anxiety. Interestingly, a recent article published in the journal Movement Disorders, explored the relationship between exercise, stress and PD. The study showed that
"Exercise can reduce stress and anxiety Exercise has been shown to improve many of the non-motor symptoms of PD, including stress and anxiety. Interestingly, a recent article published in the journal Movement Disorders, explored the relationship between exercise, stress and PD. The study showed that
Boscoejean
in
Cure Parkinson's
4 months ago
Duloxetine ?
I am seeing a new and young Family practitioner and after telling her my neurologist after having 2 MRIs cervical and spine she just wanted to up my gabapentin and was fine with me taking 4 mg of ropinirole 2 x a day...and then dismissed me as a patient after I said I have been on gabapentin for
I am seeing a new and young Family practitioner and after telling her my neurologist after having 2 MRIs cervical and spine she just wanted to up my gabapentin and was fine with me taking 4 mg of ropinirole 2 x a day...and then dismissed me as a patient after I said I have been on gabapentin for
travelingannie
in
Restless Legs Syndrome
2 months ago
Hrt advice
Good morning I started Trazodone in April and unfortunately this too affects my restless legs . I’ve taken dopamine pills for years for my symptoms and feel this has contributed to me feeling depressed. I’ve been clear of these awful pills for a long time and now take Gabapentin . I’m considering
Good morning I started Trazodone in April and unfortunately this too affects my restless legs . I’ve taken dopamine pills for years for my symptoms and feel this has contributed to me feeling depressed. I’ve been clear of these awful pills for a long time and now take Gabapentin . I’m considering
Rubynessie
in
Restless Legs Syndrome
2 months ago
Sun protection. Mineral sun lotion on a budget
Staying protected from UV rays is high on many peoples list this week, with layering and staying in the shade so important. I’ve read that mineral based sun lotion is better than chemical as it creates a barrier on your skin that reflects UV light so t hey don't absorb into the skin. Mineral sunscreens
Staying protected from UV rays is high on many peoples list this week, with layering and staying in the shade so important. I’ve read that mineral based sun lotion is better than chemical as it creates a barrier on your skin that reflects UV light so t hey don't absorb into the skin. Mineral sunscreens
IsleofWight1
in
LUPUS UK
2 months ago
My PCP just increased Ropinirole. I’m pretty sure I’m in augmentation
I have been on Ropinirole for 1 1/2 years. It was a miracle drug for me until about 3 months ago. My PCP said to double the dose. But that hasn’t been helping. I now get flairs during the day (never had them during the day before), It takes a long time to work (an hour or more) while it used to be 15
I have been on Ropinirole for 1 1/2 years. It was a miracle drug for me until about 3 months ago. My PCP said to double the dose. But that hasn’t been helping. I now get flairs during the day (never had them during the day before), It takes a long time to work (an hour or more) while it used to be 15
Chocolatelover1211
in
Restless Legs Syndrome
2 months ago
Emollient cream
Thank you to all who have replied to my message but I have another question now. I have been given antiseptic washing lotion to use for the 5 days leading up to my operation next Friday. My skin is very fragile and dry and I have Cetraben emollient cream prescribed to put on it, especially after a
Thank you to all who have replied to my message but I have another question now. I have been given antiseptic washing lotion to use for the 5 days leading up to my operation next Friday. My skin is very fragile and dry and I have Cetraben emollient cream prescribed to put on it, especially after a
caftan
in
PMRGCAuk
2 months ago
Appointment with Robin Fackrell
I have an appointment with Dr Robin Fackrell at the beginning of October. I am hoping that he will be able to assist with my restless legs, and with the peripheral neuropathy too. I am having problems with needing more ropinirol to keep the restlessness at a bay. I have had no success with Gabapentin
I have an appointment with Dr Robin Fackrell at the beginning of October. I am hoping that he will be able to assist with my restless legs, and with the peripheral neuropathy too. I am having problems with needing more ropinirol to keep the restlessness at a bay. I have had no success with Gabapentin
Faith_Hope_1
in
Restless Legs Syndrome
2 months ago
Is it time to swap from Gabapentin to Pregabalin?
I’m up to 1800mg (6pm/8pm/10pm) of gabapentin now with one 30mg dihydrocodeine. Waking 3 times a night and now sometimes needing a second dihydrocodeine as the legs are bad. Wondering what are my best next steps. Im thinking Pregabalin. I know you get the equivalent dose but would you ask for the same
I’m up to 1800mg (6pm/8pm/10pm) of gabapentin now with one 30mg dihydrocodeine. Waking 3 times a night and now sometimes needing a second dihydrocodeine as the legs are bad. Wondering what are my best next steps. Im thinking Pregabalin. I know you get the equivalent dose but would you ask for the same
Islay9
in
Restless Legs Syndrome
2 months ago
Methadone or Buprenorphine?
I have been on morphine successfully some years for severe RLS. However I'm beginning to think I need a change of meds. Opioid induced insomnia has gradually worsened so that I'm surviving on about 2 hours sleep now. I'm thinking of asking for either methadone or buprenorphine .I 've been thinking
I have been on morphine successfully some years for severe RLS. However I'm beginning to think I need a change of meds. Opioid induced insomnia has gradually worsened so that I'm surviving on about 2 hours sleep now. I'm thinking of asking for either methadone or buprenorphine .I 've been thinking
Jumpey
in
Restless Legs Syndrome
2 months ago
SEVERE NIGHT TIME LEG CRAMPS
I HAVE HAD RESTLESS LEGS SINCE I WAS 40 YEARS OLD & I AM NOW 88YEARS OLD. I HAD BEEN TAKING PRAMIPEXOLE 1.5 MG ALL THESE YEARS, BUT RECENTLY IT NO LONGER WAS HELPING ME. I WAS PUT ON ROPINIROLE 1MG BID WHICH DID NOT HELP & NOW I'M ON 2MG AM PM. I WAS HAVING SO MUCH BURNING IN BOTH MY LEGS & NUMBNESS
I HAVE HAD RESTLESS LEGS SINCE I WAS 40 YEARS OLD & I AM NOW 88YEARS OLD. I HAD BEEN TAKING PRAMIPEXOLE 1.5 MG ALL THESE YEARS, BUT RECENTLY IT NO LONGER WAS HELPING ME. I WAS PUT ON ROPINIROLE 1MG BID WHICH DID NOT HELP & NOW I'M ON 2MG AM PM. I WAS HAVING SO MUCH BURNING IN BOTH MY LEGS & NUMBNESS
Big4844
in
Restless Legs Syndrome
2 months ago
Dancing queen
Hi everyone l have had severe restless legs most of my life even before they gave it this name l have been on many opioids which no-one should be prescribed has this particular medication doesn't help as with time this medications dosage as to be increased to a point where you cannot take anymore and
Hi everyone l have had severe restless legs most of my life even before they gave it this name l have been on many opioids which no-one should be prescribed has this particular medication doesn't help as with time this medications dosage as to be increased to a point where you cannot take anymore and
D4nc1ngqu33m
in
Restless Legs Syndrome
2 months ago
Methadone transition
I have been on 2mg er ropinerole for 10+ years - up and down on doses; mixed with a variety of other low dose meds; became 'refractory' a while ago - my RLS is advanced and has been so for 15+ years. I retired 2 years ago and decided it is time to finally be liberated from the evil 'R". ... I have
I have been on 2mg er ropinerole for 10+ years - up and down on doses; mixed with a variety of other low dose meds; became 'refractory' a while ago - my RLS is advanced and has been so for 15+ years. I retired 2 years ago and decided it is time to finally be liberated from the evil 'R". ... I have
Steino
in
Restless Legs Syndrome
3 months ago
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