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Any last advice before I embark on the battle to try Buprenorphine? Should I increase my pregabalin dose?
I'd be really grateful for any thoughts on remaining treatment options before I start waging war with my GP practice to try Buprenorphine. I took my last ropinirole tablet in May 2023 (after augmentation after 11 years), and have since been taking 300mg pregabalin (150mg at 8pm, 150mg at 10.30pm), together
I'd be really grateful for any thoughts on remaining treatment options before I start waging war with my GP practice to try Buprenorphine. I took my last ropinirole tablet in May 2023 (after augmentation after 11 years), and have since been taking 300mg pregabalin (150mg at 8pm, 150mg at 10.30pm), together
Claire_lc
in
Restless Legs Syndrome
6 months ago
Getting No Help and feeling desperate
I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me to do another sleep study. I have been using kratom for years but now it's not really working for me and am close to packing it all in. I live
I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me to do another sleep study. I have been using kratom for years but now it's not really working for me and am close to packing it all in. I live
Jezee
in
Restless Legs Syndrome
6 months ago
Looking for some guidance please
Hello I have been following the group for a number of months and have learned a lot about my condition, so thankyou to everyone here. I am now reaching out for guidance and help as I have been struggling a lot over the last couple of year or so. As background/history, I am a 65 year male and live
Hello I have been following the group for a number of months and have learned a lot about my condition, so thankyou to everyone here. I am now reaching out for guidance and help as I have been struggling a lot over the last couple of year or so. As background/history, I am a 65 year male and live
Bikerguy1
in
Restless Legs Syndrome
6 months ago
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Sleep apnea and PMR
Over the last year my sleep has been poor, and finally I had an overnight sleep study, which revealed severe apnea. I'm pretty sure this is new to me and I did some reading. Apparently there is a nasty connection between apnea and PMR (and RA). One source: "The co-existence of sleep apnoea in rheumatic
Over the last year my sleep has been poor, and finally I had an overnight sleep study, which revealed severe apnea. I'm pretty sure this is new to me and I did some reading. Apparently there is a nasty connection between apnea and PMR (and RA). One source: "The co-existence of sleep apnoea in rheumatic
papadapadoo
in
PMRGCAuk
6 months ago
Suboxone works!
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
Happygrandmother
in
Restless Legs Syndrome
6 months ago
help: suboxone
Hello, there’s good news and bad news. The good news is that I haven’t had RLS for months. The bad news is since taking Suboxone I’ve developed the most insane muscle pain I can barely function. To get out of bed I barely have the strength to roll my body, and even lifting my leg up, causes an immense
Hello, there’s good news and bad news. The good news is that I haven’t had RLS for months. The bad news is since taking Suboxone I’ve developed the most insane muscle pain I can barely function. To get out of bed I barely have the strength to roll my body, and even lifting my leg up, causes an immense
Marlayna67
in
Restless Legs Syndrome
6 months ago
gabapentin with buprenorphine
I’ve been off Pramipexole and on buprenorphine for 3 1/2 months. I’d like to try gabapentin again to see if I can wean off the buprenorphine (RLS has been good but the side effects are a minor hassle). I see from prior comments that it generally takes 3 weeks for gabapentin to take effect, and the
I’ve been off Pramipexole and on buprenorphine for 3 1/2 months. I’d like to try gabapentin again to see if I can wean off the buprenorphine (RLS has been good but the side effects are a minor hassle). I see from prior comments that it generally takes 3 weeks for gabapentin to take effect, and the
707twitcher
in
Restless Legs Syndrome
6 months ago
Chakra mat
HiI've recently joined this forum and am interested that the Chakra mat (also known as the 'bed of nails') is not referred to (perhaps I have missed it?). I've had RLS since childhood, progressively worse through my life, worse with pregnancies, then much worse in my 50s. In desperation I searched the
HiI've recently joined this forum and am interested that the Chakra mat (also known as the 'bed of nails') is not referred to (perhaps I have missed it?). I've had RLS since childhood, progressively worse through my life, worse with pregnancies, then much worse in my 50s. In desperation I searched the
Annie1963
in
Restless Legs Syndrome
6 months ago
Opiates
Hi for those who have tried 1st ,& 2nd line therapies and are now on an opiate which do you find is best for you and mention side effects if you have them . Has anyone had success with just Codien and if so what dose was needed. I am in the UK so not sure what they will prescribe here. I have done
Hi for those who have tried 1st ,& 2nd line therapies and are now on an opiate which do you find is best for you and mention side effects if you have them . Has anyone had success with just Codien and if so what dose was needed. I am in the UK so not sure what they will prescribe here. I have done
Mandytel
in
Restless Legs Syndrome
6 months ago
Free of Dopamine Agonist But ...
Today, with the help of Buprenorphine, I am about 6 weeks free of Neupro. It is no exaggeration to say that I have not slept consistently this well for 30 years. It is absolutely a miracle. I could not be more thankful for the help I have received here that has gotten me to this place. However, there
Today, with the help of Buprenorphine, I am about 6 weeks free of Neupro. It is no exaggeration to say that I have not slept consistently this well for 30 years. It is absolutely a miracle. I could not be more thankful for the help I have received here that has gotten me to this place. However, there
RiversW
in
Restless Legs Syndrome
6 months ago
Magnesium type
I had my husband on Natural Calm which is the brand I take. His mood lifted, he was less tired etc etc. The problem is it affected his toilet habits! My friend said better to spray and take it trans-dermally but she's talking about Magnesium Chloride. Is that any good to take? I've only ever taken
I had my husband on Natural Calm which is the brand I take. His mood lifted, he was less tired etc etc. The problem is it affected his toilet habits! My friend said better to spray and take it trans-dermally but she's talking about Magnesium Chloride. Is that any good to take? I've only ever taken
Boldgirl45
in
Restless Legs Syndrome
6 months ago
Length of gabapentin
I have severe RLS . I have gone through hell from pramipraxole, augmentation, impulse control issues and then DAWS. I tried to go without medication for a year after getting off pramipraxole. I ended up going from morphine (that didn’t really help at all) to methadone going from 5 mg working my way to
I have severe RLS . I have gone through hell from pramipraxole, augmentation, impulse control issues and then DAWS. I tried to go without medication for a year after getting off pramipraxole. I ended up going from morphine (that didn’t really help at all) to methadone going from 5 mg working my way to
senders
in
Restless Legs Syndrome
6 months ago
Severe Restless Leg
Hello all ! I have suffered from this horrible condition for 30 years. I have been on every medication known to help. It affects my life day and night! I even experience in my arms now. I currently am on anywhere from 5 to 8 mg daily of Ropinirole. And thats not helping. Long story short I accidently
Hello all ! I have suffered from this horrible condition for 30 years. I have been on every medication known to help. It affects my life day and night! I even experience in my arms now. I currently am on anywhere from 5 to 8 mg daily of Ropinirole. And thats not helping. Long story short I accidently
Gette1274
in
Restless Legs Syndrome
7 months ago
Duloxetine to Mirtazapine
I been on Gabapentin from 23.02.24 and was previously on Pramipexole but had compulsive eating so asked to change. I stopped Pramipexole straight away and moved to Gabapentin and went from 300mg three times a day to 900mg three times a day and not really helped me. Spoke to Dr today who’s decided I should
I been on Gabapentin from 23.02.24 and was previously on Pramipexole but had compulsive eating so asked to change. I stopped Pramipexole straight away and moved to Gabapentin and went from 300mg three times a day to 900mg three times a day and not really helped me. Spoke to Dr today who’s decided I should
Puggy1910
in
Restless Legs Syndrome
7 months ago
Gabapentin
I've suffered with rls for over 30 years which has gradually got worse and worse. I'm now 74. After taking dopamine agonists for years, then tramadol, codeine and trying Kratom nothing was working and my doctor and neurologist would and could not prescribe anything else. In the past I had tried Pregabalin
I've suffered with rls for over 30 years which has gradually got worse and worse. I'm now 74. After taking dopamine agonists for years, then tramadol, codeine and trying Kratom nothing was working and my doctor and neurologist would and could not prescribe anything else. In the past I had tried Pregabalin
Coeso
in
Restless Legs Syndrome
7 months ago
Cold Turkey Update
Some of you are familiar with my story so far so I will make this brief. Three years ago I was taking 6mg Pramepexole. It took me nearly three years to taper the dose down to 1.25. My idiotic Neurologist said he would no longer treat me unless I stoped taking Pramipexole. He writes my prescriptions
Some of you are familiar with my story so far so I will make this brief. Three years ago I was taking 6mg Pramepexole. It took me nearly three years to taper the dose down to 1.25. My idiotic Neurologist said he would no longer treat me unless I stoped taking Pramipexole. He writes my prescriptions
welschrispy
in
Restless Legs Syndrome
7 months ago
Raynauds and Hypermobility
Hello, I've been diagnosed with primary Raynauds which is getting worse. I've had blood tests to rule out other conditions, but they've all been negative. Should I be pushing for a nailfold capillorthingy (technical term...)? I've also got colitis, irritable bladder, some joint hypermobility so I'm
Hello, I've been diagnosed with primary Raynauds which is getting worse. I've had blood tests to rule out other conditions, but they've all been negative. Should I be pushing for a nailfold capillorthingy (technical term...)? I've also got colitis, irritable bladder, some joint hypermobility so I'm
Boudica78
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
Lexiscan Chemical Stress Test
My EP wants me to have a chemical stress test before he puts me on Flecainide. I have so many problems with Afib and PACs that I’m terrified to have them inject me with something that’s going to make my heart take off. I contacted the doctors office to ask them if I can have the treadmill stress test
My EP wants me to have a chemical stress test before he puts me on Flecainide. I have so many problems with Afib and PACs that I’m terrified to have them inject me with something that’s going to make my heart take off. I contacted the doctors office to ask them if I can have the treadmill stress test
Debjimmay
in
Atrial Fibrillation Support
8 months ago
How much more can I take ?
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Huntingleroy
in
Restless Legs Syndrome
7 months ago
taking trazodone with Gabapentin
First of all, I am so thankful for this community and the information I have found on here. I am finally getting relief from my RLS by taking gabapentin. My doctor has been way too conservative, starting me at 100mg and only increasing 100mg every week or two weeks. I am finally at a dosage of 1200mg
First of all, I am so thankful for this community and the information I have found on here. I am finally getting relief from my RLS by taking gabapentin. My doctor has been way too conservative, starting me at 100mg and only increasing 100mg every week or two weeks. I am finally at a dosage of 1200mg
Tbone87
in
Restless Legs Syndrome
7 months ago
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